Hi everyone
Just thought I'd post an update on whats happened with me since I last posted.
Well I've just spent another 10 days in hospital, got out today thankfully, was going mad in there.
I only went in for my remicade infusion, but had been so ill the night before, in so much pain, and couldn't go to the toilet, that I was convinced I had a blockage and my bowel was going to perforate.
So I went for my infusion as normal, told them the trouble I was having and they admitted me. Been on Metronidazole and cipro and back on the steroids. Seems to have calmed down abit from when I went in, but not much, still losing loads of mucus and generally its coming out on its own again and I can't control it, which is quite annoying as its sort of not been too bad all week, then today, its back to having it's own mind again.
I was asked about
having the operation to remove my large bowel, but again, I refused that.
So now the plan is to keep me on the Remicade, but getting it next week now, and if it doesn't work, I will be having it every 6 weeks instead of 8, and if that doesn't work, he's going to double the dose and hope that sorts it out. If not, it's back to the drawing board :(
I've been eating normally in hospital and have to say I feel alot more energetic now than I did when I last came out of hospital on the elemental diet. I never did get to see the dietician though, but I'm just going to eat as normally as I can for now to get my weight back up abit.
Hope everyone else is as well as can be expected with this annoying disease.
I'm on a steroid trip at the moment, so just want to clean and eat, which is good because my house needed it when I got back.