HealingWell
Search Close Search
☰

to MedicalMystery

Support Forums
>
Crohn's Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/10/2009 5:02 AM (GMT 0)
We are very glad to have you as a part of our forum, but could you please stop replying to (and therefore bumping up) the old posts?

Bumping up old posts mean that the posts written by people who need support and advice URGENTLY, get bumped back to the second or third page of the forum, and therefore those people don't get the responses, support and advice that they need.

If a thread has died, it is usually because it has come to a point of resolution. It helps nobody to bump it forward.

Thank you,

Ivy.

ps. You can tell how old a post is by looking at the date on it.
Posted 4/10/2009 5:09 AM (GMT 0)
oh....im so so so sorry...just having trouble sleeping and reading...i will stop replying to old ones...
Posted 4/10/2009 5:13 AM (GMT 0)
is there anyway for me to remove the my posts to fix it? if so...i will...i didn't realize how dated some of them were...oops
Posted 4/10/2009 5:13 AM (GMT 0)
Understandable, but please don't do it again :-P. Some of the posts you've bumped may bring up painful emotional issues for the people who wrote them, and none of us needs to feel miserable this weekend.

Thanks again.

Ivy.
Posted 4/10/2009 5:16 AM (GMT 0)
Yes, you can remove some of your replies to the older thread if you like. To do this, you just need to click on the red x in the right-hand corner above your post. You'll be asked to confirm whether you want to delete your post, and all you have to do is click "yes", and the post will be gone.

Just so you know, you'll see an exclamation mark in a yellow square there, too. If you ever see a post that upsets you or think breaks the forum rules, click on that, and you'll be able to send an alert to the man who owns and runs this site, and he can deal with it.

Thanks again. By the way, it's nice to meet you!

Ivy, eating a hot cross bun :-)
Posted 4/10/2009 5:16 AM (GMT 0)
i just figured out how to delete and i think that it might move them back? can you confirm?
Posted 4/10/2009 5:21 AM (GMT 0)
Yep, once you delete your post the old threads will go back to where they belong :-).

We once had a newbie who got very enthusiastic and bumped up PAGES worth of old posts, and then very helpfully disappeared. It took us days to get rid of them all... :-)
Posted 4/10/2009 5:27 AM (GMT 0)
oh wow...i don't want to be "that girl"....i think i removed all my replies to ones that were more than a few days old...i just left a few...i would never want to rip the scab off a healing wound by bringing up stuff like that.
Posted 4/10/2009 5:31 AM (GMT 0)
*laughs* It's ok, MM. We all make mistakes from time to time, or else how would we learn?

But yes, I still remember that incident, even though it was a while ago. It wasn't just one mod madly deleting threads, it was ALL of us. And then, just when we thought we were done, the newby would reappear and bump up a whole lot more...

Thanks so much for deleting those threads. That was really nice of you.

Sorry you can't sleep. Are you in pain?

I.
Posted 4/10/2009 5:32 AM (GMT 0)
yes :( constant....very sucky
Posted 4/10/2009 5:35 AM (GMT 0)
and no problem about the deletes! i will just read and think good thoughts there way next time...this is my first message board attempt of any sort....and i am desperate for answers....so i have just been scanning them....and replying...haha...just scanning from now on! haha

i will admit i don't know proper etiquette or tips or rules...so all are welcome and appreciated :)
Posted 4/10/2009 5:45 AM (GMT 0)
I'm sorry about the pain. Let me guess, they haven't set you up with strong meds because you don't have a definite diagnosis yet?

It is ok to reply to the occasional old thread, btw, just not heaps all at once... especially if you say something similar each time. (That's another thing that some new people do).

Where is the pain?
Posted 4/10/2009 5:55 AM (GMT 0)
haha...guilty as charged with the similar replies....i will admit that I am kind of obsessed with B12...lol....probably because its the only definitive thing anyone has come up with...and I suffer so many random symptoms that I would have never guessed related...including a lot of the psych ones...and here i just decided i was mental :)

and yes...no definitive diagnosis...my GI still says IBS?

Pain is right lower quadrant....pretty localized...the severity and quality change but it doesn't ever cease...since 2 days before christmas...very frustrating...my colonoscopy didn't show any abnormalities at the terminal ilieum though so my GI discounted it as being gut related...the only thing that seems to make it worse that I have control over is...flexing my right hip for any extended period of time...
Posted 4/10/2009 6:02 AM (GMT 0)
Hmmm. I'm not going to play amateur diagnostics, MM, because I feel that can be a very dangerous thing to do, but here are a few pointers / questions that might help with pain relief:

* does heat help, e.g. a hot water bottle or a hot shower?
* what are you eating?

