fatigue/tiredness

I think we can have difficulty with proper nutrition absorption, which certainly can unbalance things and make us fatigued. In addition, when I am even in a mild flare, I do not get very good REST/SLEEP and that absolutely affects my energy levels.
heidi

thanks for that. i do have fructose malabosprtion but my B 12 levels are fine. i don't know about the gluten sensitivity though. i don't have coeliac disease, i carry the gene but i'm pretty sure i am fine with gluten? i dunno, it's all pretyy confusing hey?!

I thinkit is because our immune system is constantly in overdrive and it never gets any rest.It just wears our bodies down.

You may well have been told that your B12 levels are fine Kiki, but the Mayo clinic did a study a while back, which sadly is not widely known about by GIs.
They looked at symptoms of B12 deficiency in a group of patients, scored them on a scale as to whether or not they had clinical or subclinical deficiency, and then looked at the blood levels. What they found was that the diagnosis of clinical deficiency using symptoms was different to that using blood levels; where blood levels were considered normal, very often there would be subclinical if not full clinical signs of deficiency. (Subclinical means some of the symptoms rather than the majority, or I think maybe sporadic symptoms.)
Typically, the low end of "normal" in real life translated into "deficient". If I had a pound for every time a Crohnie on this forum has complained of symptoms of B12 deficiency having been told that his/her B12 levels are normal/ a little low/ on the low side of normal... Boy, I'd be rich !
The moral of the story is, don't trust a comparative scale that has not been revised in over half a century, when in that field every other definition of recommended daily amount has changed umpteen times. It was created a long time ago, didn't use a lot of patient data, and everyone has just treated it as gospel ever since because no-one had a better idea. Well, now the Mayo knows better, and their GIs routinely adjust for its known failings. Given twenty years, maybe the rest of their profession will have woken up to it.
Me, I take a B12 sublingual daily, and I know it helps; other things like iron levels need to be okay to remove fatigue, and I have found that B5 helps me get rid of that "running up a hill all the time" feeling, but B12 is a must have for me at least.
Don't worry that it is all in your head. If medical testing was that perfect, we'd all be cured.
There is an old medical saying: "Listen to the patient, (s)he is telling you what the disease is." If you say you are feeling tired, and there is no reason why you would suddenly give up a healthy active life - then if the tests show nothing, they show only that they are themselves deficient. How well you feel and function is the acid test, not some chemical blot on litmus paper.

when you spend most of the day on the toilet its pretty obvious we aint absorbing all we need and are losing a lot of what we put in so its an "occupational hazard" i guess.

Should i be on b12 supplemaent of some sort then? Im currently on an iron supplement three times a day and currently taking 20mg of pred a day but should be starting to taper off in the next few weeks after 2 months of the stuff. Im always tired in my body. Cant believe the change in my energy levels over the past 6 months i used to be so active and always out and about (mainly socialising and drinking) but these days im mainly most comfortable sitting around on the couch chilling.

The only fun i get is a few hours once i neck a coupple of co-codamol to ease the pain and get stuff done...

Don't you just love that? THEY can't figure out what the problem is, so it must be all in your head... How many times have I heard people say that their doctor doesn't listen to them? Whenever you don't fit into their slots/categories, you get ignored in some way.

I dunno how much this will help you, but make sure you are drinking alot of fluids, water is important.

You may be getting close to dehydration a bit, which will make you fatigued.

It's proably a bigger picture with many things going on too, as others have suggested.

b12 made a HUGE difference for me. If you want to try it without the shots, you can google entopic b-12 cream -- it's perscription free! I used that for a year, then decided the shots were a lot easier every 2-3 weeks. Shots have to be prescribed. I both have needles at home and get it when I go to my doc. the entopic was great, but the cream would last about 3 months and then start to decline in potency and it was a pain in the assets to reorder all the time. My totally healthy 80yo mom uses it still, i started her on it after reading articles about how deficient most of the geriatric population is, the cream works for her, but she just starts doubling the dose after a few months (one 15 buck cream lasts a loooong time)..... but my needs are more than hers, she's got a healthy GI tract so she also eats foods that have it. I don't right now.

Also, for whatever it worth, LDN has changed my life energy wise. I never in my entire life for health reasons had a lack of fatigue. SInce the first week, I've had the greatest energy levels ever. and it's been 2 months, waking up and feeling the same way. Not like I'm on speed. Just normal. It's amazing.