Insensitivity toward under-weight people

Hey praying,

Thank you for your comments. How long has it been since your surgery. How much of where did they take out? I ask cause I am surgery free, and starting Humira. I have always have inflammation in my ileo-cecal valve and term. ileum, and I'm thinking that despite rates of relapse being high, if the Humira doesn't work, I may just try the knife. I have a limited portion of inflammation so even if its temporary I would love to have a year to put some weight on and just have a vacation from the disease for a while. Sorry to be nosey, but I just found this site, and have never had a resource like this before.

Keep those pounds on, and gain a couple for me!

Mark

(Mark please put your email in you profile (safety), go to control panel on the left and go to edit profile- Thanks!)

praying4healing said...
Its worse when its family, my family thought i was anorexic (my mom always came to my rescue) but as i got older i realized she wouldnt always be able to fight my battles for me. that i could either stand up for myself or pass it off as stupid and let it ride. Sometimes its a hard decision to make. My grandmother would claim im so skinny, and call all of my other cousins fat. Most of the women in my family are bigger boned but carry it well. It took me years to realize that she'd been so put down in her younger years taht she really just didnt know how to start a normal conversation. and thats the case with most people, sometimes they try to cover their own insecurities.

Since the surgery ( i went in at 103, and now am 120) i've been happy to gain weight, and not ashamed to say it. So now, my grandmother says "well dont gain to much" and i told her "well grandma, when u've been in my position and have not been able to eat, you thank God for every piece of food that you can put in your mouth" I'll never kill myself dieting, or deprive myself for vain reasons. NO ONE has to live in my body but me...so they can all shut their pie holes! lol

Post Edited By Moderator (MMMNAVY) : 3/10/2008 4:47:40 PM (GMT-6)

Hi Mark

don't worry about being nosey! this site has been such a help to me that i just want to be as much of a help to someone else. I had my surgery (ileostomy) on January 29th. I've been out of work since, and am preparing to go back next week. I will try to keep my story short, and if u have any other questions that I dont cover feel free to ask.

When i was diagnosed with crohns it was only in my small intestine, right where it connected to the large. I was pretty far gone and near death by the time i was diagnosed b/c of the bleeding. I was young and embarrassed and was hiding the bleeding from my mother ( I was only 14). So from that point i'd started prednisone (which made me crazy! and it was really hard going to highschool and dealing with its side effects). After that my crohns spread to my bottom. I started having perianal issues, fistulas, fissures, hemmorhoids (sp) and absesses. I used just about all of the medications in my signature. By college I started remicade which worked well at first. Then i got a staph infection and ended up in the hospital for 2-3 weeks. So they took me off of it.

Recently id been having tons of perianal pain with the absesses. My GI finally referred me to a surgeon when i obtained an rv fistula. He said that the surgeon mayb able to plug it, or i may have to get an ileostomy. When i went to the surgeon he said plugging my fistulas (it turned out i had several "watering pot fistulas") was not an option b/c they kept recurring meaning there was constant active infection and he suggested an ileostomy. I put it off for an entire year, fighting it. I was put back on remicade in hopes that it would close my fistulas, but it was ineffective. I'd gotten several absesses lanced, my closet became a pharmacy as far as pain pills were concerned, and i was afraid of addiction so i often didnt take them and bared the pain. I'd even dropped to 101 lbs. I was hospitalized about 5-6 times within this period. Twice for pain management alone. I just stayed in the hospital on the morphine pump. My doc knew that i couldnt go on like this and said if i put it off much longer i was in danger of loosing my rectum.

Around Christmas time it got really really bad, as by this point i now have 5 seatons and still active draining. and was unable to control my rv fistula and had to wear depends! that was the worse. I spent 3 hours of my Christmas morning on the bathroom floor crying. Thats when i decided to go ahead and have the surgery. The main purpose of the surgery according to my surgeon is to give my bowels a rest. So that stool no longer passes thru my intestines, and therefore doesnt go thru my fistulas, and hopefully they can dry out and hopefully heal on theyr own, or at least b able to be plugged. Unfortunately, I was not put on humira until after the surgery, but i'm praying that it works. The doc is hoping theyll be a significant change within six months and so am i.

Having the bag, was a major adjustment, but i was out of pain almost immediately. the doc told me that the crohns was now in my colon. So I had none of my intestines removed., and i have a temp ileostomy. Since having it, i've been able to eat virtually whatever i want! So i've gained the weight rather quickly, and i'm happy about it. i'm sure our situations rather different, but if there's n e thing else you want to know please be sure to shout me out! i'm more than happy to help. Also..sorry if i gave too much info lol. i just wanted you to know what brought me to my situation.