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Crohn's Disease
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Posted 12/15/2009 5:18 PM (GMT 0)
I am definately concerned about you.  I wonder if you have done a pill camera recently (because it is the least intrustive, but if it does show something then you have to get that biosied?  If not, since you have do the prep anyway for thursday, or if this endo is going to be the 18 foot endo?  Have you had your CBC, chem panel, vit d and b-12 checked recently like within the month?  What about the blood test for crohns? How about a small bowel follow thru (following the barium swallow thru the GI tract) xray?  I know money is a factor, but I am concerned, and am just trying to think about what I wish I would have done when I was getting dxed.

Hope you feel better soon,

Navy

Posted 12/16/2009 2:46 AM (GMT 0)
Thank you for caring I do feel so alone. I dont know anyone personally that has chrons. My aunt had celiacs and died this year of pancratic cancer.My family is very auto-immune disease. Mom had guillian barre syndrome(she was even on life support)Anyways since 06 I have had 3 scopes 1 colonoscopy(almost 4 yrs for that) small bowel follow thru- MRI's , CT's, gastric emptying . These were 2yrs for most. CT and MRI in the last 2 months. Scope has been almost 2 yrs I think. In the beginning, my sed rate was high, liver enzymes a little out of wack, + for old epstien bar virus, eveidence of H-Pylor that was cannulated?? what ever that means? Recently all labs and b-12 normal. Not sure about vit-d. Neg for celiacs, c-diff ect about a year or so ago. I know my thyroid is borderline and I do have a goiter. I had u/s of it years ago, they said it looked like a moth ate into my thyroid? But I was never able to go back to dr.
My blood sugar always drops. even after meals it usually never gets above 90.? Ive notice my vision is getting a little blurry recently, and cogntive thinking is getting harder? I figured lack of food. I ate safe foods but it's like my body doesnt take it in, I continue to loose weight. The only think new is the weight keeps fly away and the IGG and IGA are very high. 2 test for that 6 months apart. The first one was elevated not only for chrons but U/C and 6 months later just severely high for chrons and U/C part was normal? See it doesnt make since.
I dont know? Im just doing alot of praying. I think in the end im more scared that it will have to get to the life threating part for answers and I worry so about my children. But im blessed they are teens. I couldnt do this alone if they were babies.!! lol I do know after thursday's scope if I get no news again I definetly need to talk to someone about the depression part of this. Like I said before. I dont know anyone with chrons so you all are my life line... Thank you and Bless you all.
Posted 12/16/2009 2:46 AM (GMT 0)
Thank you for caring I do feel so alone. I dont know anyone personally that has chrons. My aunt had celiacs and died this year of pancratic cancer.My family is very auto-immune disease. Mom had guillian barre syndrome(she was even on life support)Anyways since 06 I have had 3 scopes 1 colonoscopy(almost 4 yrs for that) small bowel follow thru- MRI's , CT's, gastric emptying . These were 2yrs for most. CT and MRI in the last 2 months. Scope has been almost 2 yrs I think. In the beginning, my sed rate was high, liver enzymes a little out of wack, + for old epstien bar virus, eveidence of H-Pylor that was cannulated?? what ever that means? Recently all labs and b-12 normal. Not sure about vit-d. Neg for celiacs, c-diff ect about a year or so ago. I know my thyroid is borderline and I do have a goiter. I had u/s of it years ago, they said it looked like a moth ate into my thyroid? But I was never able to go back to dr.
My blood sugar always drops. even after meals it usually never gets above 90.? Ive notice my vision is getting a little blurry recently, and cogntive thinking is getting harder? I figured lack of food. I ate safe foods but it's like my body doesnt take it in, I continue to loose weight. The only think new is the weight keeps fly away and the IGG and IGA are very high. 2 test for that 6 months apart. The first one was elevated not only for chrons but U/C and 6 months later just severely high for chrons and U/C part was normal? See it doesnt make since.
I dont know? Im just doing alot of praying. I think in the end im more scared that it will have to get to the life threating part for answers and I worry so about my children. But im blessed they are teens. I couldnt do this alone if they were babies.!! lol I do know after thursday's scope if I get no news again I definetly need to talk to someone about the depression part of this. Like I said before. I dont know anyone with chrons so you all are my life line... Thank you and Bless you all.
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