I started Anti-MAP therapy

I've been reading up on the anti-MAP stuff a lot lately, I find it really interesting. How long ago did you start the antibiotics? Have you noticed any improvement yet?

I am very interested in the anti-map theory. Please provide more info.

Which country do you live in?
What antibiotics are you taking?
How long do you have to take them?

I hope it works, and please please let us know!

I live in the USA. I am taking clofazimine, mycobutin, and clarithromycin. Ramping up the dose after a month.

Thanks. How are you doing staying away from gluten and dairy? That helped me a lot.

I'd stay off it all. SCD worked wonders for me, except I fell off the bandwagon 4 months into it and haven't been able to get back on.

I spoke with a very well known crohn's researcher who told me to keep watching the research being done on mycobacteria.  He seems to think it very promising.  It seems that a lot of people who have gone the "natural route" have used probiotics and various techniques to rid the colon of bad bacteria and cultivate good bacteria.  If a bacteria is responible for this disease then I think it may help to explain better why certain people are able to get better without drugs.

Jay,

Excellent news. Please keep us updated. I have an appointment next week with my GP to convince him to put me on them.

I have been having test done -specimens, scopes, bloodwork- that have shown bad bacteria in my bowels and
very little of the good stuff. I see my dr on thursday to discuss the results and a treatment plan.
I am really excited that this new treatment will help many crohn's patients!
Let us know how you are doing.

No. But from the research done, about 90% of Crohn's patients have MAP

I too would like to see this research. Not to be argumentative in anyway, but I don't think MAP is the end all to be all and don't believe that most of us have it. This is just one theory among many. I do hope for your sake though that this is the answer for you, but don't necessary believe that its the case for all of us. JMHO

Hello Everybody.

I had an ileocolectomy in October, and the lab is supposed to be able to test the specimen removed for MAP, although I requested the test about a month ago and haven't gotten the results back yet. I am told it takes a while...we'll see. I am from Alaska, but in Seattle right now, for an appointment with a Gastroenterologist. This particular doctor made me feel silly for even asking about anti-MAP treatment and pretty much says Humira or Remicade is my only option (in her opinion--since I apparently have "fistulizing" Crohn's and currently have a fistula to the skin)....Anyways, I've been trying to find a doctor/gastroenterologist that has experience treating people with antibiotics. I did find a Dr. in Florida that used to do so, but stopped because of the FDA for some reason.

Does anybody know of a good Dr. I could go see (anywhere!) that would be able to give me another opinion and prescribe antibiotics????

I am wary of starting Humira or Remicade...I would love an opinion from a doctor that isn't trying to push $2,000 shots on me after a 15 minute visit. I also find the MAP theory very interesting and would like to get as much info as I can about progress with the treatment.

Hi everyone!!

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Post Edited By Moderator (MMMNAVY) : 3/13/2009 6:51:43 AM (GMT-6)