Ivy.
Posted 4/10/2009 6:08 AM (GMT 0)
thanks....i agree about diagnostics....i want to make sure i am not missing any other possibilities....and opinions...in this rollercoaster journey which seems to be the norm!
Posted 4/10/2009 6:10 AM (GMT 0)
If it helps, many (most?) of us took a very long time to get a diagnosis...
Posted 4/10/2009 6:18 AM (GMT 0)
it does....when this was mentioned as a possibility i promptly began researching...but it was all mostly textbook stuff and cases...which i have learned is almost an oxymoron with Crohn's....

i didn't truly think i was the ONLY one that had symptoms for 13 years before someone even mentioned it....but it felt like it sometimes...so just to read other stories helps immensly!

my friend's and family have attempted to be supportive in the early test stages...but quickly have fallen off...it can all be so emotional....and especially to try to do by yourself...

even though this is my absolute first attempt at message boards...threads?? THANK YOU for all y'all do to make it happen!
Posted 4/10/2009 6:23 AM (GMT 0)
:-) Thanks, MM.

I think you may find (she says cynically) that losing friends is a natural part of life with a chronic illness, and you may well experience more loss in the future. People like to think that you're going to get better. They're more used to things like appendicitis, where they can make a big, supportive fuss, there is an operation, and the person gets conveniently better.

You upset their world view, MM, and show that illness can happen to anybody. Also, a lot of people get frightened at the thought that you may stay sick, and may need their help, or, at the very least, be a bit less fun to be around, so they fall away.

You may well find, like many of us here, that many of your "friends" start to blame you for not getting better - you're not trying hard enough, not eating the right foods, whatever.

I'm not sure why I'm telling you all this, except to say that it isn't your fault that they have fallen away, and will not be your fault if it continues to happen. Most of us have gone through the loss of good friends, though some of us have been lucky enough to find even better friends in the process.

Ivy.
Posted 4/10/2009 6:33 AM (GMT 0)
Although that is not the easiest thing to hear...I appreciate the heartfelt honestly more than you could know!

I have experienced much of what you have mentioned and agree I will probably experience much more. Right now I think they think I am crazy and a hypochondriac. Which is never fun...I have started ignoring my gut feelings (no pun intended)

It doesn't help that I also live 8 hours away from my closest friend or family member...and just started a new job 2 months before all this reared its ugly head!

I sound like such a whiner...thanks for letting me vent a bit!
Posted 4/10/2009 6:53 AM (GMT 0)
No, you're not whining: you're understandably frustrated. You are walking a path that we've all walked before you, and we remember how hard it was (and is) and sympathise.

A diagnosis probably won't stop them from thinking you're crazy and a hypochondriac. I'm sixteen years post-diagnosis and feel that the *majority* of people in my circle of acquantance still think I'm making it up!!

I'm sorry you live so far away from family and friends, and that you're so new to your job. It must be very hard for you to find the support you need.

Ivy.
Posted 4/10/2009 7:51 AM (GMT 0)
It is hard to find support...I recently started seeing a counselor, to rule out psychosomatic pain, and the counselor's childhood best friend has Crohn's, so she has witnessed a lot and is helpful.

The job has been difficult because of all the sick days and dr. appointments...and it is an outside sales job...so lots of driving...most of my friends were so concerned when gas prices went up...i was more concerned when the gas stations started closing...less bathrooms to stop at...that's the worst feeling.

Thank goodness for my precious dog...today is his birthday...haha....I recently had to spend the night on my bathroom floor...and bless his sweet little heart...he curled up next to me and stayed be my side all night
Posted 4/10/2009 10:01 AM (GMT 0)
Oh, dear.

I don't know what to say, MM. You really are in a lot of pain, aren't you?
Posted 4/10/2009 11:34 AM (GMT 0)
ps. We have a young girl here, an Australian, who is very unwell, lives a long way from her family, and is trying to hold on to a new job. She only pops in every now and then, but you might like to keep an eye out for her and have a chat with her, as you seem to be dealing with similar issues. She is only a few years post-diagnosis and is still adjusting, as you are, so I think you might get on well.

Her name is phoebesky86.
Posted 4/10/2009 4:15 PM (GMT 0)
thanks ivy! i will keep an eye out...and yes i am...the diarrhea has actually been somewhat better the past several months than it has been in the past...except for all the preps...though i have had constipation a couple times...never had that problem before...the night with my dog was one of the bad ones though

thanks for your support ivy...i will send thoughts and prayers that you don't get an infection from your seton
✚ New Topic ✚ Reply