Hello My Sweet...Dang, you can't get much of a
BREAK, can you? I joke that if I ever get a "break" with my web of pain and demise, it will involve bones instead of good news! I'm so sorry you're facing this new dragon, but have no doubt that you will SLAY the beast. You are a warrior mentally and physically. I consider you to be such a hero and an inspiration to all of us who suffer 24/7 with pain.
I KNOW it gets old, Darling, but I heard something in a movie last night called "Wish I Were Here". The dying father told his son when he asked "Where do I go from here?"..."Forward, son. That's the only direction God gives us". That thought pierced my heart, as it is true with these bodies of ours that are riddled with disease, surgeries, etc. We have no choice but to move forward.
You do that with such GRACE. I know that your will and determination are 99% for Nathan...But continue to fight for YOU, too. I'm glad you got to spend Thanksgiving at home. WE SO take life for granted as a society...busying ourselves with "things" that are of no value. I believe that the greatest gift we can give is one of ourselves, our time together, and the love that lingers.
Thank God for technology...Bright side 
that you can reach out and talk to folks. I've been at this struggling for so long, I shudder at the memory of extended stays in hospital, agonizing through the pain AND the loneliness and isolation. I grew to HATE fluorescent lights and could count the divots in each ceiling tile, as I lay flat of my back w/tubes all over! NO ONE was there to comfort me. My husband had to be at work 2 hours away. There were 2 stints at Ochners in NOLA, which is 5 hours from home. There was no cell phone, no Kindle, no IPad, etc. There was only Bellsouth, and my phone wasn't ringing! My parents would drive down once or twice, but they would get into shouting matches, making me so nervous I'd start to vomit. My siblings went right on with their lives, even through my cancer "scares". I KNOW, though not specifically your condition, the ongoing "forever" agony of our body's betrayal. I'm just saying that I don't want you to ever feel alone in any of your struggles. You are my cyber sister. I reach through the space to wrap my arms gently around you, to sit by your side and CHEER YOU ON!!!
I'm HERE for you. Your entire HW FAMILY is here for you. You can also email me, if you ever just need your cyber sis=)
HUGS~~Dixie