Perianal Crohn's

Most of my crohn's problems occur in the rectal anal  area. ughhhh. I have a problem with itching evry time I have a BM. I make sure the area is clean and use a sitz bath after every bm. and have to apply anamantle cream. the cream does help. but is  the itching ever going to stop? What else can be done? I have an appt with a Colon Rectal surgeon, doc this coming Friday. Would there be anything  else he could suggest?

Also, I need to start taking a vitamin with iron supplement. Is there any one that is better than another?is constipation just as likely with the multi vitamin supplement? Any ideas or advice is very welcomed. Thanks. Julie

yes, i did have a fissure. i was thinking it is about healed. the thing that helped the most for the fissure was the nitroglycerin paste, tho it does give me a headache. thanks for your reply. Julie pommom

You may want to try some of the rectal enemas such as Rowasa Enema, Cortenema or better yet, Cortifoam. The enema's are retention enemas that you hold in all night. The foam is one that can be applied both in the morning and at night. Also, you might want to consider taking a fiber supplement daily to help with the constipation. Sorry for all your suffering. I hope you find relief soon.

I use extra virgine olive oil on my anal crohns skin tags, it helps heal fissures because it's a antifungal, antibacterial, antiviral and it has pain reliever affect.

It's a great skin moisturizer, I use it everyday from head to toe, my hair and scalp are very healthy and I eat EVOO everyday too.

:)

Hi Julie-

i also have perianal crohns and I used the same cream you did for my fissures. It did work well. For the itching, I use Rosebud Salve from Sephora. It is kind of like petroleum jelly but it smells like roses and it feels good.

Hope you're feeling better soon.

Thanks for the reminder about Calmoseptine. I havent used it in awhile.And had forgotten about it. It does work good. I will post when I get back from the colon/rectal surgeon. Take Care....Pommom/ Julie

Update,,I saw the colon rectal surgeon today.He said he wouldnt even consider a surgery for the fissure.with of the constant diarrhea.The recovery would be really bad.The nitro paste does help the fissure. so he said I was very lucky to have found something that would help some.Since I have used other meds and they didnt help.The nitro can be safely used for long term. There really wasnt anything else he could suggest. since I have tried so many things.This was a colon rectal doctor in Charlotte, N.C.He basically said,,God, Help me,,if I have to have surgery on the 1/3 intestines I have left. That I am a high risk, and he wouldnt even do surgery. He would send me to MUSC at Charleston, S.C. I have spent a Lot of time there, already.  As for the anal itching,keep it clean, dry and slightly acidic. Use Calmoseptine Cream. Avoid excessive use of soap in that area. cause it changes the normal acidity of the skin. Use Cetaphil cleanser.Items in the diet that may cause itching are coffee,tea, sodas,choclate, tomato products, citrus, beer,nuts, popcorn,and milk. And Stress can contribute to anal itching.

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

 

pommom

Hi  All

Ginger, where do you find the rosebud salve? I would give it a try, too.I have been very lucky to not have had a surgery in the last 7 years. So maybe my doctor and I are doing something right. i try not to dwell on it. I would be so depressed if I did. The daily struggles are stressful enough.  Have a super weekend. Julie

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001...MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more.

I too have perianal/rectal crohns.  One of my first symptoms of Crohns was rectal Crohns that was misdiagnosed as hemorrhoids, resulting in a horrible surgery that left skin tags and a narrow rectum due to tissue resection.

 

I too have been helped by the steroid foams.  They are pretty easy to insert and you do it before bedtime. I have used both Rowasa and Cortifoam and cant remember if one worked better than the other.  I do remember one of them had a really high co=pay.  Also, flagyl or another antibiotic may be necessary/helpful in some cases.  I was told that this may have helped and I could have possibly avoided surgery this way.

 

I have also become a speedy butt cleaner with sitz bath, quick shower or even baby wipes for sensitive bums.  Another cream similar to the balmex is Dr. Budreaux's Butt Paste (comes in a yellow box) which was one of Oprah's favorite things.  Keeps the area clean and prevents moisture from iritating the skin

 

I would kill for an easily wipable butt!  Let us know how stuff works, I find this one of the most irritating parts of this disease.  Good Luck, wishing you a cool and calm bum.

cd2 :)

Your experiance sounds similar to my perianal crohns skin tag ordeal...

Mine too (CD) presented itself first with perianal crohns skin tags that were mistaken for hemmies, I had mine banded (they were suppose to shrink up and disappear had they been hemmies) because of that banding they've remained large and in a continuous flare my entire 17 yrs now of having this DD.

From those tags the disease moved into my rectom and colon and even found itself in my small intestine for the first couple of yrs all at the same time, it cleared up in the small intestine, but has remained constant in the colon (crohns-colitis) and comes on and off in the rectom (proctitis)...very depressing.

:)

Hi All,

I just wanted to bring this back up so some of the newer members could read it and maybe find some helpful suggestions.

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..MEDS--Lomotil,Purinethol,Folic Acid, Fish Oil,Remicade,Levsin SL,Anamantle Cream,Cortifoam ,Ultram.and many more. 26 meds..