Appointment done - rsults in

Hi Guys,

I went to the GI today as you know and finally got some answers. I have been told that I have severe chrons disease. They could see 7 ulser in my desending colon on its own. They did not want to go much more into it because they did not want to hurt the colon. They have put me on 50 mg of steriods to try and bring the disease down abit and they want to do another colonoscopy in January to get the bigger picture. They felt that the colon was to damaged for them to risk going into it more today.

They have suggested that there is evidence to show that I have damage colon on up the track, but they would not risk passing it incase they busted the colon. They want to build it up again and check that damage in january. They suggested that surgery may be needed on that but want to try everything else before they go down that root.

Guys, what a relief to know what is going on. That is a huge weight of my shoulders. I want to thank each of you guys for all your help and advise whilst I was waiting to be DX. You people really are amazing - and I am so glad to have found this site. You where all spot on with your advise. And thanks for keeping me normal.

Hi Kelly,

I Have been waiting over 1 year for this DX. When I first had a scope done, it did not show anything other than inflammation and an annual fisser. This time around, my disease has been pretty bad. In fact, it has been that bade I have had three er visits and a million visits to my doctor. Just hang in there and it will come for you in the end.

good for you for finally getting a diagnosis.......every little bit of stress relief helps, although the disease itself causes a good bit of stress and anxiety....just gotta stay positive, smile whenever you can, even when looking at the bad stuff, just that little motion of the mouth and cheeks can bring a good amount of healing, lol......on other notes....i also had some pretty intense inflammation when they did my colonoscopy, they started me on 40mg of prednisone and 9 pills of asacol per day....didn't notice any relief for the first couple weeks....hate telling you that its gonna take awhile, but relief should come eventually, everyone's different....they actually had to put me on stronger steroids in the hospital through IV, can't remember the name of it though...and all the antibiotics, and purinethol, and finally the blessing, for me anyway, the Remicade....i guess you gotta go through a bunch of other drugs first before you get to sample the big boy, but remicade saved my life, now with that and the others together, i'm safely in remission for now, and enjoying life again......you will get there too, just hang in there!!!

I am glad you got some answers. I was just diagnosed with Crohn's too, but my case is not as severe as yours sounds. Good luck and I hope you get some relief soon!

Aww man. Sucks that its going to take awhile but at least you're diagnosed. That can help with half the problem. You know you're not crazy, you know that there's a definite issue and now you can work on it as well as prepare for all the issues that arise ahead.

thanks conorconan, take care of yourself, and get better
kelly

Hi Guys,

Sorry for the delay in responding. WWE was in town and I had bought my son and nephew tickets in April, so I had to go. Boy, the are some big lad them wrestlers. LOL...

Thanks for the support guys. I really am greatful. I have been put on Presdnisolone 50 mg for 1 month. If they do not work, they will be moving me onto another drug that effects the immune system, closes it down or something. The frustration is finally over anf I can now start to work on getting this thing sorted out.

I called my GP to advise him of the outcome. He called to my house this afternoon(that was a shock) to discuss the whole disease with me. He is appointing the surgery's Nutriton expert to me to get me on a diet that will help it as well.

I am upset that I have this disease, but none the less, I have it and will have to deal with it. I just hate the fact that they have advised that if the pils given do not help by January, I will face surgery to take away the diseased parts.

Again Guys, thank you all so much for your support, you have been brilliant with your advise and help. KEANO, if I ever loss my Irish sense of humour, it will be a sorry day in my life. LOL...

Hi Conor, Wanted to say sorry to hear you defo. have this stupid disease. But id say it is a relief to finally be able to know what is going on with your body. This is the start of a long road for you. I was only diagnosed last April when in a bad flare; i thought as soon as i had a diagnosis i would be on the road to recovery. Unfortunatley im still flaring and it takes time for the docs to get your medication right. Im learning about this disease every day. Wishing you all the best for the future and stay well :)

I am glad you got dx, but sorry you have this darn disease. I might suggest a sbft and a pill cam before your next scope, because I have to wonder how much is in the small intestine and that is not able to be visualized.
Just realize that pred might make ya a bit nuts for a while, but I did ok with 80mg for three years.

Glad to hear that you finally have some answers, sorry for the outcome =( Hopefully, you can start the road to better days via meds and or even surgery if that's what it takes. Prednisone is very nasty but when it works.....it works. It stinks to have to take a med to make you better that has horrible side effects. I'll be thinking of you and will certainly keep you in prayer.