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Monday check-in (late) sorry

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Posted 11/25/2014 1:32 AM (GMT 0)
Well darn folks I forgot and sorry but here it is better late then not I guess.

This is where we stop in hopefully on Monday and tell us how your weekend went, what's in store for the week ahead and just say hi.

Welcome new members and as we head into a holiday week everyone traveling please stay safe and take care of your self.
Posted 11/25/2014 1:42 AM (GMT 0)
Hey Vickie, you are not late, its still Monday, lol!!! Better late than never. I have been out of pocket all day.
Posted 11/25/2014 2:06 AM (GMT 0)
spent the weekend with my 14month old niece. She is such a joy. She is at the age where she spends so much time figuring everything out, loves to play; putting things in and out and in and out. her favorite toys were a bundle of plastic spoons and a plastic bowl, and a tubberware bowl i put dry rice in).
She loves to make you laugh, tries to "wink" by blinking her eyes, and well simply put- she is just a JOY and so much fun to be around.
Her name is JOVIE GRACE. Jovie comes from Jovial meaning happiness, joyful, etc. Grace is undeserved gift. She def. lives up to her name!
But the chasing, holding, and care of a toddler is hard on a one armed in pain chick. But every pain is worth the happiness she brings.

I Will be having thanksgiving with my mom's Twin and her family, and this weekend I am so excited to be going to the broadway show of "The Christmas Story" in Memphis, and do a little thrifting before.
I hope i can keep up with my sister. She doesn't get my CP AT ALL, and she can be a bit selfish if you inconvenience her, BUT I"m glad to spend some time with her.

I WISH YOU ALL A WEEK FULL OF THANKSGIVING, JOY, GOOD SPIRITS AND AS LITTLE PAIN AS POSSIBLE!
Posted 11/25/2014 2:19 AM (GMT 0)
Spent the last several weeks helping my 93 year old mother in law through her final illness and death, on sunday. She and her husband escaped Russia after seeing most of their family slaughtered, and she never quite adapted to life in the US. But still a strong woman who lived fully to the end.
I had a very successful 2 day trial for the intrathecal pain pump, surgery to have it implanted in 2 weeks.
Posted 11/25/2014 2:20 AM (GMT 0)
Getting ready for the invasion. Last year, when I had broken my neck, they took care of me, but they think I'm just fine now. With two more now walking and running it'll be a lovely chaos. My body is aching and I haven't even started on the pies.
Posted 11/25/2014 4:21 AM (GMT 0)
Just killed a scorpion!
Posted 11/25/2014 5:23 AM (GMT 0)
Gross Cogito I hate those things!
Posted 11/25/2014 5:40 AM (GMT 0)
For the first time in maybe six months, I went out to eat at Subway with my wife today (chicken and bacon ranch sub), then we went grocery shopping! I was virtually pain-free!

Doesn't sound like much, does it, LOL! But it was literally the first time I'd gone anywhere besides a doctor's appointment, or seen other people besides doctors or patients since early summer. It's amazing how you enjoy the little things when you can do them again. I'm still somewhat dizzy, walk with a cane, and have a lot of swelling in my stomach that the doctors can't identify, but I can work around all that happily.

It's a mystery why the pain decreased. Over just a few days toward the end of last week, my ribs suddenly started to go numb where the cancer/tumor pain was and then all the pain ended there. There seem to be only two possilities...

I'd tried an intercostal nerve block a couple months ago in that exact place. It did no good and the doctor agreed it had failed, but I guess it's possible the nerves suddenly decided to die two months later with no further ablation.

I also increased neurontin from 900 to 1200 mg a day the week before, but that seems way too little to cause that kind of spectacular result. I'm still on 2x 100mg morphine a day and didn't change that. Otherwise, nothing has changed.

So I don't know what this is, how long it will last, or when some new pain will start up again, but right now, I'm enjoying a sort of miracle reprieve. I was grateful for every day I was still alive even when I was in constant but bearable pain, and now I'm even more grateful for every day left when my pain is low enough that I have a life.

I hope that everyone can enjoy as pain-free an upcoming week as possible, and if I had a bit of miracle to share, I'd spread it to everyone.
Posted 11/25/2014 4:43 PM (GMT 0)
JamesBW - I definitely understand enjoying the 'little' things, and how folks w/o CP would think you were weird for being happy over going to Subway and going shopping, LOL - but I certainly get it. I went to a Christmas store to get some decorations and it was like the biggest victory I have had in months!

As for me I'm positively awful but I'm not going to bore you with the details. I need to get out of myself and concentrate more on helping others.
Posted 11/25/2014 5:01 PM (GMT 0)
 

Cogito...That scorpion could have been one of my traveling relatives! smilewinkgrin

 

 

Posted 11/25/2014 8:56 PM (GMT 0)
Well I got fed up with the PA at UK. two weeks ago they put me in a leg brace and said I needed an MRI of my knee, they finally called me up late yesterday with an MRI date, I told them to cancel it as I was going to see another Orthopedic surgeon somewhere else. ( I had made an appointment last week with the surgeon who had worked on my sisters knees) Anyway seen him this morning, and he thinks the only good solution is a total knee replacement. So it looks like the middle of December I will have it done. Got to do something as can't live like this for ever! Anyway more to come about it later. Hope everyone has a Great Thanksgiving!

White Beard
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