Posted 9/6/2014 11:20 PM (GMT 0)
Hello,
I was reading your posts to justjules regarding BMS. I too have BMS, and have suffered for over twelve years now, it certainly is a nasty thing to get, isn't it?
Greatgrandma. If it is any consolation to you, my Pain Spec told me recently that it usually dissipates, they just don't cant tell you when. I just wish he had told me that many years back, I would have had a more positive outlook over the years. Do you have a severe sensation of pulling and tugging of the tongue with it? I have never heard that if you have it for over a year, you have it for life.
Moniquelof. I take Lyrica 150mg twice a day and Cymbalta 90mg a day. I hate taking them and they certainly feel like they are not doing a lot for the pain but when I have tried to cut back on the Cymbalta, after about four days you can really feel the pain is far, far greater, so I go back to the dose I was on. It is so depressing.
It is certainly a condition that makes you less social, who can get up the enthusiasm when your mouth and tonue are burning and tugging?
Would love to hear more about your symptoms, I really have felt very alone on this one, no one I know has it or knows anyone with it!!
Radles