do you all ever wake up and think this? I mean we all know having a pity party is no good for us but sometimes I wonder "why me"? Why do I have this disease? I know there are plenty other things out there that are way worse like cancer and more painful diseases, but sometimes, Im sooo tired of being sick. Tired of being in pain. Tired of being in a bathroom. Just wondering if anyone has those days where you're tired of hurting and wish you could have your old life back.
Not a day goes by that I dont wish I could make some plans without them being ruined because I don't feel well. Even (TMI) initiating sex with my husband is not something I look forward to. Because I hurt here or there, or am nauseated. Can't look forward to a meal without thinking of the repercussions. This is really a DISEASE. But people don't take it seriously because you're not dying from it, and you normally can't die from it. They just think you are a complainer, or a whiner.
I had a nurse in my last hospital visit tell me she admired me because while all the other patients complained and moaned, I sat there and waited patiently for my medicine and never complained when in pain or puking. She said they need to walk a day in my shoes. I more so, wish my family and friends could, then they would at least see, its no walk in the park having Crohns.
But not to be negative...I do still hold out hope that one day i will go into a longterm remission. I pray and so does my family, so until then..POOR ME! LOL LOL LOL