Another hair question

Sorry guys, I know you have all answered this before but can we discuss it one more time?

Over a year ago, probably a year and a half at least, I did an extended round of Entocort.  It worked great on the crohns but as soon as I started tapering my hair started falling out.

I know Pentasa can cause that too but I never noticed it until after the Entocort.  I have super super thick hair so despite all the hair in the drain I never worried.  But the last two days I realized that the top of my hair is actually quite thin now.

I usually only have to turn my hair elastic twice to hold my hair back. Now, I need three turns... so... I plan on asking a doc next time I end up near one of my docs.  In the mean time, what have you all found to work?

Its still coming out and I need to stop it! I didn't mind before but now we are getting too thin!!!!

I noticed that my hair started to fall out with the Imuran, been on that for about 2 months. Now i'm wondering: I'm on entocort and pentasa...hmmm....My hair is also thick, but I'm beginning to get worried that if it keeps falling out, something's gotta give!? Sorry couldn't be more help. At least you have ppl to commiserate with!

Fitzy...I have always had shedding hair.  I never thought it was the pentasa until I came back to it from my medication vacation.  Everyone on here was posting that increasing your folic acid helps stop some of the shedding.  I take a small amount of folic acid, but I don't know if it is making a dofference for me.

My big thing I found is paying attention to my diet.  If I am also going very low fat, the thinning gets worse.  I also found it happens more when I am on the dehydrated side.  I think both low fat and dryness are messing with the hair cuticle.  Finally, I use cheap gentle shampoos and try to give my scalp a break if I can go without washing one day (you know---hide in the house, no one can see me day)

I started taking a vitamin B/Folic acid supliment every day several months ago, and my hair stopped falling out.  I was like you- always had a lot of hair, but suddenly it was coming out by the handful!  I had to go back on the Pred, and that may have helped the situation, but things had already started to turn around at that point.

Fitzy- You may want to consider a nice layered cut until your hair grows back. You can still do the longer layers and it will make your hair look fuller at least. I hate layers because not only is my hair thick but very fine in texture and naturally curly... so I always get the fly aways when layered, however, when I first got sick & mine was filling the drain too I did layer it some. My hair loss occurred after surgery and the GI said it was from all the physical stress and was normal. She claimed it wasn't the drug therapy. I don't know, I'm just glad it's grown back! It still tends to break easily. I had it colored for my son's wedding last summer and I'm still regretting it because it's so dry.

i was on such a cocktail of different drugs, and the stress of finding crohns all my hair fell out. Took about 6 months. I had no hair but just fuzz on the right side of my head i had to cut my hair spikey short so if it did decide to grow back in it would be thick and one length. Well i did grow back, i did the biotion and all that as well. It grew back black and curly. So it is getting longer and i still panic when i see a new piece of hair fall out you can tell because it is black and curly and the root is like a check mark. IT is like bent not a bulb very strange. But just be prepared that is wont be as thick as it was before. My hair was so thick. People were so jealous of my hair but no it is growing but no were near as thick as before.