HealingWell
Search Close Search
☰

I need the help, of someone who will listen and not block me out

Support Forums
>
Chronic Pain
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 10/12/2014 6:14 AM (GMT 0)
I have RA, and have have had chemo, remicaide, steroids. My husband is in Pain Management , no help. My RA doc hands out anti-inflame, pain meds, etc. BUT it's not helping me particular problem. Like tonight, I was in bed but I couldn't be comforted. I felt as though both legs were pulled on the rack. Like the bone was going to implode. This has happened often. It's the very worst of all of the RA's tricks. Pain, sleeping meds, don't do it. My complaints are getting so random. Like laughing in the car and feeling like my ribs would shatter on one side. SO, have any of you life coaches dealt with the hobbling pain of leg .implosions? For the records it's only at nights, I am overweight, a size 12, but it's getting worse and no one will listen. I also have two large growths on the bottom of each foot for fun. The dr. wrote me inserts. ANY HELP?
I'll listen, I'll try.. I promise Claudia

Post Edited (missclaudia) : 10/12/2014 12:17:25 AM (GMT-6)

Posted 10/12/2014 12:16 PM (GMT 0)
Hi, welcome to the board. I'm not sure what you meant about "life coaches" but we really all try to support each other as well as we can on this board.

I do not know about your particular symptoms, but for me, learning relaxation techniques has been incredibly helpful.

Yesterday for example I was having a decent day, pain wise, only had to take my rescue med three times instead of my usual four. I was laying in bed and all of a sudden all the muscles in my lower back decided to contract SEVERELY, shooting my pain up to a 10 and I almost NEVER say 10. It was bad.

Now, my relaxation techniques that I use do not make the pain go away, it just makes it bearable to breathe through it for a bit. I have been practicing for a while and it helps just enough for me to put off taking my meds for a few hours, which is good for a few reasons.

A few other suggestions you've probably tried - cutting out inflammation worsening foods from your diet, the worst of which is dairy. Since I cut dairy from my diet I notice a small but consistent difference in my pain levels.

I have a LOT of strange symptoms and as yet no one "diagnosis" but I can relate. I know everyone on here can relate to your situation of feeling so frustrated and everyone will be happy to help.

Cheers.
Posted 10/12/2014 7:54 PM (GMT 0)
Do you legs ache or does it feel like they have to move because of pressure? Restless leg syndrome if very common with RA. Usually a med that deals with nerve pain would be prescribed. Pain meds won't really help that issue.
Posted 10/12/2014 9:16 PM (GMT 0)
missclaudia, have you asked your dr to prescribe something that works ? Have you thought about changing drs ? When you say your husband is in pain management and no help, do you mean he also isn't being treated for his pain ?
Posted 10/12/2014 9:43 PM (GMT 0)
Welcome Claudia.

I really can't add much to what the others have said.I think they may deal with nerve pain also.

That's about the only thing that doesn't bother me.

Welcome to HW.Make yourself at home.

Rick
✚ New Topic ✚ Reply