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update on my appts

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Chronic Pain
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Posted 9/13/2014 11:13 AM (GMT 0)
I visited my neurosurgeon as suggested by pm doc. He did some moving x-rays. He said the only thing that could be worse then having one surgery with no relief is to have two. He reviewed everything and I just received a letter from. Basically says that he suggest the neuro stimulator implant and here is the name of a doc that does them.

Now I have two different docs in two different cities saying same thing. They are in no way in together on this. I went to pm doc thinking seriously about going on with trail last week. Before the visit was up I had decided I would try moving up on my gabpentin. He did mention giving me break through meds but I declined. I told him lets try one thing at a time. I have been hurting like this for a while now. Also suggested going up on the patch. I am currently on 25mg change 48 hours. Gonna wait on that too.

Last night I moved some things around in my mom's room at the nursing home and really paying now. She is getting closer to going home though. Maybe next week.
Posted 9/13/2014 12:55 PM (GMT 0)
Well, just my thoughts on the SCS units, you already have a lot of pain going on, so why run such a huge risk of adding insult to injury? You know, if there was not so much negative things said about them, and I am not speaking of just this forum I would be the first to say do the trial. I just can't say that to someone already suffering. I have heard alot of people say well they are just a glorified tens unit implanted. You can get one of those off of Amazon & not need a brutal surgery to have it implanted & it would be a lot cheaper. Maybe some day they will improve but I am not hearing that right now.

Check on the Gabapentin at Drugs.com to see what the max dosage is & try increasing it. If the pain is still bad then consider bumping up one of the pain meds. I get wanting to stay on the lowest dose with the pain meds but sometimes that small increase can make a world of difference. You need to get someone else to move things around that is the last thing you need to be doing is pushing & pulling on furniture.

Keep us posted.
Posted 9/14/2014 2:43 PM (GMT 0)
With Susie on that! ! We dont see too many good results out of them.
Posted 9/14/2014 7:48 PM (GMT 0)
Hey B...Sorry to hear you're hurting=(  I can say from experience that "moving some things around" in your mom's room can make your spine very ANGRY.  Please, sweetie...I know you want to help your mom recover and keep her spirits up.  Just be sure to check your tank for fuel.  If you're past empty, you can't help anyone.  I know because I've been running on empty with my 88 year old mom for 9 years.  Take care of yourself and let the staff take care of her.  The rehab will be helpful physically for her, so your only job for now is to visit often (with ice cream?) to keep her spirits up.

Please don't even consider the stimulator at this point.  I think increased pain is the "ding ding" of your own tank approaching empty.  Take the time to refill and regroup=)

Healing Hugs~~Dixie

Posted 9/14/2014 7:59 PM (GMT 0)
Thank you all. I am going to try the increase of gabapentin. I think it may be helping.
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