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Posted 4/27/2008 5:58 PM (GMT 0)
hi folks,

my GI's away till the 30th & i have no one's brain to pick about the n/v i've been having.

my doc knows that i've been having a severe bout of vomiting, but last week i developed some wicked pain on the right abdomen (upper middlepart of the right side).

and massive amounts of bile comes up; like shamrock green & foul.  went to ER 3 times in March for this.

it's better when i don't have solid food; {the pain i mean}.

 

anyone experience this?

 

thanks for your time.

erin

Posted 4/27/2008 6:14 PM (GMT 0)
Hi Erin,

Does not sound fun at all. Sorry you are going through this! Has this been going on since March? What did the ER docs think is the cause? Stricture? Pancreas? Stomach? Gall bladder? Alien invasion?? Does your GI doc have a back-up? I am worried. The 30th is a long way off if you are in such pain.
Posted 4/27/2008 7:53 PM (GMT 0)
It sounds like an obstructive episode to me. You might want to go on a liquid diet. If you still vomit on a liquid diet you need to stop taking anything by mouth, and go to ER for IV hydration, nausea and pain meds. Are they doing abdominal x-rays when you present at the emerg department?
Posted 4/27/2008 9:25 PM (GMT 0)
Good Lord! Belleenstein is right. It sounds very much like at least a high grade partial obstruction! I had so many of them when my Crohn's first hit. The only relief I got was a trip to ER for some IV fluids, phenergan and demerol. Then came the night the vomit tasted and smelled like feces, admission and NG tube and pump - and emergency resection.

If you have to go in to ER again before the 30th insist that they call in some GI for a consult!

And I'd be sitting on your GI's doorstep the morning of the 30th. He should be ordering a lower abdominal CT or a CT Enterography for you immediately to see just what IS going on for sure. Hopefully it is "just" inflammation and prednisone will reduce the swelling and relieve the pain and nausea and open that stricture/obstruction. Drink plenty of liquids, stay on a liquid or at least a pureed diet. Often and small amounts if pureed.
Posted 4/28/2008 12:12 AM (GMT 0)
oh thank you for the input.  in fact, at the ER they didn't do any abd xrays, just a head CT.  but, the IV fluids & reglan & pain meds did help a lot.  then i'dgo on a liquid to bland soft diet afte i got in touch with my GI (plus pred & entocort & tigan suppository) that helped for a week...then it starts over again.

 

ugh...so anyway, i'm in the hospital all day tomorrow (remicade day).  since i'm there & registered i'llsee if my nurses can pull some strings and squeeze me in at the ER for at least a scan.

 

my small intestines are the most trouble.  i did have 2 previous small bowel obstructions already.

i'm on pred right now since 2 days ago when the bad pain started.  today's not too bad.

 

all that bile freaked me out.

 

i just dread going to the ER...an overnite "observance" turns into a week.

but, i won't fool around this time.  tonite or tomorrow if things get remotely bad i'll get my butt over there.

thanks guys.

:-)  erin

Posted 4/28/2008 11:08 AM (GMT 0)
Just a head CT???? Weren't they looking at the wrong end?? Maybe if they'd listened to your history and dropped down to the area causing the problems they might have better managed your symptoms. If you get the same ER doc again maybe you need to remind him/her that the liver, gall bladder and intestine are somewhat lower than your head. Good luck today!!!
Posted 4/28/2008 2:06 PM (GMT 0)
My husband has had this off and on for over 17years, we thought it was part of his Lupus, but as it turns out it is not.  Look up Cyclic Vomiting Syndrome and see if this fits your symptoms.  At least you would have something to ask your doc about.

Good luck and I hope you find relief.

Posted 4/29/2008 6:03 PM (GMT 0)
hey guys...
my 2 nurses pushed me to way it out till wednesday because the doc that's covering for my GI doesn't address anything. so, me gots an appt. tomorrow at 330p & hopefully we'll get somewhere.
i think the ER did a brain CT because i had a wicked headache too. i guess an aneurysm trumps a gallbladder? but they did do their job, they stopped the barfing (for that day).
i'll let you know what turns up.
thank you again so very much for your input.
erin
Posted 4/30/2008 12:45 AM (GMT 0)
Hi Erin glad you are going to get some help. How long ago did you have the obstructions? Do hope they can get things improved soon. lol gail
Posted 4/30/2008 1:30 PM (GMT 0)
Ahhh, Wednesday is FINALLY here! Good luck this afternoon! We'll be watching for the results of your visit w/your gastro!
Posted 5/1/2008 4:55 AM (GMT 0)
I hope all went well, let us know! I'm rooting that you figure it all out. It sounds horrid what your going through
Posted 5/1/2008 1:58 PM (GMT 0)
mornin' :-)

my GI dude is the best...appt went well.  however, the more he pressed on & fooled around on the side of my abdomen the worse the pain got.  thinks it may be cholestycsitis?

walks and talks like a gallbladder but we'll see.

trying to get in for an ultrasound  sometime today.

