CRPS

Hello RVSP & welcome to the chronic pain forum. Sorry very sorry to read about your parents but you know you are right there is only so much you can do for them & you do have to keep on top of your own health.

One of our mods has CRPS full body & although she does not hang out here much she may pop on & see your post. I do believe we do have some other members here that has this condition too so you will hear from them. Does your current medical regime seem to keep your CRPS under some kind of control?

Weekends tend to be slow & its a holiday so please keep checking back.

Take care.

Hi rsvp and welcome to the cp forum.

I've had CRPS since a knee injury/ surgery when I was 14 ...now 30 with full body spread and a few other bonus features besides. I am managing a bit better now than I was at one time, but still struggle a lot with both pain and mobility issues due to dystonia/spasms.

Have you found any particular treatments work for you?

Wow, so many replies! Thank you! I'm sorry I've only now gotten back. Happy Easter to those who celebrate it. I hope everyone has had a "normal" pain day as I sometimes answer people when they ask me how I am. Normal pain I say.

Up until my Mom went in the hospital in July 2014 I had my pain and anxiety under better control than ever. Thru the entire 8 months of getting her transported through 5 different hospitals, transporting Dad to a hospital that could save his life and just doing the things that come along with all that i wore myself out. There were days I didn't think I could go on. We had to travel 1.5 hours to see both of them. They were 1.5 hrs away from each other. I can't drive by myself that far, so that was hard.

My pain was under control better than ever up until July 2014 :-( I don't really know if I'll ever get control back. Three or four times a year I get a Sympathetic Ganglion Nerve Block. Backside on the right in between T and L areas. Those usually work. The two I got while all this was happening did not work. Hmm, correlation? I think so. I also get, or try to remember to get Toradol shots each month. Sometimes they work, sometimes not. The other shots they give people never work for me. I'm so tired right now I can't think of the name. Trigger shots?

I'm so sorry but I'm going to have to read and try to get some sleep. If I continued right now, I would make no sense at all! I shall continue tomorrow.

straydog - your name looks familiar. I'm sure I've seen it as I read through a few different forums. You're so right about my health. I didn't really follow my docs and therapist's directions like I should have during that awful time. Learned my lesson the hard way.

CRPSpatient, I'm so sorry to hear that you have full body. How awful. I'm also sorry to hear about the mod who has it as well.

flower123, feet burning, like fire, definitely is one of the things we have to deal with. Burning everywhere. I hope to keep in touch with all of you. I'm looking forward to hearing everyone's stories and learn other methods of coping with the trials and tribulations of RSD.

Okay, signing off for now. Goodnight everyone. Talk with you tomorrow.

Nice to meet all of you

Hello RV and WELCOME to the club no one wants to join...PAIN.  You are in good company here.  I feel such empathy for your family issues.  Though my family is beyond dysfunctional, alchohol was never a factor (thankfully).  It is a beast that can devour YOU as you seek help for your loved ones.

You have made a good decision to focus on making YOU stronger and healthier.  At the end of the painful day, my truth is that I'm all I've got.  If I don't advocate for me, no one will.  I understand, though, as I am the annointed one (youngest of 6) to solve any and all family issues;)

It appears as though you have a good team working with you to manage your pain.  I am envious of that concept, as I wonder in the wilderness of PM...or rather "pain not managed"...YET.

My email is always open.  I leave a candle in the window to welcome you=)

~~Dixie