HealingWell
Search Close Search
☰

being tired all the time

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/3/2008 1:11 AM (GMT 0)
A quick question. When I have a flare up and it lasts more than a week I seem to get extremely tired and I don't really know how to fix this.

Regards Bionic.

Posted 3/3/2008 2:18 AM (GMT 0)
Me, too--and I don't know what to do about it, either. It could be malabsorption; it could be exhaustion from all the diarrhea; it could be dehydration; it could be the total fatigue you get from "fighting something off," with your immune system in overdrive. My exhaustion is exaggerated, too, because I get edgy with flares and stay up really really late, trying to numb my mind at the computer until I'm falling asleep in my chair. Anybody got any suggestions?

Posted 3/3/2008 2:21 AM (GMT 0)
Yeah I get this too. And now I'm getting headaches but one Tylenol seems to help that. Other than that I just try to take a nap during the day and if I can get my work done early I try to get to bed asap instead of staying up to watch tv or do something that's not necessary.
Posted 3/3/2008 3:20 AM (GMT 0)
Chronic fatigue has ruled my life ever since my Crohns started getting bad about ten years ago. I've pretty much been fatigued and mostly depressed since then.
Posted 3/3/2008 3:51 AM (GMT 0)
Everybody always asks me what the worse part of my disease is I always tell them that its my constant fatigue. Its always there. I take B12 injections that help a little but it sucks so bad.
Posted 3/3/2008 5:27 PM (GMT 0)
I second that - or 92nd that!!  I get soooo tired and I feel like such a slacker!  Then I have no excuse because I'm up in the middle of the night!  I also take B12 shots (1 ml ever 2 weeks!)  As I'm sitting here (at 11:30 am) I am exhausted!!  aaaahhhhhh I have no idea what to do!  But I totally sympathize.

Posted 3/3/2008 6:27 PM (GMT 0)
I agree with this...I get to feeling so "weak" and tired...Sometimes I just feel like my body is giving out. This always accompanies my flare-ups.
:O(
Posted 3/3/2008 6:55 PM (GMT 0)
Don't you just hate when you sleep for like an entire day and you get up and are still exhausted and not even refreshed sad
Posted 3/3/2008 7:01 PM (GMT 0)

I agree that the fatigue is a major issue with CD.  I have watched my hubby lose weight, suffer from fatigue and even from memory loss and he is only 60.  This disease takes it's toll on all.  I have to admire my hubby for his constant battle in not giving in to the fatigue.

Kitt

Posted 3/3/2008 7:37 PM (GMT 0)

I get really tired all the time too.  Sometimes I have to sleep for 12 hours straight and I can't wake up at all otherwise.  Even with the alarm clock that's louder than a smoke detector going off, I'll sleep right through it when I'm tired enough.  Unfortunately I live alone so that means I miss work or go in late and I wish I could do something about it.

I keep hearing people mention getting your B12 checked, would that be in the routine blood tests they do to check for anemia and inflammation or would they have to specifically check for B12 in another test?  And is getting shots the only solution to low B12 or is something like emergen-c going to maybe help?

Posted 3/4/2008 12:05 AM (GMT 0)
I ditto everyone so far. I'm so TIRED of being TIRED all the time. Physically and mentally it makes me feel like a loser because I don't get anything done. It took major will power today just to go to the grocery store after work when what I really wanted to do was go home and sleep. And I think the Crohn's causes fatigue, but the depression that has come along with the CD for me ALSO causes fatigue, too. So even when I'm not flaring and I'm getting enough rest at night, I STILL feel tired throughout the day. I haven't felt like doing anything in months. I needed to call the Terminix guy today but I was just too tired!!!
Posted 3/4/2008 3:19 AM (GMT 0)
I as well deal with chronic fatigue even befor being diagnosed with crohns.There are times when it worse and then there are day's its not bad.
Posted 3/4/2008 6:36 PM (GMT 0)
multivitamins really help me when I'm feeling drained of energy.
Posted 3/4/2008 7:24 PM (GMT 0)
B12 shot help me for one day only, next day I am completely exhausted. It seems that I have entered a new stage with fatigue - long sleep and deep sleep is ancient history, now I wake up every hour or two during the night. Two days ago, I had a sudden 'exhaustion attack' so terrible that I was shaking from time to time.
Posted 3/4/2008 8:35 PM (GMT 0)

Vidoska, you sound just like me.  I am exhausted all the time and get attacks of shaking and extreme weakness.  I don't know about you but I get that whenever I go to the bathroom, makes me really weak afterwards and I feel like I am going to faint, it's like having my insides move around is just too much exercise to deal with.  Sometimes I also get the shaking/weakness attacks out of nowhere and I have to sit down for about 10 minutes before I can function again.

You mentioned you are sleeping badly and waking up every couple hours, I get that from the prednisone and I wonder if maybe that's what is making it difficult for you to stay asleep also.  It seems to help a little to keep myself as cold as possible, I have the heat only at 55 degrees and have a fan blowing on me and I don't wake up as often as I used to.

Posted 3/5/2008 2:23 AM (GMT 0)

I can totally relate. I feel like I need to do more and I should be able to work more than 8 hours a day. All I can do is get up and go to work. I am lucky to have such a great husband. He cleans, cooks, and cares for my kids when I am flared. Being tired is the hardest thing for me. It is nice to know so many people can relate and I am not alone.

Kgirlie

✚ New Topic ✚ Reply