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Posted 6/18/2015 10:34 PM (GMT 0)
Hi all new to this but after suffering with chronic pelvic pain for the past two years I feel the need to talk to someone who can relate to the isolation that occurs due to the inability to participate in an active life. I am reaching my breaking point with not being able to do the things I used to and the long waits to get any help in relieving or remedying this problem. What the doctors seem to have narrowed it down to is Pelvic Floor Muscle Dysfunction, IBS and degenerative disc disease. As the pelvic floor muscles have reached full Charlie horse stage it is putting strain on lower back and bowels not working properly. I take buscopan, tramadol, have spinal pain blocks every 3 months in my lower lumbar and sciatic joints. So far they have dulled the pain but if I attempt to be active the pain just increases until I can no longer walk, sit or stand. As time has gone on no matter what pain relieving attempts I make - massage, heat, cold, yoga,,, I try and do it all nothing seems to help any more. I feel so tired all the time just trying to deal with the pain. If anyone has insight as to pain relief that I may not have tried I am willing to hear about it and try it all.
Posted 6/19/2015 12:13 AM (GMT 0)
Welcome to HW Reddoor66.I can relate with the loss of activities that I used to enjoy.

I'm not able.I've accepted that this is the way it is.

I'm serious about my Pain Management now.It's become a daily thing.

I take Morphine ER and IR.It provides pretty good good pain relief but I've accepted that no matter what Pain Meds I take I'm still going to hurt.

Take care and God Bless.

Rick
Posted 6/19/2015 12:21 AM (GMT 0)
Thanks Rick,
I have been really trying to avoid the morphene even though I have them for the mirgraine headaches I get from a disc fusion in my neck. I was able to live with the headaches but pile on this and it sometimes gets to be too much. Sometimes I pass out just because I believe my mind says there is no other alternative. I hope to achieve some improvement in being active, trying a new physio next week. And I too have learned that I will always hurt I just want ways to cope better. Thanks for writing me. Doctor says these forums are good for us

Paula
Posted 6/19/2015 12:37 AM (GMT 0)
Welcome Paula,

I'm glad to hear your doctor says forums like this are good for us-I agree. Feel free to look around and you will probably find some more ideas for pain control. I know you will find people who understand and really care.

Is a pain pump anything you could consider? I'm not familiar with your pain but several of our members have the pump implanted and have had great success.
Posted 6/19/2015 3:44 AM (GMT 0)
Not sure if a pain pump is covered in Canada but I will look into to it thanks. I have been slowly searching around.

thanks for our insight
Posted 6/19/2015 10:19 AM (GMT 0)
Hi reddoor66 I was reading your post and couldn't help but feel for you as I too have suffered with chronic pelvic floor dysfunction for 5 years along with the lower back problems resulting from this , I thought I would mention a couple of things that have helped me one being a physical therapist who specialises in this area they can really help to manage the symptoms and also as a last resort I recently had botox injections into the pelvic floor which has helped tremendously anyway I wish you all the best in finding some relief
Posted 6/19/2015 3:39 PM (GMT 0)
Hi redoor66,
I very much understand the pain and isolation. I don't have your pelvic issue. But after my neck surgery I went from going 24/7 to complete stop. Stuck in a neck brace and unable to even go for a ride in the car for 4 months and even after 4 months it was so painful I avoided it. I nearly went out of my mind. A few friends stuck it out with me, but many "we're too busy" to stop by. Some of the folks on this site have accepted and embraced their new reality. I still struggle with it. I want to do things and my body says no (you can see my signature for all the stuff I have). I also take pain meds daily to function. I used to be fit and now just thin and not fit. I want people to understand my mental and physical pain, but only those of us that have it, get it.

I got a dog and he helps me mentally a lot, but he also puts physical strain on me and is the reason my back has gone out twice lately. I did go to a counselor for a bit and have thought about going again because I can start crying just talking about my ordeal over the past year; some kind of PTSD thing?

This is a good site because everyone here understands what you are dealing with. I know people say I need to accept my new reality, but it is one thing telling yourself to accept it and another to actually do it. Take care and know that you are not alone.
Posted 6/19/2015 4:56 PM (GMT 0)
Hello Reddoor & welcome to the chronic pain forum. Thank you for making the intro post so everyone can greet you.

We have had some ladies in the past try Botox injections for Pelvic Floor problems. You may want to use our search feature at the top & type it in & read those older posts. We ask that you not post on them because most likely they are no longer active here at Healing Well.

Another thought is have you considered going to a Women's Health Center to see what they can do for you. We are seeing better care & treatment out of those places instead of a regular gyno. Some things to think about.

Pain & isolation they just go together. But it is not a good combination & even though you feel bad try to get out some. Living the life of a chronic pain patient is difficult. Instead of concentrating on what you can no longer do, concentrate on what you can do. There are many things you can still do & you may have to do them a different way. You will at some point have to turn your thinking around or else you will end up in big trouble. Some of us have had to get professional help to learn to deal with this life & cope. Its ok to get help, I probably would not have survived without it. I have over 20 yrs of this life under my belt & it has not been a cake walk but I am surviving & that is the important thing. Don't get down on yourself either.

Come here & keep reaching out its a very good place to hang out with people that understand.

Take care.
Posted 6/19/2015 5:00 PM (GMT 0)
Hey Taller Now.I know what you mean.When the Federal Judge said he was awarding me SSDI I broke down.I found out why there was a box of tissue on the table.


It was basically him telling me that I'd done enough damage trying to work.

I was a avid Basketball player,water skied,Rock Climbing,Hiking,Hunting,Fishing,etc.

All gone within a decade.

I taught myself to play acoustic guitar at 40.Been playing 13 years.That's my passion and my Serenity,Sanity.

I'm sure all of our lives have been affected.

Hope everyone has relaxing low-pain days.

Rick
Posted 6/20/2015 12:57 AM (GMT 0)
Hello RD and welcome to the CP forum at HW. Sorry to read about your issues and my first suggestion on acceptance is of the Morphine or any other narcotics used to treat chronic pain, let go of the trying to stay away from stigma and know that your energy and mobility issues can be better with your pain treated adequately!! If you had a lung disease that left you short of breath therefore unable to move about and take part in life would you refuse to take it? Chronic pain is taking the things you enjoy in your life and the medication may give you the ability to do some of that again so not? We can't allow the stigma and preconceived ideas associated with narcotics due to those who have abused them prevent us from treating our problem, a legitimate medical problem, Chronic pain.

It's not easy to accept changes in life and especially drastic sometimes unexpected ones and more so when they're likely going to be permanent changes but with help of family and friends and yes even counselors you can get to a place where you can say not change just remodifying life. Doing things differently is Ok just as long as your doing things. I use to be a avid camper, hiker and loved swimming, still camp but traded my tent for a RV, I don't hike but short walk in beautiful places like gardens and the beach, I don't actually swim laps but the pool and hydrotherapy has been a Godsend for my knee and spinal issues. I'm in the pool probably 4-5 total hours out of the day year round and even use some low impact aerobics that a great physical therapist taught me. My mobility has increased by 50% since using this type of therapy daily.


This forums awesome and has some great folks who have been on this journey many years and sometimes those experiences are priceless.

Glad you joined and look forward to hearing more from you.
Posted 6/20/2015 1:51 PM (GMT 0)
Hi Reddoor,I am completely where your at.My story is a failed fusion at three levels,lumbar to sacrum.It's left me with constant severe pain and now have sacrollilic joint pain and of course PELVIC floor pain.It also bothers my bladder and bowel.
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