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Switching from Humira to Remicade

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Posted 7/29/2009 5:45 PM (GMT 0)
Has anyone switched from Humira to Remicade and found better results?

Im thinking of asking the Doctor if he is willing to do that. I dont want to waste anymore of my time waiting for the Humira to do the trick it obviously isnt working like it should, and thats okay...How long do you have to wait between your last Humira injection and your first Remicade infusion?

Posted 7/29/2009 6:14 PM (GMT 0)
Hi i was on remi and got a reaction on 2nd infusion the doc wanted me to go on to Humira but i had to have a 4 week washout period before starting it. it must be the same to switch from hum to remi i would of thought. Good luck hope the remi works for you Bev x

Posted 7/29/2009 6:54 PM (GMT 0)

How long have you been on humira for? I am the other way around, started with Remicade did for 1 year 4 months. I lost the effectness, and it caused remicade induced RA. I went crippled. Because remicade hows mouse dna, where as humira is fully human. it could take up to 3 months to 1 year to feel full effectness of the humira. Are you sure you don't want to wait it out a little longer? as there aren't allot of different anti-TFN blockers so you really have to feel this isn't working and your willing to go on your last chance. there is I think only 3, humira,remicade,cizmiza(I think I spelled it correctly)

I wish you the best of luck, keep us posted!

Posted 7/29/2009 6:58 PM (GMT 0)
I've been on it since April
Posted 7/29/2009 7:23 PM (GMT 0)
I would suggest waiting a little longer. But you know how you feel the best. do a little more research on remicade, and see if it's something your interested in. If you are I'd suggest talking to you doctor about taking another med with remicade, like mtx (I wouldn't suggest) or imuran, to avoid whats called antibodies you can get from remicade (that you can't get with humira)

But again like the nurse of humira and my GI said I need to have lost of patience with humira, it wont work right away it'll take a mim of 3 months up to a year. most people on humira on this form, works for them. I'm hoping for the both of us it'll work and fast.

Good luck! xoxo

keep us posted when you've finaly made a decision.

Posted 7/29/2009 7:28 PM (GMT 0)
I was on Humira for a year & started to get lupus symptoms. I switched to Remicaid in January after a 2 month period of not taking either. My gut got really bad during those 2 months but the rest of me felt soooo much better! Sadly, I think it's starting to happen with the Remicaid now. I've started trying to work out again as I've gained over 30 pounds since starting Humira & my joints are not happy. I walked on the treadmill for 20 minutes the other day & spent the rest of that evening barely able to walk at all because my feet hurt so bad. It's all so frustrating. I'm thinking about just going with the old medications I used before all of these fancy biologicals came along. I didn't feel as good but at least I could get by & didn't have to work out. :)
Posted 7/29/2009 7:34 PM (GMT 0)

omg!

I didn't hear of anyone have humira induced side effects like remicade. you are the first I hear of. I am so sorry to hear that. I am taking Imuran with Humira.Do you take any other med like imuran to avoid antibodies? in a week of this all my RA pains and criplness has gone I can walk again, and live a normal life (RA wise) my crohn's is off the wall, was in the hospital sunday and Monday (my bday) because of the CD so I am still awaiting for humira to start working for my CD.

I was just talking to my fiance and parents about thinking of stoping all these new meds (remicade, humira) and go back to my normal meds like before. But I was in the hospital weekly before remicade. But atleast I wouldn't have to worry about remi/humira induced ra and lumpus. I agree with you. But scarry at the same time, I have high hopes humira will work with only a little doubt 

I wish all of us the best of luck with these meds.

Posted 7/29/2009 10:15 PM (GMT 0)
There's a discussion on this in the medications thread, which you can find in my sig.
Posted 7/29/2009 11:33 PM (GMT 0)
I was not aware that it might take a year to feel the effects, I thought it would be by three months we would know. I will discuss this with my dr on Friday as well.
Posted 7/30/2009 3:03 PM (GMT 0)
Hello

I'm in the same situation now. I have been on humira for almost 2 years, (this oct would have been 2 yr). It started to lose effectiveness for me. It took 6 months for it to work .

I never have been on Remicade, went to humira first.

