HUMAN FECAL INFUSION

I'd do it if it meant remission.

I tried worms and i had kind of a violent bowel diarrhea bug for few days.

Well I have had my consultation and I am going to go ahead with it. I need to go to Sydney for 3 days for blood and stool tests, then they decide if they can help me. This will cost about $1100 AUS. Then if all is ok, I go back for the transfusion. It takes 10 working days to do it, the 1st day I have a colonoscopy and if this is ok, they do the 1st transfusion. Then I have a rectal transfusion every morning for the next 9 working days.

Before I start the transfusions I have antibiotics to clean out my system for 2 weeks, low fibre diet and a bowel cleaning prep the day before.

The actual transfusions cost $3445 AUS.

There are no side effects and you have a 50% chance of recovery - I reckon it is work a go. I will make a booking for the tests in June (too much going on in my life to go before then, darn it all), so I will let you know how it goes. Wish me luck :)

Good luck, GeeBee, keep us posted on every little bit of information you encounter before hand and then a play by play account of your actual treatment PLUS how you respond and how well it works for you - or not. HOPEFULLY THE FORMER!!! Here's hoping it also works QUICKLY for you!

I am definitely interested wow. It does sound kind weird but good lord who cares? If it could make me stop taking all these darned pills and having gas and bloating and blah blah blah then I am definitely interested. Keep us posted by all means.

bump

UKpup said...
OK, I'm not doubting there are good results......I just want to know WHO sits around and THINKS UP THIS STUFF???

I just can't imagine a situation where I would be sitting around, most likely on the potty, and then it strikes me - "I GOT IT, let's take pooh out of one person and put it into someone else".

Again, if it works, great. I just don't have the imagination these researchers do I guess.

Hahahahaha   This cracks me up!!! 

GOOD LUCK!!!

I'm really interested to hear more about how this turns out for you GeeBee- and anyone else who's undergone it with success. I'd definitely give it a go if it were available in Canada. It sounds gross, but I have no clue what's going into me with all my other pills and remicade etc. Mind you, I'd also be willing to try worms too - so I guess I'd make a good guinea pig for some researcher!!!!

Bev

Im sorry to hear that GeeBee, but surely they would have known this before you went to all the trouble and expense to see Dr. Borody.
It did sound very promising for you, I hope you find something in your search that gives you relief. Keep us posted on what you do next.
Take care Jo

Wow, that little girl from "You and Me and Everyone We Know" was onto something!

www.imdb.com/title/tt0415978/quotes

I am in the U.S. and have already started experimenting with fecal infusions all on my own, and in the privacy of my own home, with nothing more than $1.50 enema bags with tubing and rectal tip, a blender, a funnel and a few bags of medical grade saline. If you search pubmed for terms like "fecal infusion" you will get a few abstracts on Borody's studies, and full text papers are available on the cdd...au address posted earlier on the thread. The more complicated aspects of setting out to do this are: (1) doing the tests that the Borody clinic recommends, in terms of pathogen testing of blood and stool of both donor and recipient, to the tune of a street price of around $1000-$2500 for each person (not to the Borody clinic but to wherever you have the tests done) if you honestly want to do all the tests they (the Australian clinic) say are needed; and (2) obtaining several antibiotics and taking those antibiotics for a 10 day or so course prior to doing the infusions. I compromised on the tests but did get myself (paid by my insurance) and my donor- my girlfriend (paid for out of pocket as she didn't want to get her insurance involved) tested for a bunch of things, just not all of those listed.  I absolutely refuse to do the antibiotic regimen because I know it would flare me. If you contact the Borody clinic,it is my understanding they will set up a phone consult for $100, get your info. and send you their official instructions and yay or nay your donor based on test results.  The stool from the donor has to go IMMEDIATELY, i.e. within a few minutes, into the infusion so the domnor has to basically be someone you wake up with in the morning.  I have not contacted the CDD, however, and am doing this purely based on information gleaned from their published papers plus from email contact with others who have done the infusions. I have UC, at least officially, and I do not know of Crohn's benefiting but who knows. I have really only done one test infusion to date- I tried a second infusion two weeks later but the saline/stool mixture was too thick and it didn't flow, so there is a learning curve. I may well lose my colon before fall if things don't improve, so I don't feel there is anything to lose by squirting some poop up my butt for a few days. If it works, it's because healthy human stool is the ultimate probiotic, containing hundreds, maybe thousands of probiotic strains that can actually colonize the gut permanently, unlike commercial probiotics which are few in number, die off going through the stomach, and only colonize the lumen briefly.

This is shocking really all we crohns patients want is to stop the diarrhea and there thinking of pumping more in us I wouldn't sign up 4 that but if it works 4 u all the power to ya I'll stick to my own POOP!Jenn