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Nothing helping my husbands small fiber peripheral neuropathy

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Chronic Pain
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Posted 3/5/2017 5:23 PM (GMT 0)
My husband was diagnosed with small fiber peripheral neuropathy over a year ago. We have tried Gabepentin and now on 450 mg of Lyrica as well as a tramedol/acedaminaphin mix. Nothing seems to work. He has spasms in his thighs that are debilitating and pain in his feet. His legs also have tremors from time to time which are painful and cause muscle spasms. They also have tried botox. He feels pain through out his whole body as well. Not sure what else to do. He is seeing a neurologist and a pain specialist.
Posted 3/5/2017 8:54 PM (GMT 0)
Hi Tiger, Welcome to HW, sorry you have to be here. Wow, at this point the Neurologist is the best bet. How many mg of Gabepentin? Has he tried Cymbalta?
Posted 3/5/2017 10:20 PM (GMT 0)
Thanks CaliJr. Yes, he has a neurologist. He was taking 3500 mg of Gabepentin and then switched to Lyrica 450 mg a day. He tried Cymbalta first but is allergic to it as it depletes his sodium to dangerous levels quickly when taking it. Hi muscle spasms in his thighs are terrible and painful.

spinal Stenosis, small fiber peripheral nephropathy
Posted 3/6/2017 3:00 PM (GMT 0)
Tiger:
Scroll down to the thread further down on this page titled "Chronic Pain - Male" posted by Zarathustar333.

I make reference to the use of topical compounding cremes for neuropathic pain that are proving to be quite helpful in individuals with recalcitrant neuropathic pain - often more helpful than oral agents.

The web site CentralDrugsRx.com has a comprehensive listing of the many possible compounding possibilities. The value of compounding medications is that they can be individualized to the person, different concentrations and proportions to meet an individuals's symptomatic needs.

Compounding creme medications can contain lidocaine, amitryptoline, ketamine, tramadol, gabapentine, clinodine, baclofen - and more.

Go to the CentralDrugsRx.com web site and you will find a listing of suggested compounding agents. It is a useful tool in discussing with physicians. Many physicians are not aware of the compounding possibilities.

I hope that this provides you with a new avenue of hope for pain mediation for your husband, and an improved quality of day-to-day life for him - and you.
- Karen -
Posted 3/6/2017 3:23 PM (GMT 0)
Hello Tiger & welcome to Healing Well. So very sorry to read about what your husband is dealing with. Neuropathic pain is such a difficult condition to treat & finding the right care to help the individual.

I see Karen has posted some good information about topicals, its certainly something to check into & consider trying. I would think about printing off some of the information & taking it to the dr, anything is worth a try.

I searched through some old threads here to see if I could read find something to offer up, but your husband is or has taken the meds generally rx'd for this.

Keep us posted on how he is doing. Take care.
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