sleep

 I haven't had more than 2 hours of sleep at a timee around the clock. I even try to nap. 20 minutes later I am awake and in pain. I have constant pain it wakes me up with ears in my eyes. does anyone else having trouble sleeping. I think its the crohn's I have a laundry list of out diseases to go with crohn's as if I need anymore of this nightmare and the nightmare of others illnesses. tell me about your sleep habits please. any avice about sleep from other crohn's suffers. thanks camey0777 ( Donna)

unfortunately problem sleeping is common with chronic illness. due to either pain or just the fact that your body is out of whack . i have major problems with sleep,i want & need to so bad but cant seem to get very much. i wish i had some sage advice but unfortunately it is a vicious cycle. talk to your doc about pain meds & maybe something for sleep. of course you could just take some benadryl it works just as good. take care & i hope you sleep soon !!

thanks for the advice. I had a even worse time last night as I fell down yesterday after causing fracturein my right leg and upper right arm. also threw my neck and upper back into major pain, vertibre is all crocked and leaving my left arm and hsnd in pain and numbness in my left hand and fingers. I have lost 50 pounds in the last 12 weeks and am not absorbinh any nutrients. the doc says malabsorbtion. I am aniemic, had 4 units of blood last week only one unit registered, doc has no idea where the rest of the blood went. I am so malnutrictioned that my bones are brittle. my body is a mess. I look like a skeliton upper part of body and bottom have have tons thrid space swelling. I am so broken. I need to get better. crohn's is the culprit to most of my health issues. fatique, sleep depervation. I have a care giver with me everyday monday through friday 8 hours a day. she was gone to run a erron yesterday she was gone five minutes and then I went down hard. I have been falling alot. this is twice now in a month and iz get hurt eachtime. it has to be how tired zi am or the neck being so out of wack. they wanted to put me on tpn but because my albumin dropped to 0.3 from 2.5 and my iron is depleted. I am allergic so I can onlyget it in food. my immune system has completely crashed asnd mthe docs won't so surg for a port o catth because with albumin so low I won't heal. I am not sure what to do. I also have factor 5 a blood clot disoder and a fungus in my lungs caalled aspergillosis. and I am getting weaker and weaker.I need stronger pain meds but mydoc is afraid of respitory failure and also congenital heart failure. any advice or helpful hints for me. hospice and palative care. they don't know how to take good care of me. they just have faster access to the Doc. I've been on my deathbed 3 times before. the docs can't treat me for any of my diseases and they can only give me blood I have now had well over 40 transfusions, which opens me up to disese from blood donors. now is purfect and comfortable pain wise but that's no helping me much at all. I need something stronger. I don't have any reason to eep fighting ambattle that my docs tell me I will never beat. thanks for letting me vent. Donna