**Please Help** Head Pain 24/7 For Six Years

I was a healthy 30 year old woman until May 20th 2010, the day after my last child was born. What was supposed to be one of the happiest times in my life has turned out to be a living nightmare. A quick version of my story...the day after my daughter was born (I did have an epidural) I developed postpardum preeclampsia. I was on bed rest with extremely high blood pressure, horrible headache, allodynia on my scalp and a blue spot in my field of vision that came and went throughout the days. After six weeks, my blood pressure normalized but the head pain, allodynia and blue spot were still present...til this day, six years later, I still have horrible head pain and allodynia 24/7! I have seen more doctors than I can count. For the first few years, I was told it was a chronic daily migraine and tried every migraine medication possible. I was also an inpatient at the Michigan Head Pain and Neurological Institute under the care of the infamous migraine specialist, Dr. Saper. NO MIGRAINE MEDICATION EVEN TOUCHED THE PAIN! Cervical blocks, botox, radio frequency ablation, spinal tap, 3 MRI's, EKG's, hundreds of blood tests...all either didn't help the pain or tests came back normal. I am now with an Integrative Medicine Doctor who does not believe this is a migraine. I also have no family history of migraine. I am following a gluten free, dairy free and sugar free diet. I am a wife and a mother of four. I am begging and pleading for answers. They are missing something! I am stuck in agony. I have prayed for death. Is anyone going through this same thing or know someone who has? Can anyone shed a glimpse of hope for me? I feel like this is my last resort. I can't take the pain anymore. PLEASE HELP ME.

Welcome Sommertime to the CP forum and I am sure sorry for your issues. It sounds like you have had all the normal tests and procedures and you have seen all the drs that generally help others with headache issues. I don't have anymore answers or knowledge I'm guessing than they do but I have experience with headaches that lasted years with no reason why and started during my childbearing years.

I like you kept a fairly constant headache for many years through the birth of 3 of my 6 children. Saw every known headache specialist,clinic and off the wall drs,all tests and procedures that usually get answers and tried everyone medication that remotely had been known to help others with out relief.

In hindsight we didn't find the answer until they stopped as quickly and strangely as they started. It seems impossible looking back that something so easily detected and treatable was not once considered by any of these so-called specialists.

After the birth of my last daughter at 42 by emergency C-section from placenta rupturing I required a partial hysterectomy from the damage. This in turn sent me into early menopause and from that day on the headache was no more. Strange right? Evidently not. Hormone imbalances were the culprit for all those years and when I was sent into menopause they balanced back out. . It seems some women are more effected by those hormones that are at higher presence during childbearing years than others. All this came not from the oodles of specialists but from the Gyn specialist at the Center for women at a University hospital that specialized in high risk pregnancy and fertility issues.

I don't know if this I'd the answer for you but if it's not something you have looked into its worth a look. You will have to find a Dr who first believes that hormone levels and imbalance cause such issues because they are not many.

Good luck!

Sommertime, I'm so sorry you are going through this and I pray you will have some relief soon. when I was 30 my child was born and since I have had chronic debilating nerve pain in my lower body.

Even though my situation is different , I wanted to share. I also get hormonal headaches like migraines that nothing can touch but they are not daily.

Did they check if the epidural did any damage? Did you have a lumbosacral with contrast MRI done and the arachnoid checked?

I'm trying to look into this for myself and thought I would mention it to you just incase , you never know .

It is frustrating when there are no answers. I hope you will get the right help soon.