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Posted 4/16/2015 12:38 AM (GMT 0)
That's encouraging news! Hope you are not running yourself into the ground and will be the next one needing the prayers! Easy does it! Still praying.
Posted 4/16/2015 10:16 AM (GMT 0)
healing thoughts being sent. keep strong.
Posted 4/16/2015 3:21 PM (GMT 0)
Things are still touchy.......... he is on the 6th floor and not ICU now and what a difference in care or lack there of. Ring the bell for nurse no response, call nurse from hall no response, go hunt nurse down.......... two hour wait before she enters room. Please don't get me wrong, I have many good friends who are nurses and in California they are over worked, understaffed and underpaid with little respect........ but this is excessive.

He has swelled up again and they had to reopen the keyholes in his chest to release the gas that is escaping into the chest cavity so he is the size of as my mother put it "the staypuff man."

It is just back and forth back and forth. I am sure each of you have experienced this with yourselves and or your family.

The phone call 20 mins ago the nurse couldn't even tell me what his night was like.... no information at all. She said that if I wanted to know how he was doing I could come to the hospital.......... I am two hours away! It is too early to call my Stem-Mother and wake her up possibly put her in a panic.

His blood pressure has been 180/90....... crazy and they called my mom to ask her what the dosage his high blood pressure medication was! He has been there since last week.... grrr so frustrating.

Thank you for asking. Again as usual I am using all of you to vent. I sure do appreciate it because now is not the time to blast my bad feelings at the family.

Blessings and healing to all!
Posted 4/16/2015 3:30 PM (GMT 0)
Wow, that really makes it tough when you are not close by to see for yourself. I have been there with the nightmare with my own father & mother & husband before each passed on. It may be time to go to the hospital & get in contact with a Patient Advocate. I did this in all 3 situations above & it made a huge difference.

No one should have to go through this sort of care. Take care.
Posted 4/16/2015 5:32 PM (GMT 0)
I agree totally straydog! I have a call into the doctor right now and the head nurse for the floor.

I have not been cleared to drive yet from the doctor... grrr even though it has been 7 weeks since surgery and my husband is finally working (slow for 3 months) 8 hour days. I am tempted to just get in the car and drive over there but he has threatened to take all the car keys to work. I hate to push him and make him worry that I'll steal my own car rofl I have to laugh because that sounds like I am a teen again.... and yes I would steal the car lol

I talked to my mom she actually took the chance to call and speak to my dad, which we do not do due to his breathing situation. The drainage tube fell out and was just sitting in his chest cavity...... Doctor came in at 4am to correct the issue. His catheter has an infection. One of the keyholes wont stop bleeding but the swelling now has gone down again.

Deep Breath!

He says he feels better than last night. That is good. So there are real signs of improvement. I still have a call into the doctor and the head nurse.

Thank you again for all of your support and taking the time to listen.
Posted 4/17/2015 4:23 AM (GMT 0)
Oy....JUST when you were just feeling like you could breathe a bit.

Perhaps the physician will be able to hear you now that his rear was drug in a 4am. Don't be surprised is he appears not to hear you. Say it anyway. JUST my experience,but they tend to be defensive and it feels like they've not heard you--but the proof is in the actions following the call. That's what you're after--a change in the treatment. So make the call-- to the poor doc who got called in at 4am(can ya hear the sarcasm...LOL!) and to the advocate and refrain from stealing the car for the next 24 hours...LOL...and see if it changes. Dang well better. That takes you into the weekend and you can hijack the hubby to have some face to face time with whoever you need it with.

Of course my hope is none of the latter will be necessary and that dad will be getting an improved quality of care.

LOL. I almost pity them if that doesn't happen! ;-)

*sending prayers still!*
Posted 4/17/2015 6:47 AM (GMT 0)
Mel thank you so much....... I love the humor that you have injected and boy do I need a good giggle.

No call from the doctor..... but tomorrow is another day and it is 12am here now and I have to get some sleep myself..... I do pity them lol when I get them on the carpet. I may only be 4'10 but believe you me all of my Portuguese/Irish will be on full force! Even if I have to stand on a chair to be heard lol Which I doubt because I am schooled in shins....... lol

I hope you are doing well. It feels like the last few months since joining here it has been one issues after another and I am sucking up attention.

Hugs and thank you xxx
Posted 4/18/2015 12:27 AM (GMT 0)
Ohhh....so THAT'S what this!! A 4'10" Irish/Portuguese's idea of a FUN time!! ROTF****. Dearheart, you're not 'sucking up attention'.

Are you? LOLOL!!

Seriously, at any given moment it could be ME or Pmom ot the turtle buried under one traumatic moment after another.You'd be worried about US 'sucking up attention'?!
Not even.

