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Crohn's Disease
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Posted 9/2/2008 1:14 AM (GMT 0)
I feel so tired like I have been hit by a brick it happens every day now any of you have this. confused
Posted 9/2/2008 1:26 AM (GMT 0)
I usually replace the word "brick" with "truck", but I definitely think I know what you're talking about. Lots of things have brought on the fatigue - different medications usually, or sometimes I think when you have lots of D and things aren't being absorbed (even if it's only for a couple days) it can totally be enough to wipe you out. The one source of fatigue that took me a while to figure out was in relation to Iron... I thought I was doing great, but apparently the part of my gut that absorbs Iron was a little behind in the healing process and I wasn't absorbing iron correctly. One short iron infusion later and I felt like someone had just given me a brand-new body - I felt so much better.

If you want to list your meds, or anything else that's going on, I'm sure we could suggest more specific things to deal with it. But, if you're just having "one of those days", know that you are FAR from alone. I think all us crohnies have days like that, but I'm sorry to hear that the fatigue is so strong EVERY day for you... You shouldn't have to feel like that every day... at least not without a darn good reason! We're here for ya if you want to dive into any specifics... otherwise... I hope you get some relief soon!
Posted 9/2/2008 1:29 AM (GMT 0)
I told my rhuemy that I felt like the other bunny in the energizer bunny commercials (you know the one that unwinds and slows down halfway through the commercial). She gave me plaquenil which has helped tremendously with the fatigue.
Sj
Posted 9/2/2008 9:16 AM (GMT 0)
sjkly - what a good description!

It sounds counterintuitive, but I find that exercise helps. The problem is mustering the energy to start...

Ivy.
Posted 9/2/2008 2:23 PM (GMT 0)
Yesterday, I came into work at 6:00am (yes, I work on Labor Day) so I could take off early, go see a movie and do some shopping. But instead, I had several LBM's (loose bowel movements) before I left work so by 10am I was SOOOOOOOO tired. I just wanted to sleep. I made it to noon, but I no longer wanted to go see a movie or shop.

I FORCED myself to go walk for 30 minutes, although I almost fell asleep doing that! By the time I got back from the gym, I crashed on my couch and was OUT for 3 hours. Mind you, on Sunday, I'd done nothing but laundry and watch movies and went to bed early so it's not like I didn't sleep any the night before.

Sometimes, I can have a certain "type" of BM (LBM's in my case) that cause massive fatigue. I don't get it. It comes out of nowhere...so frustrating.
Posted 9/2/2008 3:00 PM (GMT 0)
Yeah I have been really tired lately and found out that I am anemic. I will be going for a IV infusion of IRON soon, I hope my results are as good as patientspiders:)
Posted 9/2/2008 3:01 PM (GMT 0)
Oooh, yeah, Nanners is right. Earlier this year, I was MASSIVELY fatigue. They figured out my Iron was low. They put me on Ferrous Sulfate (oral drug) that ripped my bowels to pieces for about 2 weeks but it slowly got better and within 2 months I wasn't feeling the every day fatigue anymore.
Posted 9/2/2008 3:46 PM (GMT 0)
Good luck with your Iron infusion, Nanners... I'll keep my fingers crossed for ya, but yeah - WOW - I'll never forget how amazing I felt after I got an iron infusion. I've been cooking with cast iron pans ever since to try and keep a tummy-friendly intake of iron going. :-)
Posted 9/2/2008 5:08 PM (GMT 0)
My hubby is tired all the time too. I think it has to do with all the muscles your tummy uses when you have LBM, and in his case pain; and if you are on any steroid, it usually increases your blood pressure. Your poor heart is working hard, and with a family full of heart issues, I know that a hard working heart can wear you out.
Remember you are not physically well, and you should be able to take the liberty to rest and relax.
I agree that if you can get up enough energy to exercise, go for it, then do something relaxing. If you sleep though, too much sleep can have the opposite affect, so use balance.
Posted 9/2/2008 7:14 PM (GMT 0)
Well, the D indicates that your system is trying to flush out a gut bug. That means that your gut permeability is up and you have been absorbing endotoxins from the immune system killing off gut bacteria. Endotoxins in the blood deplete iron and stress the liver (can cause hepatitis). So it is like having a massive case of the flu without the fever, sore throat or congestion - just the toxic crummy feeling.
Posted 9/2/2008 11:56 PM (GMT 0)
Yeah!  i am deleriously tired after a BM.  I thought it was just me.  I literally have to go and lay down for 20 min. or so, and my iron levels are good. I am on Imuran so i do blood tests monthly. 

Posted 9/5/2008 4:23 AM (GMT 0)
oh wow I thought I was the only one that got tired like that thanks maybe I should get iron pills see if that helps. I am taking Canasa Suppositories, and colazal 750 mg 3 a day. sometimes I feel all alone in this disease because I look fine but inside I feel awful sometimes. I am so glad for this forum.
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