remicade oh boy

 Had my remicade yesterday and while I am always tired the day after, today I only feel like I ran a marathon backward, up hill, while dragging a battleship through the mud. They always do a cortisone push because I have had some bad reactions . My lips and tongue got numb , but then this could have been the nurse trying to get me to shut up. You think ? The shot usually helps with the old joint pain too but today,,,nada..Im wondering why I have to feel so bad to feel better. I think its like when you have a headache and then you hit your thumb with a hammer , your head doesnt hurt as much for a while. Maybe if I jumped off a bridge I would feel great from the impact. Nope, with my luck there would be a boat passing just as I made it to the water and all I would succeed in doing would be to make a large dent in the top of a sugar barge.

     WOW...I need some positive thoughts here guys!  LOL!  I have ulcerative proctitis and barely hanging by a thread to stay out of the hospital.  Tomorrow I receive my first Remicade infusion...very scary for me.  I have had this disease for over 11 yrs and now am Prednisone dependent and the 6MP stopped working.

Had second infusion today. So far, so good. No side effects, knock on wood. Good progress CD-wise, but not yet remission. It's only been two weeks, but the difference is significant.

Christine, the remicade helps . Really, it's just the 5 hours of sitting in the chair that does me in. They have to access my port and that cant be done by the regular nurse so they have to get the docs aid when she is not busy, then the shot and a half hour wait before they start the cade and they drip it very slowly. By the time Im done I have been sitting way to long. The next day I am very tired and stiff, but , I start to feel better by the second day because I move around a lot more. Before remicade I walked with a cane if at all and now I ride my Harley so heres hoping you have the same good results. That goes for you too Java.
Azjohn, I am not a writer but I do like to look for the funny side of life. That makes the crappy stuff easier to take. The battleship is mine though. I drug it here and I'm keeping it.