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Edema of legs and feet

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Crohn's Disease
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Posted 1/12/2008 3:45 PM (GMT 0)

Any Crohn's folks had severe trouble with swelling of the feet and legs?  I have had minor, transient trouble with this over the years which I associated with aging and heredity (my Dad had swollen legs). Recently I had marked swelling ... couldn't get shoes on.  Had a full work-up (ultrasound to rule out clots, CTs of abdomen and pelvis to rule out a mass interfering with major vein) with nothing found.  On Lasix now and showing improvement.  Thanks.

Posted 1/12/2008 7:22 PM (GMT 0)
yep. been there. don't know how or why it's related to the crohns but is. only got relief after a few prednisone trips, finally stopped/helped what ever was going on. the Imuran seems to help keep it at bay that and neurotin. got so bad could not walk, pain was horrible. now wear shoes for support can't even go barefoot much. was sent to every type doc and test - but no answers till found out about the crohns (this was before I found out about the crohns) keeping you in thoughts & prayers. it's no fun......
Posted 1/12/2008 7:27 PM (GMT 0)
Thanks much.
Posted 1/13/2008 12:35 AM (GMT 0)
I would bet you are having problems with the swelling because of the Entocort and steroid suppository usage. Though Entocort is supposed to be a "topical" type application to the intestinal mucosa with little systemic absorption, there are pople that do get significant systemic effects. I am one of those people. Entocort caused my BP to shoot up and my legs and feet to swell to the point I could barely walk on them. I had to take Lasix to counteract the problem. Once I got off the Entocort, the problem went away.
Posted 1/13/2008 4:24 PM (GMT 0)

Hi Bkoach2,

You said you had minor, transient trouble with this over the years, please tell me, did it start in your toes? Did you get a couple of toes on each foot ( second and third ) that would swell-up and look like light bulbs? did you have any tingling in hands or feet? That's how mine are. I haven't been able to find anything out about this paticular problem either. I wanna know more too! I'm so glad you asked this question, I don't know why I didn't think of it.  My toes are the worst they have ever been right now.  I feel for you sad !

I was just diagnosed with crohn's colitis a few days ago, I haven't had any treatment till last night so I know it isn't due to medication. I have been having some swelling in my toes off and on for almost two years now. At first I thought it was because at my job I was on my feet all day.  I haven't worked there in 6 months and right now I feel so bad I'm hardly ever on my feet.  My toes are worse than ever.  I'm positive it has something to do with the crohn's.  Thinking back, it started at the same time as all the other symptoms.  I really thought my high stress, high pressure, fast paced, multi-tasking, behind scenes statement/checking operations department banking job (are you tired yet?) was makeing me sick, so I quit!  Rest was what I thought I needed. Ha ha little did I know! 

Anyway I did my first colocort enema last night.  I was so scared I would have some problem I could hardly sleep.  I hope my toes don't get worse.  They already hurt.  I'm only 49 years old and very healthy in every other way. Up untill a couple of years ago I used to run 5 miles every day.  All these wierd symptoms I believe are related. Swelling, eczema on my hands. Tingling in fingers and toes.  The problem is what to do? 

I've always been a barefoot girl so my feet can take anything, now sometimes barefooty hurts, boo hoo sad !

                   Bye smurf debbidoo

Posted 1/13/2008 4:47 PM (GMT 0)
My problems have involved all other parts of the legs and feet (not toes per se) especially ankles, calves, and tops of the feet. After reading the posts (thanks), I now think that whether it's steroids, or the Crohn's -- the immune system is the general explanation for swelling. Similar to joint and muscle pain. I have been on a steady max dose of entocort for a long time and know I have some of the other systemic steriod problems I recall from when I was on Prednisone. As we know, when we talk to our docs (GP's and Gastero) along these lines, not much happens of a helpful nature. Not their faults, just the realistic lack of good treatment options that don't eventually cause problems of their own.
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