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Crohn's Disease
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Posted 7/19/2008 5:25 PM (GMT 0)
Do you ever feel so tired and in pain to where you find it hard to even get out of bed?  This past week has been like this for me.  I hurt and have almost no energy. 

Is this part of Crohn's?

I guess I should add I have had more stomach pain and my eye is flaring back up as well.  I am just so dang tired!  sad

Posted 7/19/2008 5:52 PM (GMT 0)
I'm sorry your having a rough time!!! Yes it is most likely part of the CD. I slept most of this morning because I'm so tired!!
But I also did my Methotrexate injection last night and it makes me tired and not feeling well for a few days afterwards.
Even before I was on this though, I would sleep alot on the weekends when I can. And my joints hurt too.
Hope you feel better soon!
Posted 7/19/2008 6:52 PM (GMT 0)
yep woke up this morning and all my joints are achy and I slept alot later than I normally do. Sounds like you are flaring though. I think mine is just from the weather. Its a little humid here today and that always causes my joint pain to act up. Feel better soon. (((HUGS)))
Posted 7/19/2008 7:41 PM (GMT 0)
Yup its part of the disease.
LBJ-is the mtx still giving you a hard time? Any sign of it helping you yet?
Sj
Posted 7/19/2008 8:22 PM (GMT 0)

sjkly said...
Yup its part of the disease.
LBJ-is the mtx still giving you a hard time? Any sign of it helping you yet?
Sj

It did last week it hit me pretty hard.  My Gi told me to stop it and he would call and check on me this week.

Well he didn't call so I assume he forgot about me.  I decided to give it another try and took it last

night.  Its not as bad as last weeks was.  But I'm also back down to 25 mg of prednisone.  I really

think it has something to do with being up higher on the prednisone.  I also think it might have

kicked in because last time I was down to 25mg of pred my joints started hurting again.  They

actually feel a little good. (knock on wood)  This was #5.  I'll know for sure next week when I

drop down to 20mg because thats where everything really flared back up for me. 

I'm getting just a little excited about it now!! LOL   I'm going to tell doc though that if I get

hit hard again that's it, I'm done.  I can't keep going through that. Last week was really bad

that I almost went to ER. 

indigosunrise- Sorry to hijack your thread!!

Posted 7/19/2008 11:06 PM (GMT 0)

Thanks everyone!

I should have mentioned that I am also taking MTX.  The arthritis and fatigue started a few days before my weekly dose (I took the MTX on Wed).  Maybe this is a little flare???

This whole flare thing has me confused!  I guess you can have flares that can last days and others that can last months?  confused

Posted 7/20/2008 12:31 AM (GMT 0)
indigo-are you taking enough folic acid-it really cuts down on fatigue if the mtx is contributing to it.
LBJ-sorry to hear you're still having problems I think that by week 5 or 6 I was starting not to have problems anymore but I am still on a much smaller dose then you are.
I hope things get better for both of you.
Sj
Posted 7/20/2008 12:56 AM (GMT 0)
I also feel so fatigued that I can't get out of bed.  I am so ashamed feeling this way.  My pain meds used to help & give me energy, now they don't do that & I really don't need them that much anyway.  How the heck to you all go on with life when there is no motivation or strength.  I see a therapist & a psych doc for meds.  I can't go on feeling so tired.  I missed a huge graduation party today.  I feel horriable, but, just the fact to have to have conversation with people is exhausting.  Also, any tips to stop the withdrawl sysmptoms from the vicodin?  I have always had fatigue but its so bad now.  Its summer & I really don't give a crap to even enjoy the weather. 

Posted 7/20/2008 1:09 AM (GMT 0)

sjkly said...
indigo-are you taking enough folic acid-it really cuts down on fatigue if the mtx is contributing to it.
LBJ-sorry to hear you're still having problems I think that by week 5 or 6 I was starting not to have problems anymore but I am still on a much smaller dose then you are.
I hope things get better for both of you.
Sj

What dose are you on again Sj??   Yeah I'm still wondering why I am up so high.  Its killin me!!  I talked to a friend on another board that I'm on and she said the highest she was ever on it was like .10cc's and thats over a few year time frame.  She had stopped it for awhile and just went back on it and is only at .5cc's.  When I told her I'm taking 25mg of it she couldn't believe it!  She said no wonder I am so ill on it.  sad    I keep hoping it gets better!!  I really want to give it a try and I'm really trying!!

