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what do you do about work?

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Crohn's Disease
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Posted 2/15/2009 1:11 AM (GMT 0)
I have been sick since October well sick since August 07 but really sick since October 08.
I quit working in end of october and have been in the hospital every month since, except for February and i intend to keep it that way :)

Now i have on and off days mostly off days but once maybe twice a week i get a really good almost no pain day.
And i could be working those days but when i am off i don't do anything else than sleep or just take it easy. My question is what do you do when you are in a flare do you just stop working or do you call in sick every other day ?

I know my boss would understand but i hate calling in sick i would rather not work at all :S
But i am really missing work and my days just fly by with out me doing anything except for lying in bed with my wonderful dogs :P And i was just wondering what you guys do?
Do you go to work in a lot of pain and just take painkillers or do you go when you are good an call in sick the other days ? And how is your boss an coworkers taking this ?
Posted 2/15/2009 1:23 AM (GMT 0)
hi there...i've had this darn disease for 20 yrs now...through college and a pretty good profession (until the mtg industry collapsed)...maybe responsible for my current prolonged flare...I've been really lucky- I've always had the option to work in the office, in the field, or at home on the network if need be...when i'm not feeling well and i have to be at work i've just sucked it up and gone...there have been a few times that i've had to bail on meetings, days etc. but i've tried to keep them to a minimum...that said- you need to do what you need to do in order to make sure you're comfortable and healthy
Posted 2/15/2009 1:34 AM (GMT 0)
Just curious, what type of position do you have? If you were able to work from home on off days, it would really be the ideal solution. I know that my company is extremely flexible with people working from home when they have illnesses. Lately I've been missing a LOT of work and it honestly probably makes things worse on me, because then when I go in, I end up having a lot more stress to deal with because I need to catch up so much. I would avoid it if you possibly can, but you need to also do what's best for your health.
Posted 2/15/2009 4:42 AM (GMT 0)
I get through work by working a part time schedule so I can sleep the days I have off in order to pull off working so hard. I drink coffee which I know is bad but hey I need to do something to feel happy and normal when I am in agony and have to be nice to people all day. And some days I just can't do it, most days are hard but I enjoy being able to work. It makes me feel better to go into work and forget about me for a little while. But I do end up sleeping the entire first day off and I am just dead to the world that day. I think its worth it. Would love to be able to work from home, great idea. What can you do from home?
Posted 2/15/2009 3:19 PM (GMT 0)
Starting this past fall I was at the same point that you sound like you're at right now. My boss was not understanding of this disease at all.. she's one of those people that think it's "stomach ache" or something easy like that... I finally asked my doctor if she could put me on disability for a little while so I had time to spend on resting and trying to get better without all the added stress of a set schedule (when I can eat, when I can sleep, when I could get yelled at)... luckily she was in agreement with me. Ironically, I ended up in the hospital 2 days after I asked her about it... But anyway, that may be an option for you.
Posted 2/15/2009 3:25 PM (GMT 0)
I work for my father, which can make it harder sometimes but easier in a lot of ways. He sees how sick I am, but before I was diagnosed, he too thought it was just a bad stomachache or something and told me to just suck it up. People don't seem to understand just how drained you can get... There are days where I literally cannot stay awake for more than 4 or 5 hours at a time no matter how hard I try.

There's Hope - Our company is a big diesel engine distributor. Anyone in any admin-type job who doesn't have to deal with a lot of outside customers can pretty much work at home on their laptops and it doesn't change much from if they are actually present in the office or not. One of the women I work with works from home about 6 or 7 days a month due to migraines. We have other people with various illnesses who do the same.
Posted 2/15/2009 9:54 PM (GMT 0)
i work for a telephone company in a store :S so i can not run to the bathroom when i need or work from home.
My doc is putting me on disability, and that really good while i am getting over the worst part. But i really miss work :P
i should just make the best of the time i have off and go to the gym and sleep a lot :)

I was just wondering what you guys where doing because it sounded like most of you are working and i thought i was the oddball :)
But i am really happy that there is no stress in my life at the moment and my anxiety has almost gone away so maybe it is just good to take time off if you can.
Posted 2/15/2009 10:08 PM (GMT 0)
Hi
My Doctor put me on disability. So I do not ork since April 2008, I had no conditions at all to keep working with all the pain and the bid D, I was very reluctant at the beginning, but at the end it was good, because you will not have to worry about anything but your health.
Just try to get your mind busy!!
You will get better!
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