I have Crohn's Colitis, this is my 3rd major flare since being diagnosed a year and a half ago, and the first flare where they didn't put me on prednisone. I have been sick for about
9 weeks now, and out of work for about
6. I have had 2 remicade infusions and my bowels seem to be coming back to normal, no blood, not much D, no pain, no cramps, great. My problem is that I am so exhausted I cannot move some days. I can't get out of bed and when I do it is to go into the tub where it is comforting. Then some times I get bursts of energy (like when my niece is here) and I am fine - then I crash later.
Please please help me - I did not think I would be this sick for this long - I was supposed to run a 10k this weekend - when i first got sick I looked ahead and thought at least I will be better by then! I can't spend the Summer living with this extreme fatigue. My GI drs saay it is just Crohn's - it must be something else - I have also tried going vegan but that doesn't seem to be helping either.
Please someone give me some advice or share their experience - for how long can I expect to feek this way?
Thank you & God Bless.
Wednesday