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Crohn's Disease
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Posted 4/2/2009 6:48 PM (GMT 0)
For years now I have been dealing with itchiness all over my body, in certain environments. It seems to happen when it wants too and then I itch from head to toe. The sensation feels like 1000's of pin pricks. It does seem to happen more when I am either near a good enough heat source, or my body temperature rises from being embarrassed, etc. I was wondering if anyone here had any problems like this. Could it be a Crohn's thing? I did find out that my dad had a similar problem like 30 years ago, but it just kind of took care of itself. I wondered about allergies, but I don't have any swelling anyway but I don't really know. It is just so unbearable and embarrassing! Thanks for reading.
Posted 4/2/2009 7:01 PM (GMT 0)
I get itchy all over any time I get warm too.   Like you, examples include a hot room, exercise (especially in the sun), laughing too hard, etc.

If I get especially warm, I'll break out in hives on my stomach and chest.  This used to happen every single time I took a warm shower, but now I generally just get itchy and don't develop the hives.

This started when I was about 16 and has continued to varying degrees for 20 years now.  My Crohn's issues started around the same time, but it's not clear whether they're related or it's just a coincidence.

My condition is thought to be "cholinergic urticaria," if you want to google that.

I take zyrtec every day and it helps some.  I still get a bit itchy but it's not as bad.

Posted 4/2/2009 7:05 PM (GMT 0)
asacol/pentasa made me so itchy it woke me up at night. I thought I was going to go nuts. the day after i went off it, it reduced about 80 percent, within 3 days I never itched again. I only made it a month on it. how long have you been on it.
Posted 4/2/2009 7:16 PM (GMT 0)
Do you get red marks or raised welts after scratching the itchy area? I ignored this for over two years. It would get better and worse. Sometimes worse outside, or in the sun or heat, some times for no apparent reason. I just got a Dx of dermagraphism. I had the tendency before, but my pregnancy set it off really bad. They can treat it with antihistamines. I haven't started that yet b/c I lost my Rx, but I hope it works since the derm says I have a particularly bad case.
Posted 4/2/2009 7:33 PM (GMT 0)
After itching for a little bit, the worst thing I ever got was tiny red dots where I itched the crap out of skin. I'm pretty sure I've been on Pentasa for about 6 years, but I don't remember if I had this problem before I started it... sounds like my problem is closer to dermagraphism, than cholinergic urticaria, or I guess it could even be the Pentasa. Thanks for all the responses!
Posted 4/3/2009 7:02 PM (GMT 0)
Mine used to be dots. I totally ignored it then. My derm said that I was predisposed before and then it was triggered by my pregnancy which made it a 4+ on a 1-4 scale. I hope yours stays just dots.
Posted 4/10/2009 3:56 AM (GMT 0)
HAve you had your b12 checked lately....sometimes it doesn't show up low but is...there are some confirmatory tests...it causes all kinds of bizarre things...itchiness is one...sometimes in bizarre places...palms of hands, tounge....it has a big role in your nervous system....i figured out my deficiency because i googled a random symptom...i was waking up in the middle of the night and my feet were on fire...sometimes as i lay in bed trying to sleep...i had to soak them in cold water....

just a thought?
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