We just desperately want to make sure YOU'RE okay, that YOU'RE getting what YOU need, that YOU'RE as okay as you can be under the circumstances.
We just care about you.
It matters to us.

Well, that and we have a side bet on which shin you kick 'em in first.
:-/

I bet on the right one, in case you're interested. (That way I win no matter what! LOLOL!!)

Take care of you, eh. And yup--still praying!

*hugs*
Posted 4/18/2015 1:54 AM (GMT 0)
 

  skull Oh, Leila...I've hesitated to post since the report of poor performance of the medical staff.  I want to keep things "pretty" and "sunshine and rainbows" but...that's not my truth. I refrain from making generalizations, because that isn't fair.  There are excellent nurses, doctors, and CNAs that truly care about the patient's care.  There are those, however, like most other professions, who DGRA about anything but the paycheck. 

As others have said...been there (more times than I can count).  I will try to put this nicely, but forgive me if I don't.  My experience is that EVERY patient needs an ADVOCATE bedside, preferrably tag-team 24/7.  This was the case 40 years ago with my grandparents, 30 years ago with ME, and for the past 25 years with siblings/spouses, myself and both parents.  I see no signs of it getting better. 

What I'm saying is this...There was NO technology to DISTRACT the staff back then. (you, know, before fire)  Take a stroll on any floor and see what you'll see now. People, including medical staff, are self-absorbed to the deficit of patient care.  And doll baby...It's heartbreaking if/when they get to a permanent nursing home. I digress.

FWIW...That staff member that wouldn't give you anything but a smart mouth...BOOM goes the anvil.  My experience is that pertaining to my mom (88)...I'm given a security code that I must give the nurses' station.  They will give me an update any time of day...whether hospital or nursing home.  I do not hesitate to go to administration/CEO if I encounter problems.

People who haven't lived THIS heartbreak as a patient or as an advocate HAVE NO CLUE.  I have found my mom naked on a plastic mattress.  That's a highlight, as our elders are forgotten and foresaken on so many levels.  I digress yet again.

Leila...at the end of the day...YOU MUST COME FIRST.  If you don't take care of you, how can you take care of them?  or anyone else?  Again, I don't practice what I preach.  I've never taken care of me.  I don't value myself...never have.  I put everyone first.  They let me.  It has caught up with me.  I'm worn out, used up, hurting and heartbroken.  I've invested too much in everyone else in my family.  I can only WISH I had me in my corner.

Get LEILA in your corner first...Then fight for your dad.  Your husband is looking out for you, sweet.  Don't be too hard on him.  Get some rest tonight...drive up together tomorrow.  It's gonna be okay.

(((HUGS)))

Posted 4/18/2015 3:46 PM (GMT 0)
Dixie and Mel thank you so much..... Mel you lost the bet I didn't physically kick anyone yet but it was close. Thanks for the humor Mel I had a good needed giggle

He is back in ICU..... that hole that the doc put into the lung is causing horrible havoc. I do feel better that he is on a floor where there is more attention but sad that it has come to that. For him to come home he has to live through the sixth floor mess.

The doctor never called me but he was called to his room yesterday at 4am because he started to blowup again like a balloon. They did a CT scan but I have not gotten the results yet. I'll be driving over there today and trying to make an appointment with the head nurse.

Honestly things are so nuts.... I have to say this is all looking mighty grim with his health. We'll see. Hate to sound like a debbie downer but the cards are stacked against us. But he is a tough old bird we'll see.

I am out of gabapentin..... they didn't refill my prescription. I have been off of it since last week Friday. Not too many adverse affects.... But the strangest thing..... painful goosebumps! 81 degrees in the house yesterday and I had goosebumps that I couldn't get rid of. I get the goosebumps all over but they only hurt on my arm... I swear I am losing my mind. Sleep is the issues still, or lack there of. Like everyone else it seems that going to bed at night never seems to work.

We will see what today brings when I get over there. I sure do appreciate both of you keeping up on the thread and checking in. xxxx have a blessed day
Posted 4/18/2015 4:54 PM (GMT 0)
Man....It's all upside down and inside out for you. *sigh*
I know it's scary dealing with aging parents with tired bodies. We put ourselves in autopilot and just deal with whatever's in front of us, most time in a state void of feelings cuz those darn things would just complicate everything.

Just hang in there…do what you need to.
Kinda scared me to hear about the medication. And because I'm not sure what the deal is, I'm not sure how to offer help on that one. It had to be weird, the goosebumps with pain. I'm gonna hope that one takes care of itself, but boy, you really need a break from all this STUFF that just keeps flying at you.
Can you take melatonin to help with sleep? Maybe that would at least help relax you enough to help get a bit more rest.

We're here, praying and sending peaceful thoughts to you and yours.
Make sure you're taking care of you in regards to your relationship with your dad. Don't forget those bits that you always want him to know, yaknow?

*hugs*
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