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Crohn's Disease
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Posted 8/5/2009 3:45 PM (GMT 0)
I'm still a bit naive about this disease. Today I started bleeding rectally. Is that something that I should be concerned about?
Posted 8/5/2009 3:49 PM (GMT 0)
It happens with Crohn's. Sometimes when I have a flare up I have bloody BMs accompanied with abdominal pain, weight loss, fatigue, etc... Other times I have all these side effects without the bleeding. You should be in touch with your doctor. What meds are you currently taking?
Posted 8/5/2009 4:21 PM (GMT 0)
I am currently taking Asacol HD. I have heard about bloody BMs but what worried me was that I didn't have that. I what have to say I am staining from the rectum. Ever heard of that?
Posted 8/5/2009 4:46 PM (GMT 0)
Is the blood you are seeing bright red or dark red? Usually, not always, if it is bright red it is from straining and hemmoroids, sometimes inflammation in that area. Usually dark red blood is from higher up in your system. If this is something new for you, you might want to call your GI and see what they say. Good luck!
Posted 8/5/2009 7:25 PM (GMT 0)
Does the blood look like coffee grounds? If so, you may have internal bleeding. I bleed alot when I had bleeding ulcers.
Posted 8/5/2009 8:59 PM (GMT 0)
I had bright red blood coming from way up in my TI. Only mine was coming out so fast that it didn't get a chance to turn dark. I almost needed a transfusion, and spent a few days in the hospital (they went in there and closed up the ulcer that was gushing).

So there is a few different kinds of bleeding with Crohn's. Which is why it is important to keep in touch with your doctor about it. Could be something more simple, but it can be serious. Over time even in smaller amounts we can become anemic, so I'd give the doctor a call. And hopefully it is nothing more but something from straining or a hemmie. But for me bleeding is not something I really take lightly ever since what happened to me.
Posted 8/6/2009 4:53 AM (GMT 0)

Has anyone ever had rectal bleeding which is dark red, comes out when you poop and then also afterwards? Mine comes out with the stool, but then afterwards it sounds like I am peeing, but really it is all blood coming from my bottom. Lots and lots of it. and there are usually clots of dark blood on the toilet paper too.

 

Does anyone know what this could be? It worries me because over the last week I’ve been going up to 6 times a day and each time there is this stream of bleeding/clots.

Posted 8/6/2009 5:59 AM (GMT 0)
I am a pretty regular bleeder. I just have a lot of ulceration in the rectal region and get a fair amount of bright red blood (not hemmoroids). It's always good to talk to your doctor when you experience a new symptom. In general I've just gotten used to the blood. (Though it seems to be less and less each month now that I'm 6 months into Cimzia!!!)

phoebeskye86-if you're bleeding that much (i have experienced that too), please mention it to your GI. Are you on any rectal meds? They make a big difference... I hemorrhaged and lost way too much blood a couple years bac. (I needed 2 units of blood and was still a little over one unit short - they left me to make on my own.) I don't mean to scare you - I just bring it up because it's worth seeing a doc over! Anyway, at the very least, you are probably pretty anemic, huh?
Posted 8/6/2009 7:36 AM (GMT 0)

sr5599 said...
I am a pretty regular bleeder. I just have a lot of ulceration in the rectal region and get a fair amount of bright red blood (not hemmoroids). It's always good to talk to your doctor when you experience a new symptom. In general I've just gotten used to the blood. (Though it seems to be less and less each month now that I'm 6 months into Cimzia!!!)

phoebeskye86-if you're bleeding that much (i have experienced that too), please mention it to your GI. Are you on any rectal meds? They make a big difference... I hemorrhaged and lost way too much blood a couple years bac. (I needed 2 units of blood and was still a little over one unit short - they left me to make on my own.) I don't mean to scare you - I just bring it up because it's worth seeing a doc over! Anyway, at the very least, you are probably pretty anemic, huh?

They let me make it back on my own too, that was a lot of fun. My primary doctor was quite surprised they didn't transfuse me, they said they were going to, but then decided I could just take iron pills. For months I felt like I couldn't breathe good, and would get soooo out of breath just from walking around my house. Just not enough blood to move the oxygen around I guess!

Serious bleeding is nothing to full around with! 

 

Posted 8/6/2009 9:15 AM (GMT 0)
Hi sr5599, I agree, i shouldn't just be bleeding that much, and it really is out of the ordinary, especially to be coming out in this strong stream....

I am seeing my Crohn's gastro specialist on Tuesday the 11th, so i will definitely mention it when I see him. I just recently had my first iron infusion after being anemic for 4 years, so i hope all of this bleeding doesn't un-do that hard work.

I just wonder where the blood is coming from and why there is so much of it... its a mystery.
Posted 8/6/2009 9:21 AM (GMT 0)
Phoebe, honey, I'm not even sure you should wait that long. You said that there was a nice nurse at your gastro's office - how about you phone her tomorrow and ask her advice?

You should not be gushing blood. Really. Phone someone and ask their advice... please.

Keep hanging in there.

Ivy.
Posted 8/6/2009 9:27 AM (GMT 0)
Hi Ivy! She called me last week and I told her I had been bleeding a lot, and she took down notes for my file.... but didn't say anything else. I had a blood test today for my appointment on tuesday, so i am hoping then i will get some answers. I wonder what they will do about it?
Posted 8/6/2009 9:33 AM (GMT 0)
When you said "a lot", did you tell her you were gushing? "A lot" can mean a variety of things, and your bleeding sounds out of the ordinary spectrum to me, and your nurse might assume that "a lot" just means ordinary heavy bleeding, instead of what you are experiencing.