So, next thurs Aug 6th will be my 1st Remicade infusion. I'm anemic again and start up on iron IV tomorrow.

I would say give humira up to 1 year to work before you give up. I was on weekly humira which was much better than bi-weekly. You can ask your DR. to try weekly 1st then if that fails go to Remicade.

I have been off Humira for 2 months.

My DR also just added Entocort.

Good luck

Posted 7/30/2009 3:59 PM (GMT 0)
Please keep the  info comming. Humira is out of pocket. Going to remicaid when feeling stronger. Home right now. I allowed an abscess to go too long. Temp.101.2 with aleve. Cipro and flagyl on board. Round and round we go.... Please pay attention to all these smart folks when it comes to almost anything. Do NOT do as I did. nono
Posted 8/17/2009 2:49 PM (GMT 0)
Hey Doc,

I was considering asking you about your Humira experience (since your posts seem to depict almost exactly what I'm going through) when I came across this post. Humira seems to be losing it's effectiveness with me as well. I've also been on it since April. I will be seeing my doctor in a couple of weeks to talk to him about it. Since April, I have gotten steadily worse (though it's still bearable). My pain and bowel movements have increased and I am not digesting food very fully anymore (something I have not had problems with until now). I am going to talk to my doctor about switching to weekly injections and when he thinks I should start considering Remicade.

I was wondering if you had spoken to your doctor about the decreased effectiveness yet and what they suggested.
Posted 8/17/2009 5:05 PM (GMT 0)
Hey Sarah,

Whe I saw my doctor and told him about my symptoms...he ran a battery of test that all came back negative...no infection or anything...so with the loose stool and diharea that was getting worse he recomended Metamucil...IT was the best thing any GI has ever done for me! I  have been on Metamucil 3 times a day for three weeks and I feel like a MILLION BUCKS! my stools and BMs became normal...I go aprox 2 to c times a day and I feel fine...cramps subsided to almost nothing...I am picking up weight again and I can eat without pain and running to the rest room. I dont know exactly how it is helping but it in conjuntion with the Humira has been a winning combination. I havent felt this good in years...Since starting Metamucil I dont have diharea, or wet farts, No mucus, no cramping...My appetite is amazing as well...

Posted 8/17/2009 5:54 PM (GMT 0)
That sounds great, except for the weight gain lol (I'm still trying to drop my prednisone weight). I will give it a shot and bring it up with my GI when I see him.

Thanks for the help; glad you're feeling better!
Posted 8/26/2009 8:07 PM (GMT 0)
I also was on Humira from Oct. 2007-June 09. , and found out that after a while it does not work !!! the last shot gave me fever, and I had night sweats during the time of the therapy. I called the support number for Humira, and discuss my case with a professional. I was told that 5% of the people taking Humira have the side effects that I was having. She advised to discuss the late side effect with my GI, I am now off Humira, and taking Entocort. Waiting for the thyroid biopsy result, to see if I can go on Remicade. 
Posted 11/13/2009 2:59 AM (GMT 0)
i was on cimzia first. then after 14 months had a blockage. spend 6 days inhospital. now on Pred, Flayg,. Dr wants me to go to remicade. says 50/50 chance it will help so take the chance. i am not so sure. meetng with surgeon next week to understand all surgery options. BTW, had crohn's for 15 yrs, only symptom has been bad anemia. Took asaco, pentasa, iron pills ect. about 18mths ago, latest colocoscopy showed marked deteriatio Dr said i would need surgery in the next 3 to 5 years and to try the newest thing. Well it did not work. I really am concered about remicade and it side effects
Posted 11/13/2009 5:05 AM (GMT 0)
I did about 8 weeks on Humira before switching to Remicade, starting week 10.  Unfortunately had a nasty allergic reaction to my second Remicade infusion and couldn't do any more after that.

Now I wish I had waited the full 12 weeks to see if the Humira kicked in.  I will probably have to go back on it one day.

Posted 11/13/2009 8:29 PM (GMT 0)
I've been on Humira for six months and developed a fistula while on the Humira. Dr is starting my Remicade next week. I am hoping it does the trick since this fistula now has me on Prednisone, Flagyl and Cipro as well as my Pentasa, multi vit, b complex and probiotic. All the pills!
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