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Crohn's Disease
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Posted 1/27/2010 2:54 PM (GMT 0)
I've always had a bit of night sweats due to my cd, not every night but off and on. now I'm on imuran and pred, and the night sweats are every night, last night I went to bed with a towel and kept wiping the sweat off of my upper body I have to sleep with ni pj top. normal for all on pred?
Posted 1/27/2010 4:16 PM (GMT 0)
Yep very normal with Prednisone.
Posted 1/27/2010 4:33 PM (GMT 0)
I woke up last night twice to change ... and I'm on 55mg prednisone and 50mg Imuran.  It is a chore, yes?

I also find that when my disease is active, I have a slight fever at night like 99.5 degrees which may contribute.

Maybe sleep in layers and in cotton?

 

Posted 1/27/2010 5:00 PM (GMT 0)
I always sleep with a towel under me and a stack of t-shirts near my pillow. The other thing that helps is to stick a washcloth between my chest and t-shirt. It absorbs more sweat (ick, but true) and then I can go longer without having to change my shirt.
Posted 1/27/2010 9:46 PM (GMT 0)
Yeah, I just nix the shirt most of the time.

Pred blows.
Posted 1/27/2010 11:06 PM (GMT 0)
This is very interesting... Do you guys feel 'hot' before waking up in sweat or do you just wake up drenched? I've had this happen once last week and the week before and didn't understand. I have not been diagnosed w/ Crohns... The doc couldn't get me in until March for colonoscopy. Are night sweats common with Crohns?? and WHY? I don't understand why it would happen especially if you're not feeling over heated.
Posted 1/28/2010 6:08 PM (GMT 0)
For me it is more of a cold sweat and it's pretty much associated with prednisone.
Posted 1/28/2010 6:16 PM (GMT 0)
I've had night sweats due to crohns but more so since pred. I wake up hot with sweat and take my top tee shirt off. now I sleep with towel in my bed because I still seweat but towel I use to wipe sweat, upper body sweat

Posted 1/28/2010 7:47 PM (GMT 0)
It seems like everyone is on Pred.  Is there anyone not on it getting sweats?  I know I am hot at times and sometimes wake up wet.  I am only on Remicade right now.  I also don't know if it is becuase my room is hot or me.
Posted 1/28/2010 11:49 PM (GMT 0)
java jay, I spell my name LeVine. i was told along time ago that jewish people are more apt to get either crohn's or IBS. any thoughts?

Posted 1/28/2010 11:56 PM (GMT 0)
I'm not on prednisone and I have night sweats very often. Terrible at times, other times light sweating. Either way it's irritating and seems to correspond to the level of disease activity. I have not been in remission in 3 1/2 years, and I've had night sweats about a third of that time. My sweating actually *stops* when I go on oral steroids because it gets the flares under control.

I never feel hot at night. In fact, even in the winter (I'm in WA) I sleep with my bedroom window wide open. I only have the comforter up to my mid-section, so I know I am not sweating due to environmental issues.
Posted 1/29/2010 12:16 AM (GMT 0)
I've been having hot flashes and night sweats for many years. I thought it was due to the meds I was taking before my Crohn's dx but now I wonder. My hot flashes are worse then my wife had when she was going through "mental pause". Hers ended years ago and mine are still going strong. Lately I sometimes feel very hot, like I'm burning, when it happens.
Posted 1/29/2010 12:32 AM (GMT 0)
I used to get night sweats with my fevers - would wake up in a cold sweat, as somebody else put it. The sweating would occur if the fever broke while I was asleep. A low-grade fever (38C or under) doesn't make me sweat, though - or only very slightly.

Don't remember pred giving me night sweats, but I never really got any of the negative side effects so widespread with pred.
Posted 1/29/2010 2:08 AM (GMT 0)
ATTN: SR5599 ---WHO is your doc and where?? I'm in WA too!

I'm not on any meds... but there are times that i'll wake up in a SERIOUS hot flash--only beginning to sweat--and feel like I'm going to throw up/pass out... but when I've woken up in the night sweats... just drenched. Cheeks red in the morning...but my temp runs low 97.6 and with the sweats it was only 98.4--technically still low. But 6 months ago, my temp was always 96.5sh...so I don't know if my temp is gradually getting warmer. I'm using same thermometers. Anyway.. it's a weird thing and super annoying and I feel for all of you that have this often. what a pain!
Posted 1/29/2010 3:22 AM (GMT 0)
Yeah, I have the same issue. I have a low temp normally so a 99 degree temp is a fever for me. When I'm flaring, I usually get sweats as my fever spikes at nights only usually in the beginning. Same as kids who have a cold, they are fine during the day and then get a fever at night. But prednisone has stoaked my fires as of late. I gotta try the washcloth in the T-shirt thing ... thanks for the tip! Always good stuff here.
Posted 1/29/2010 4:50 AM (GMT 0)
Ouch101 - Love your "handle"! I'm in Vancouver and I see Dr. Phillips out of Oregon Clinic. (I just moved across the river) Oregon Clinic is in Portland but a straight shot down the freeway. there's another clinic up here - the Vancouver Clinic - that I hear has really good docs too. Phillips is amazing but he was voted in the top 100 docs (100 out of all specialties) in Portland, so he's been super booked. Maybe he was that way before though... Anyway, he has a LPN that works with him, Mary Gilley, who is also great. good luck!
Posted 1/29/2010 12:42 PM (GMT 0)

artist guy said...
java jay, I spell my name LeVine. i was told along time ago that jewish people are more apt to get either crohn's or IBS. any thoughts?


Artist Guy..it used to be Levine many years ago.  When my grandfather was in school there were many Levines so he changed it to LeVine to make himself stand out. (So the story goes).

Anyway...I also heard that about Jews..mainly ones from Eastern Europe.  I don't know how true this is anymore and I think the Environment has more to do with it now.

Posted 1/30/2010 4:55 AM (GMT 0)
I sweat heavily day and night, a hot cup of coffee or a hot shower cause me to sweat for hours. I also sleep with the window open at night as well as 2 fans on me to keep the sweating down. Yes I still sweat even with the fans. When I'm on the devils drug I get much worse so the prednisone is patrially at fault.
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