 

Posted 7/20/2008 1:16 AM (GMT 0)

keepingthefaith said...
I also feel so fatigued that I can't get out of bed.  I am so ashamed feeling this way.  My pain meds used to help & give me energy, now they don't do that & I really don't need them that much anyway.  How the heck to you all go on with life when there is no motivation or strength.  I see a therapist & a psych doc for meds.  I can't go on feeling so tired.  I missed a huge graduation party today.  I feel horriable, but, just the fact to have to have conversation with people is exhausting.  Also, any tips to stop the withdrawl sysmptoms from the vicodin?  I have always had fatigue but its so bad now.  Its summer & I really don't give a crap to even enjoy the weather. 


Hi keepingthefaith-  Its really hard to go on with life believe me!! Most mornings I have to force myself out of bed to get moving to get to work.  I work full time plus have a 2 year old.  Its not easy.  My house is a disaster and I don't cook much.  I do what I can do when I get what little energy I do get at times.   We had a birthday party to go to today and we didn't go because I had no energy most of the day.  When we get invited to things I just explain to whoever is having the party that I may/may not be there.  Most of family/friends understand and know that I'm sick.  

I was on vicodin but it was many years ago and wasn't on it that long so I can't really help you with that.  Hopefully someone else can.

There is so many things I want to do this summer and we haven't done one of them.  I want to get my son to the beach and I just dont think that is going to happen this summer. I'm really bummed and its bothering me, but I also have to tell myself that getting myself better right now is more important than making sure my son goes to a million things that he won't even remember going to yet.  There are plenty more summers and hopefully I won't be sick for all of them!!!  

Posted 7/20/2008 1:40 AM (GMT 0)
I take 15 mgs oral mtx (six pills-the typical target dose is 8 pills most people start at 4 and build up) then I take 3mgs of folic acid a day and I was horribly fatigued until I upped the folic acid from 1 mg to 3mgs per day.
Sj
Posted 7/20/2008 1:49 AM (GMT 0)

I am currently taking just 7.5 mg of MTX a week...maybe my fatigue is more disease related then.  I take 1 mg of folic acid a day.

I was honestly starting to feel better recently but man this week has been a turn-around!  I guess it goes with the territory...

I hope all of you get feeling better soon!   

Posted 7/23/2008 2:37 AM (GMT 0)
I hope everyone had more energy today!!!  I can't believe how much you all do, I mean, with children & even working outside the house too!  Unbelievable.  I used to be able to work 2 jobs one full time & one part time.  I guess the years of having CD has gotten the best of me.  However, when I'm having my fatigue pitty parties I do get to a point that I can't live this way.  So I think back to when I felt really good(yes there was a time).  Anyway, of course the answers were right there:  proper nutrition 4-5x eating, exercising, praying & learning to get the people or things that stress me out of my life.  Not always in that order & that easy, but, I'm back with the help of my husband.  He's forcing me to eat breakfast, lunch & dinner, & walking the dogs at night.  I have to remember its a way of life forever, not just until I feel good again.  Unfortunately, I feel we all in some degree stop what helps us cuz its a lot of hard work & motivation.  If all else fails, I just keep praying.  Praying for you all. 

Posted 7/23/2008 4:47 AM (GMT 0)
Tired yes its a part of crohn's unfortunately, but you must push yourself to keep motivated. I know its tough i have a hard time myself but you will over come it. Believe it or not you will get use to it. Take care..and get well..
Posted 7/23/2008 9:59 AM (GMT 0)
Indigosunrise, I am experiencing the same thing this week. I hope you feel better real soon.:) Blessings, Julie
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