Posted 11/25/2015 10:55 AM (GMT 0)
Welcome Gojo to the CP forum and HW. I am sorry to hear your in such a place but have no fear that most of us here have been there as well. With CP we tend to move in and out of periods of depression and we live with the steps of grief far longer than those who have lost someone other than themselves. You are moving in the right direction by realizing not everyone, actually very few understands the complexities of living this life filled with pain and everything we must do to make it actually living.
Here you can find others who understand and know that a reported level of 8 is likely more than 10 because we tend to downplay the numbers.
We have spent countless posts discussing how we do live in this life we have been given an its interesting reading. You can use the search option at the top of the page and enter the criteria and all the old thread's will come up. We ask that you don't post to them since they will move to the top of the forum but if you have questions bring them back here.
All of us who seem to do OK with this life of pain have a few common threads and I would say top of the list is a good Pain management Dr and one whose not afraid to treat you aggressively and humanely. Vitally important you have a good team of Dr's who are team players with you at the helm. A primary is not a good idea for treating you for pain issues, its like calling a plumber for a electrical short. Mind you there's bad PM drs as well and finding one who is more concerned with your quality of life and not quantity is priceless. He needs to not be opiate or Dea phobic.
Second on the list is hit and miss but finding every little thing that helps to relieve even a small amount of pain and putting together a routine of sorts of things that work to knock out even a single number on the pain scales and using them, heat/cold,pillow propping, doing things around the house different, knowing the limits of comfort, injections, creams,massage, therapy, hydrotherapy (awesome thing) recliner sleeping or new bed, and diversion therapy one of my favorites. Find a hobby and when the pain and depression get overwhelming go at it full out! Some are avid readers, some needlepoint, music and headphones and loud is good, gardening and building things, we all have something and we throw ourselves into it and lose ourselves pushing the thoughts away.
It's hard but with diligence can work wonders. Get to know your pain and put it into perspective defining it not allowing it to define you. Pain is a entity unto you not you or who you are. Don't give it the power to overcome that which you are.
We meet here for encouragement and support and sometimes we just help others by seeking help for ourselves. This forum we call home is therapy in itself, a place to scream of the injustice and unfairness of being forced to live this life to like minded people who really do get it. We share experiences and manage to laugh and cry together and then go back to the real world and play all's well with us. At the end of the day we realize that there are many blessings because there are many worse than ourselves and we see them here.
Stick around and get to know us better and through our experiences maybe find some new ways to help yourself.