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Posted 1/1/2017 5:12 AM (GMT 0)
I saw one of your posts about your daughter being on Metformin & the diarrhea thanks to the drug. My husband was put on it also, the diarrhea was so bad the dr took him off. Later a new dr took over handling his diabetes & he wanted him back on Metformin & he told the dr no & why.

Our neighbors wife had the same thing happen to her while on Metformin. Its like try to fix one problem & end up with another.

Metformin is available in an ER & it does not cause the diarrhea like the other. Perhaps this is something your daughter can try.

Take care.
Posted 1/1/2017 9:41 PM (GMT 0)
Thanks. They've tried adjusting her meds every which way. Now, they've taken her off one that 'may cause weight loss' because she's lost 'too much' weight, and put her on another.

The 'problem' is...her diabetes is part of her having Cushing's Disease. She'll be undergoing more testing as she is 14 months post op pituitary resection. Diarrhea is the least of her concerns at the moment.

She has a whole team of doctors at this point. Nothing is simple. Nothing is 'cut and dried'.

I'll mention the ER type to her, in case her doctor hasn't already considered it.
Posted 1/2/2017 4:17 PM (GMT 0)
I did mention the ER to my daughter...she's already on it.

On the bright side, she is grateful for your reply, that someone cared to recommend something that might help.

Thanks again.
Posted 1/2/2017 4:38 PM (GMT 0)
Pitmom:
Pituitary disorders are complex and complicated.

Nothing is ever as simple as "x causes this" or "y causes that." Your daughters symptoms will likely have multifactorial causes related to pituitary disruption.

I know because I have complete pituitary failure. The hormone replacement medications that I take are only panaceas. The hormone medications replace the essential, primary pituitary hormones but they do not address the hundreds (thousands?) of secondary hormones influenced by the pituitary gland.

Living with a pituitary disorder is an ongoing process of adapting and adjusting.

Above all, I implore your daughter to listen to her body and to trust what her body is telling her. Your daughter lives in her body and knows it best.

I am blessed with an endocrinologist who actively listens. She respects my opinions and fosters a collaborative relationship where I have a definite say in my course of treatment. Your daughter will be partnering with an endocrinologist for a long time. Make sure that your daughter finds an endocrinologist that she values and trusts.

The pituitary gland and its role affects the entire body. There is no organ or body system not influenced by the pituitary gland in some way.

She may want to explore options for a support forum - here at HealingWell or at MDJunction or FaceBook or Inspire.

Tell your daughter that I am supporting her from afar. Although I do not know her, I can appreciate her challenges and struggles.

Pitmom, I can appreciate your concerns for her, as a parent. My mother's concerns for my well-being has become part of the fabric of her life.

Take care, both of you,
- Karen -
Posted 1/3/2017 12:46 AM (GMT 0)
Seashell, once again I thank you. You've been a great support for me.

We also log on to Cushing's Invisionzone.com. It's primary dedication is to Cushing's patients and their families but they also have forums for other pituitary related illnesses.

As I said, she has a team of doctors now. All through Rutgers and Robert Wood Johnson University Hospital.

Her most recent blood work suggests that the tumor is not growing back. She will have another suppression test done, to see if they can 'jump start' her pituitary. So far, nothing is coming back on it's own.

I may be suggesting she send her records out to the top doctor in California, just for his opinion on things.
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