 

about the question above: i had 2 pretty wicked small bowel obstructions. both landed on the SAME date but on different years. august 15 2006 & aug 15th 2007.  i think i'll fly overseas this august 15th to be far from the hospital as to not jinx myself.

 

will write when results come back.

ciao ciao

erin

Posted 5/10/2008 5:25 AM (GMT 0)
hey guys,

OK...just home from getting admitted to the hospital last thursday nite.  in Arthritis Forum i posted a thread of what happened if you want to read it...it is i feel an extremely important matter that needs to be heard about in the event that anyone else goes through the same thing.

 

* turned out i did have gallbladder issues going on but none serious; i did have a big exacerbation of the CD in the right small intestines.

 

BUT...I developed SEVERE STEROID INDUCED PSYCHOSIS!

 

it was horrendous. the most terrifying experience EVER.

i can't type well right now to re-post it, and i don't know how to post a link to it.

but it's near the top of the forum, it reads "Psychosis Please Read" started by myself the other day.

 

 

thank you again for the push to get to the hospital to get the gut & gallbladder checked. it's doing better now.

 

cheers,

erin

Posted 5/10/2008 11:36 AM (GMT 0)
 

Here you go Erin!!

https://www.healingwell.com/community/default.aspx?f=10&m=1119905

Posted 5/10/2008 11:40 AM (GMT 0)
Wow (((((((( Erin ))))))))))) . . . You really had it rough. I'm glad you are back home. Thanks for sharing . . . I didn't realize it could get so bad. Blessings!
Posted 5/10/2008 2:14 PM (GMT 0)
95%?? That psychiatrist said 95%??? THAT is scarey as all get out!
Posted 5/11/2008 1:26 AM (GMT 0)
yeah...terribly scary isn't it? this steroid psychosis is very similar to "ICU Psychosis". he explained that many people that are in the ICU start to hallucinate after 3 days. apparantly this is a very common thing! my GI doc was familiar with the steroid psychosis too...in fact he noticed something was wrong with me a day before the big break down happened.
in regards to the 90something% of people developing steroid induced psychosis...i understand it as specific to IV Steroid use in the inpatient hospital patient only. the psychiatrist didn't say it can happen when using regular oral Prednisone. (then again i didn't ask em' that either!) but he was great though...he really understood what people go through with normal steroid therapy (like when we taper?) he talked about the mood swings, ROID RAGE!, insomnia, swelling, rebound pain, depression, etc...
it was actually great that i didn't have to do that much talking!

thanks for listening.
peace/love
erin
Posted 5/11/2008 3:07 AM (GMT 0)
Erin, WOW! You have been trhough alot. So right now, how are you feeling? What ar eyou taking Is the Remicade working? How long have you been on Remi?
Posted 5/11/2008 3:46 AM (GMT 0)
Hey Erin - though I have never been through anything as bad as that I do understand how scary it can be to lose control due to a medicine. I had a reaction to IV Compuzine that made me have a crazy panic attack. I have never really had one so I didn't know what was going on. I just decided I wanted to leave the hospital. I hadn't even seen the doc yet, the nurses had started my meds (I had called ahead so they had them waiting for me). I felt like if I stayed in the hospital something very bad would happen but I couldn't say what. I wanted the IV out of my arm immediatly. I felt like I was tied to the bed. I started to get D from being so scared. I begged my husband to take out my IV. He had no idea what was wrong with me. I had just gone in for vomitting too much. Finally I told the doc I was feeling really nervous and uncomfortable and I didn't know why I and I really just wanted to leave so please just let me go. He said wait a sec, you had compuzine. Do you feel like you have ants in your pants? I said well Im not itchy but I just need to get off this bed NOW. (i was being so *****y and I am normally very very nice). He calmly said you are having a reaction to the compuzine. I felt like he was talking SOOOOOO slow. He said they were going to get me some meds and I would feel better. They came in with a HUGE vial of ativan and another of benadryl. 5 minutes later I was sleeping like a baby. I was so embarassed the next day. I wrote a thank you/apology to the ER lol. They had treated me SO well when I was there and I just got crazy on them at the end.
Posted 5/12/2008 5:12 AM (GMT 0)
thank you all so very much for the much needed support.  you have NO IDEA how much letting this ALL OUT truly helps.  i'm still very shaken & upset & embarassed by the whole thing, but the more i discuss it the better it's becoming to handle.

 

so thank you...

