pentasa and so many side effects

Who has side effects from pentasa ,and what are they...

Thanks

Carmen

Pentasa gave me more diarrhea. I am now successfully maintained solely on Asacol and in remission. Good luck!

sickandlucky said...
While I was on pentasa I experienced a few weird things.... hair thinning, really bad back pain, headaches, anxiety, weird heart feelings etc. I don't know if it was because of the pentasa for sure though, could be any number of things. I'm now on pred and imuran so naturally the hair is still thinning, I still generally don't feel normal. But since going off the pentasa my back pain has gotten about 75% better and I've had less anxiety and no weird heart sensations.
Again, not sure if it was from the pentasa or what... I had been under the impression it was a super mild drug with relatively few side effects but after looking into I found some disconcerting stuff.

Wow, I didn't know that Pentasa caused back pain . . . I've been on it for about two weeks, and the right side of my back (where my kidney is, approximately) aches all the time. I thought it was from the doctor poking too hard. That makes more sense though!

I haven't noticed any other side effects, other than getting a pill stuck in my throat this morning and choking like a moron.

you all seem to be on so many meds i am a crohnie no " D" BUT CONSTIPATION plenty of mucus and little sqwiggly poo s am on asacol and predfoam enamas the foam easies the mucus and the urgencies but not the conspation not having a lot of fiber drinking plenty of water When passing the sqwigglies painfull in the rectum as if a big one on the way but no luck any suggestions would be appreciated as for all the Meds you are on wat you say about them frighten the hell out of me was going to say frighten the SH**t out o me HEY that mite work thanks for listening BUTCH

i have been on pentasa about 8 years - off and on. i have compliance issues so i stopped taking it completely since i was just wasting money by not taking it correctly. but both times that i started it i noticed more hair on my brushes and combs than usual.. but i have so much hair it was not a "noticable" loss.
the strangest thing that i have never seen anyone else talk about is how it makes my urine that splashes up on the underside of the toilet seat stain a maroonish color - i have had to replace all of my toilet seats with plastic ones cause the wooden ones stain permanantly. it is embarrassing and i have to remember to wipe the underside of the seat off before any boys come over and wonder what the heck i do on the toilet!
i also had an experience where i accidentally washed my pentasa inthe pocket of my khaki pants and it stained them maroon in the pocket.. i dont know if it is some chemical componant inthe water here.. or maybe in me? but someone else please say this happens to you! this has only occurred when i have taken pentasa. it is so weird!

amytupelo- I also had maroon urine staining problems on pentasa

Pentasa contains mesalamine, similiar to asacol, lialda...

Are you taking folic acid supplements?
Mesalamine pulls folic acid from your body...

i've only been on it for about a week, and i've noticed my lower back hurts too! but then again, I was having lots of joint pain before I started it, and I keep throwing out my back. So I don't know if it's actually a side effect. since starting it i've also experienced: muscle weakness, muscle spasms (think restless legs all over), and a little anxiety.

On it since April 2006 with no side effects.

I was on Salofalk and Pentasa - after reading this I now know that all of those things I was feeling were side effects.
Pain on the left side kidney area of my back
Maroon stains on the toilet seat
severe D (Actually caused the abscess I had)
Anxiety & mood swings
Blood in my urine (so much so I had to undergo a cystocopy and now see a kidney specialist)

I'm currently waiting for my first remicade infusion next Thursday.

I had to stop Pentasa a few weeks after taking it because it sent my heart rate up to over 130 resting.

I was diagnosed with UC in January and was immediately put on Pentasa.  1000mg 4 times a day.  Less than a week later I started getting headaches and one morning I woke up with a few hives on my arm.  By the next day the hives spread all over my body, I had a fever and the headaches were accompanied by sensativity to light and a ringing in my ears.  My neck became so stiff I couldn't move.  The day I was going into the Dr, I also had stomach cramps and vomiting.  My GI Dr sent me to the ER fearing meningitis.  After ruling this out, the ER Dr was convinced I had chickenpox. 

My initial reaction to these symptoms was an allergic reaction to the Pentasa.  The hives were similar to what I experienced when I realized I was allergic to Sulfa drugs.  I fought the Dr against the Chickenpox diagnoses; I had the Chickenpox as a child, but he assured me you could get it again and my symptoms were the same as adult chickenpox.  I went home skeptical, but Dr knows best, right?  4 days later and my Chickenpox test came back negative.  I am convinced this was an allergic reaction to the Pentasa although I am willing to give it one more chance to see if the symptoms come back. 

I've been on a search to see if anyone else has experienced this with Pentasa.  At 29, I'm just now starting my life living with UC and what a way to start!

i've been on it 3 weeks, so far no side effects. I am tired , but tha'ts normal. Acne..... i don't know if it's the entocort, or pentasa, 3 wks ago i had a clear face, now i have a pizza face