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Humira question

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Crohn's Disease
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Posted 9/14/2009 4:18 AM (GMT 0)
Remicade really worked for me but I had severe reactions and they switched me to Humira. It works but barely lasts a week and then my joints start killing me and though I do not have sever symptoms in my intestines, it sure is not as good as it was. Can anyone else share their experiences with the switch from
Remicade to Humira? Not sure what to do next...... cry cry it's starting to get me depressed again......
Posted 9/14/2009 4:22 AM (GMT 0)
Check out the meds link in my sig.

Ivy.
Posted 9/22/2009 1:31 AM (GMT 0)
I have been experiencing severe joint pain all summer. Today it is hard to walk turn over in bed etcc. At times it would effect only my hand. The pain so intense I couldn't sleep. Then it would go away. Week later it would effect my leg, it was a weekly symptom different area. Lately its everything. Scheduled to see rheumy soon. Worried I won't be able to get out of bed tomorrow. I am very active thin, but this is shutting me down. I thought I had lymes disease again or very low in B-12. I actually was low in B-12, had injections helped for a bit then symptoms came back. I have been on Humira 3 yrs, I am  49yrs old. Frustrated  Does any 1 know what is like after not taking Humira, and trying something else.            Peace       Sorry no experience about rhemicaid.
Posted 9/22/2009 1:54 AM (GMT 0)
Seattle, how long have you been on Humira? It does take about 3 - 4 months to work. I have more severe GI symptoms and Humira helped me greatly with that. My joint pain was also helped, but was secondary to the GI issues. I went from Remicade to Humira by the way with a pretty big break in between. I sure hope it works for you.

Fhumira, I was on Humira for 3 years before I lost effectiveness to it. Perhaps you are going through that as well? I am now on Cimzia. So far, it is not working at all, but I am being hopeful.
Posted 9/22/2009 2:48 PM (GMT 0)
Humira seems to be working pretty well for me though I do think it took awhile to get the maximum effect so if you've just started I'd give at least 2 months.
Posted 9/22/2009 11:47 PM (GMT 0)
I have found that I MUST use Humira every week in order to keep both my joints and gut under control however the battle with my Rx insurace is always fun especially when it is time for prior auth or when like now I changed to medicare part D
Posted 9/23/2009 2:15 AM (GMT 0)
I'm sorry your suffering right now.
I was on remicade for a year a little and it worked well for the first couple of months, then I started getting servre joint pains. It got so bad I went crippled. it went like this for 8 months, every so often change dosage, 8 weeks, to 7, to 6 to every 4 weeks. WHen finally I decide enough was enough. I had to go through a flush period so I wasn't taking anything, but the doc put me back on Imuran and with in 3 weeks I was pain free from the joint pain, and I could walk with a bounce. I'm not on Humira. The joint pains come and go (doesn't depend on anything, not weather, not if crohn's is flared) but nothing like before, when it does come, I'm still not crippled.
remicade/humira has put my crohn's at bay (for now, not sure of my biopsies result yet)
are you aware these bio meds can cause antibodies? which cause the pain in the joints. Are you taking anything else other then humira
Posted 9/23/2009 4:40 AM (GMT 0)
OT, just wondering, did you work at the Seattle Times? My daughter works there now. Bets
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