 

dear crohn'snme: "how am i feeling now?" eyes unsettled is a good way to put it. say right now?...it's 12:40a and i laid in bed for 2 hours trying to get to sleep.  Nadda! having trouble trying to calm down; i'm trying to occupy my thoughts with something distracting because THIS IS ALL WHAT RUNS THROUGH MY HEAD!  feeling ashamed at what i did, embarassed because i yelled & screamed @ the nurses, feeling vulnerable, etc...ya' get the picture right?

i know it's only been 4 days since it happened, so i am hoping that each day gets better.

 

PHYSICALLY how i am feeling? like hammered crap! tongue you & everyone here knows how ya' feel when just out of the hospital for Crohns & obstructions and all.

the no food & no sleep for 6 days takes it toll.

i tried solid food today & it didn't go well.  the abdominal pain is MUCH BETTER than last week; but feeling the type of exhaustion where if ya' don't lay down you'll FALL DOWN!  and this morning some wicked toilet bowl troubles & nasty cramps.

Remicade yes! i've been on Remicade for 2 years now [was on enbrel & then humira in the past, both for 2 years each]

the dose now is Remicade 600mg Q3weeks. the 'cade for me has been THE BEST med so far for the Crohns & RA.  it took about 11months to start to notice some improvement for the joints.  it helped the most for the small bowel problems i have from the CD.  since november 07 i fell into a downward spiral but it's only just recently that with an increase in the Remicade have i started to make very small improvements again. (diarrhea under control, little bleeding, no adhesions, only 1 obstruction in 2007).

the cocktail my GI dude has me on now is: Avelox400mg; Remicade; 6MP 50mg daily then 100mg on saturday & sunday; Pentasa 4G; Zolfran & Nexium for vomiting; URSO Forte 500mgBID (gallbladder) Dilaudid & Oxycontin & Entocort.

hi & thanks FitzyK!  oh i feel for ya hon! me too! that's so funny....that panic attack!  it's like..."if i don't leave here NOW i'm gonna die!"  aw you are just like i am...i was crying & pleading to have the staff come in to say i'm sorry! i wanted to apologize to everyone!  yeah, the shame & humiliation is terrific.

my GI dude mentioned compazine & how he doesn't like to RX it due to all of it's neuroligical effects....((((hugs)))) sorry it had to happen to you too!

 

my hunny lives in northwest NJ right near the mountains...so i am sooooo relieved i'm HERE & NOT in the city where i live.  the peace & tranquility here is helping immensely.  i think i'm going to pack my crap & move in permanently! 

 

trying to wind down....

....thank you all for helping me through....

   ...you are fabulous....

each & every one of you...         

Posted 5/12/2008 1:56 PM (GMT 0)

Wow Erin what a ride you went on.  That sounded horrible.  Hope you get feeling better soon.

Fitzy I too had the same reaction to Compazine.  They have it in my records now that I am "allergic" to it.  I had the exact same reaction you did.  Ants in the pants is the exact way I felt.  My daughter had an analpylatic shock reaction to it.  Scary medicine.

Posted 5/12/2008 5:43 PM (GMT 0)
Nanners- forgive me if you and I already had this conversation. But, I had comazine two other times but those were IM injections, not IV. They were just jammed in m thigh. I don't know if that makes a difference or not. I felt great w/ 2 IM ones but wow, the IV one made me BATTY! I just remember yelling at my husband "I HAVE TO GET OUT OF THIS HOSPITAL NOW!!!!" He finally took my bag off the hook so I could at least stand up and pace my room and that helped. I was a mess.

Erin - I find my event funny now. I know I was upset and embarassed at the time. My husband still playfully makes fun of me for it sometimes. I am sure in time you will see the humor in it as well.

For some random other med stories - my dad is a former navy guy, 6'4", but as nice as could be. Under conscious sedation he managed to almost knock out two nurses and completely trash the room he was in. Needless to say the endoscopy was rescheduled. With his permission they had 2 very large orderlies in the room. They used different drugs but waited to see if he would get violent again before they started the procedure. That time he didn't. He was also very upset that he was swinging at nurses. He would never hit someone!

And another me story - when I had bronchitis I got a rx dose of Delsym (which has a high DXM content). The doc told me to stay home, no driving, no cooking etc. Well, I saw a cow in my room. So.... I can see why now lol. It was prancing around. A very pretty cow. I called my husband in the room, asked if he saw it, he said no, I laughed and said, must be the medicine, and went back to sleep. I do funky stuff in my sleep so he just thought I was talking in my sleep. NOPE. I hadn't even gone to sleep yet and was just hallucinating lol.
Posted 5/12/2008 5:47 PM (GMT 0)
Yeah Fitzy I had the same reaction IM & IV.  Yes, I was dumb enough to let them try it again.  I was just like you, I was crying and pacing in my room.  I was miserable.  The solution was the same as you, I nice dose of Ativan and night-night I went.  Funny thing is I can use just about any other nausea med EXCEPT Compazine.  Go figure??

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