Phoebe, I feel that we are hijacking 2qts' thread, so might you be able to start a new thread for your bleeding issues, please?

Ta mucho,

Ivy.
Posted 8/6/2009 4:27 PM (GMT 0)
They were never sure where all my blood came from. I too passed clots (looked like big clumps of dark red jello - sorry TMI!). One theory they had was that one of my rectal ulcers got deep enough to hit a hemmoroidal artery. It was very scary. There had been other times when I lost about a half to 2/3 cup but this time it just kept on coming. I am fortunate that it stopped... If you don't get in sooner than the 11th, just make sure you rest a lot. Take your meds and rest... Just my thought.

Before I lost that much, back when it was the half cup level, I'd still do everything "normal." I'd run. I'd backpack miles and miles... I would never go backpacking now while bleeding. The thought of being in the woods and bleeding out is not a thought I can get out of my mind! I'm sure Jen77 understands. I've always thought we had similar stories.
Posted 8/6/2009 10:10 PM (GMT 0)
Sorry Ivy – my last post – I promise.

That is interesting the theory about the hemmie artery – this bleeding feels like its coming from something like that because it’s coming in a long spurt. Yesterday I had much less bleeding but it was still there so I will definitely mention it to my GI. I don’t want to go back to feeling awful again after just having iron infusions. I also wonder why it’s coming out in dark red jello like clots and long strings of the stuff. Weird. I thought bleeding from lower down in the tract was bright red but this is dark?

Anyway I will let you know how it goes with the GI on Tuesday. Not much can be done over the weekend I guess but luckily I have a quiet weekend planned (as always)
Posted 9/28/2009 1:29 PM (GMT 0)
Jen77 - when they went in and closed your ulcer, how did that work out?? Didn't the inflammation prevent it from healing? Where was the ulcer located?

*Phoebe* - how did your appointment go?

I have similar issues, that's why I'm asking.
Posted 9/28/2009 6:23 PM (GMT 0)
If bleeding is a new symptom it should be mentioned to your doc...my CD is active in my colon so it's fairly common to have bleeding when crohn's is affecting the colon (crohn's colitis) but still if it's a new symptom then your doc should be made aware of it to confirm where it's comming from and why.


:)
Posted 9/28/2009 10:01 PM (GMT 0)

Hi Former58D, in response to your question, I went to this appointment about two months ago now, getting my stuff together and all my tests done because I am in the process of applying for Remicade (it is very hard to get here in Australia and we have to wait at least 3 months)…… I mentioned the bleeding and ‘spurting’ blood and the large quantities to my GI, but he seemed to think it a normal symptom of my Crohn’s – and then explained that I have Crohn’s colitis in the Colon which explains a lot of the bleeding I guess. I also have clotting some times too which is sort of confusing because I thought clotted blood was always from higher up. I’ve always had lots of bleeding from my Crohn’s.

Posted 9/29/2009 3:35 AM (GMT 0)
I never had a problem getting Remicade here in Australia. It was done for me within 2 weeks at a public hospital Pheobe so if you were that bad im sure they can pull some strings and get it for u especially since u are seeing the leading Gastro Dr Radford-Smith, he was one of many docs working on my case and was the GI that referred Dr Clark my surgeon and yours to do my ileostomy otherwise I wouldnt be here today. So I dont know whos giving u that information. hope it works out soon for u
Posted 9/29/2009 4:52 AM (GMT 0)

Oh that’s interesting Andorable, I was told I have to be within this doctor’s care for 12 weeks before I can apply to medicare to get it as a free medication. That’s interesting. Well hopefully I am at the tail-end of the waiting now, it has been over 3 months and my application has been lodged. I was told by Dr Clark that I would have to jump through lots of administrative stuff to get the meds, so I was prepared for the wait, but I am dying to see if remi will work for me and heal things up for me. Did you get your remicade through the royal Brisbane hospital? Maybe they have a different system? I know they’re doing things as quickly as they possibly can for me to get things sorted and give me back better quality of life….

Posted 9/29/2009 6:09 AM (GMT 0)
Pheobe I got my remi from the Nambour Hospital on the Sunshine Coast and its much smaller than the Royal Brisbane, it was actually Dr Radford Smith that pulled the strings for me with the help of several other docs on my case. If they really want to they will write whatever they need to write in order to get it to you sooner if you are very unwell. I do have a private health cover but it wouldnt cover remicade or humira for me so mine was done immediately through the public system, but in order to get the humira I had built the antibodies against the remi so it no longer worked for me, actually not sure it ever really did I just got sicker and sicker which of course lead me to 2 major surgeries this year. Hope they get it moving soon for you and mostly hope it works

Posted 9/29/2009 6:35 AM (GMT 0)
Yeah I hope It works too….. they have it moving as its now with medicare and they said it will take 2-3 weeks, so hopefully its not far off…. It’s just so nice to finally have a fantastic Dr who is going to do the best he can for me. It’s such a relief. Hopefully the remi works and everything goes smoothly so I can have my mushroom taken out….
Posted 9/29/2009 6:54 AM (GMT 0)

Former58D said...
Jen77 - when they went in and closed your ulcer, how did that work out?? Didn't the inflammation prevent it from healing? Where was the ulcer located?

*Phoebe* - how did your appointment go?

I have similar issues, that's why I'm asking.

It healed up great actually, once he closed it up I never had problems with it again. It was located right at my TI, where the large and small intestines meet up.
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