Food?

Hi I eat about the same stuff as I havesince DX, low residue and I eat ketchup. I think as we feel better we eat a little more stuff but there are lots of things I stay clear of and probably will forever so it doesn't bother me because I can eat and don't have pains now. lol gail

I couldn't eat much when I was sick, but once I stopped eating gluten, I actually could eat lots more. now I eat salad, raw onions, really everything but gluten.

If you are not in remission, you will have foods that you are still eating that contribute to your problems. I mean, if you can put yourself into remission by doing a total enteral diet, then something other than the 100% predigested stuff must be causing a problem. I imagine that ketchup is one of the ones you know about - and there are several possible reasons: sugar - often not properly digested (sucrose, I mean) and if passed to the colon, it promotes bacterial growth; tomato - not an uncommon allergy; food color - another allergy possibility. You seem to eat a lot of starches which are not well tolerated by some, so they could be part of the problem. I don't know yet, because I have not reached the time I set to see if I can get clear of the reactions that caused my problems, but I think that it is possible to eat almost anything once the inflammation has cleared for long enough. I am judging by Jini Patel Thompson's book in which she describes a diet that allows a lot more than I could tolerate now. Right now, I am on the Specific Carbohydrate diet, but it may not be necessary for everyone. Yogaprof seems to be doing fine just by eliminating gluten sources.

   Well for me i  have always loved food. I love to eat it and i  love to cook it. So since being dx'd with c/d I just decided to forgo the other. I have certain things I simply won't touch, but I generally go with the golden rule that if it can't eat me i will eat it. Have no problems with ketchup though... Will not touch dairy porducts though!!!

Although I found this too so I don't know what to think yet:

http://dailystrength.org/c/Crohns_Disease_Ulcerative_Colitis/forum/789444-baking-soda

I suppose asking my doctor first would help.

The SCD diet is tough. There are some recipes that promise to duplicate pancakes, bread, cake and so on - they may look like the things that they are supposed to be, but the taste is nowhere near the original. Also, most of those recipes use almond flour which is very expensive. I have a couple of recipes that use squash and eggs and are fried (not good for everyone) or zucchini boiled and blended with a protein and flavorings (eg, zucchini, peeled, chopped and boiled, mashed with a can of tuna fish, add lemon juice, home-made mayo and salt to taste and Chinese 5 spice or cinnamon - comes out a bit like soup or stew). I find that it is not worth the trouble to make "bread" using the SCD recipes. Breakfast is fruit - bananas with almond butter or stewed apples or plums (picking them from our trees now - late this year). Lunch can be dry curd cottage cheese with mayo or home made honey sweetened jam (made with gelatin) or one of the zucchini variations with cheese. You can see that it is a major adjustment. I have just given up on the idea of bread or crackers. If it were not for squash and zucchini, I doubt if I would be able to manage. The squash I bake and keep in the fridge and when I want to use it, I take about 1 - 11/2 cups and add an egg and about 2-3 tbsp of almond butter and spices (cinnamon or Chinese 5 spice and salt or whatever you like) and blend and fry for about 6 - 8 min and flip (easy to say) to make something like a large pancake, but thinner which I use for a starch course substitute at lunch or dinner. Does it work? It works for me, but I am not a real test of the diet. My problems have always been minor in comparison, but still enough to be worth avoiding.

As far as spaghetti sauce goes, my family uses sugar instead of baking soda. Just a packet or two and it take a lot of the acid away.

I was going to say that I am not a good test of the diet - I was never very sick. But then I thought back. I have had reflux problems for a number of years and that was only diagnosed about 8 years ago. I think that the reflux was the way that the Crohn's was most obvious back then. I had some other episodes of fatigue and brain fog where I would just sit in a chair for a day or two, but that always went away after a while. Shortly after the diagnosis I saw a naturopath and had a bunch of allergy testing done and I went on an elimination diet. The result was a modified SCD plan - I was having rice, corn and potatoes and a fermented rye bread (home made - bread machine), but no wheat and none of a number of other things that I found troublesome. That was pretty good (no GERDS) until I had an argument with a neighbor and that stress put me into a week of D and gut pains and fatigue and nausea and brain fog. Still not bad by the standards of some people here. I happened to be scheduled for a colonoscopy and had to fast for a day after the cleanout. (the colonoscopy was the first word I had that Crohn's was lurking and it was an accident - I was in for a gastroscopy because I was not using the PPI's the doctor prescribed for my GERDS and the doctor doing the scope suggested a colonoscopy at the same time - otherwise I still would not know what was happening). Anyway, the fast had me feeling better and after the scopes, I started some probiotics since I figured that I needed some rebuilding of friendlies in my gut. There was still a knot in my gut right where the scope report showed that the biopsy was taken. Once I was told the news, I found the SCD plan online and decided to do that. That got rid of the knot and I think that a number of apparently unrelated problems have improved. Currently I have no D or C and I have about 1 - 3 BM's per day of well-formed but small turds - probably because I am starving the gut bacteria (they can account for over half of the volume). Right now I am doing the final version of the diet (the most stuff allowed) and following it strictly except for some lactose-free (lactaid) milk that I am taking as an aid to the friendly gut bacteria. Sorry for the long ramble, but you asked for it!

No, by all means ramble away please. I don't know many other people trying this diet so I am curious to hear what you try..
I'm seriously grasping at straws here!

Keeper- Have you used the FissureHeal previously? The description of the product says "These suppositories contain comfrey – which is a fantastic wound healer."

I did some research and it sounds a little scary.

Internal usage of comfrey should be avoided because it contains hepatotoxic pyrrolizidine alkaloids (PAs). (Note, there are also non-hepatotoxic pyrrolizidine alkaloids.) Use of comfrey can, because of these PAs, lead to veno-occlusive disease (VOD). VOD can in turn lead to liver failure, and comfrey, taken in extreme amounts, has been implicated in at least one death.