Fitzy, this isn't America. I'll ask about
it when I see the docs, but there isn't an assistance programme here, as far as I know. Abbott has a compassionate allowance for people who haven't been on a TNF medication before, but I was on Infliximab a few years ago.
A similar thing happened to me with Infliximab. I was put on it years ago when it was still slightly experimental (here) and not on the PBS. Nobody would buy more than three doses for me, so the med wasn't maintained. I lost access after those three doses, was left INCREDIBLY sick for **years**, and by the time I was granted access to the med again, too much time had elapsed and I had a horrible reaction. So, no more Infliximab for me either.
Anyway, thanks for being there to talk to during the initial shock. I've picked myself back off the floor again, and have had my little cry.
The really sad thing about
this is that I was *just* starting to feel strong enough to think about
maybe volunteering for an hour or two a week, and building up from there to maybe getting a little job. Instead of having an active, involved, healthy and happy citizen, the govt is getting a sick, housebound, isolated and upset one. Even if I can go back on the med and it works as well as it does not, it'll take at least another six months to get back to where I am now...
I.
