It's official.

I know how you feel about being left "wide open." I did very well on Remicade - it put my guts in remission and really helped with my ankylosing spondylitis issues. Then after my Remicade and Humira reactions and my recent diagnosis of lupus, my rheumy told me no anti-TNF meds ever again. I feel vulnerable too. I am also downright angry about getting lupus from these drugs.....so many mixed feelings..

Hope everything in your system stays calm and on a steady course.

They think it's drug induced Lupus. Just hoping it's not the full blown....
Still having more tests.
Thanks for getting back so quickly Ivy. You & I seem to be in the same boat!!!

At the risk of sounding harsh, I am going "anti-TNF blockers" on my own. Remicade stopped working, and I just can't bring myself to shoot the Humira into my body. Too many of us are popping up with Lupus, and lupus-like symptoms and all this other crap... I just can't wrap my brain around it anymore. I feel "wide open" myself, and terrified - but then... what do we do when the "treatments" turn out to be as bad or worse than the original disease? Aye.

And, again it doesn't sound nice, but Humira wasn't your "last hope of remission" REALLY, was it? It might have been the last med for you (as it is/was for me), but what about food allergy testing, diet modifications, alternative therapies? I know it's "easier" to just shoot up the Humira once a week, but I'm trying to keep my own mindset positive by telling myself that the remission that I want is still possible - it's just going to involve a lot more footwork and a variety of techniques... I don't know. I know you're a veteran here, Dunny, and maybe you really have run the gamut. Just thought I'd try and counter the "what the heck am I supposed to do now" voices that I know are probably raging through your head.

~Sending good thoughts your way.

Thanks guys, I guess it is something I could look into.... But after this last 6 months in particular, with the DX of chronic pancreatitis, and
now possibly lupus, I feel kinda beaten right now. It seems that everything I've tried to do for my disease has turned sour on me.
I try to keep a positive mindset and my diet has definitely been modified either by cd or cp.
Right now I feel extremely tired, and want to say to hell with it....of course this too will pass (hopefully)LOL

Wow! Do they believe that Remicade and Humira can cause/induce Lupus?

I am so sorry to hear you are going through that you guys! Take care and hugs!!

Geeeez, what a bummer. Its like you trade one illness for another and then you get to keep them both. Its not fair. But I am sure some drug co. will come up with a brand new drug soon and off we will go on our very own test. I feel like a lab rat sometimes. Hope you feel better soon dunny and you too Ides. Guess I will stay on Remicade until it has a bad effect, or I trip over my tail. Do I smell cheese???

So Sorry Vicky! I think you are just in some shock now, there are other meds and I am sure you can try them once the Lups goes away... will the others like Cizma and LPN also cause Lupus for you? You never know so many new meds are coming out lately... Keep your chin up... I know it must be rough but you can make it. trying some natural remedies may not hurt also. take care, Karen

Vicky, what sort of symptoms do you have? I have a cousin with lupus and she has a rough time with it.

Sniper, my symptoms right now, is total body aches, extreme fatigue, and some of my joints are hurting when they never did before,
some weight loss, all in all I feel like have the flu..
Some things are hard to distinguish, because when I'm flaring I do have some of these same symptoms. I think the one that gets me
down the most is the fatigue. It has changed my personality to a huge extent. I feel like a miserable old **** and that upsets me...
I'm sorry you cousin is having a rough time, but I understand how that could be. Right now I hope this is a drug induced episode, I
honestly don't believe I could handle yet another incurable disease. But, having said that, I put up with nothing compared to some,
especially someone like your wife. That humbles me. God bless LOL