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Crohn's Disease
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Posted 6/6/2010 1:17 AM (GMT 0)
Is IBD the same as Crohn's? I have inflamation in my elbow as well and migraines. I was told that I have IBD and had a high inflamitory/SED rate. Been taking Prednisone for a month. I have had many past surgeries over the last 2 years for my intestines due to perferation during ERCP and septic, ileostomy (which was reversed).  I have had a long nightmare but due to this perferation and spent 9 weeks in the hospital with 21 more days off and on due to obstructions and resection.  Any way, hello. I will post more another time. I know I need to find out more and go to a specialist just pretty freaked out right now with all I have gone through over the last 2 years.

Lesa

Posted 6/6/2010 1:55 AM (GMT 0)
IBD=Inflammatory Bowel Disease...yes Crohn's disease is one of them including Ulcerative Colitis...however this is a bit different from IBS=Irritable Bowel Syndrome...neither of which is a picnic to have.

Welcome LesaJT...I am sad that you have to have this disease...we are here to answer any questions...listen to anything you may have to say, scream or cry, or smile...I am so sorry that you have had such a rough time...
Posted 6/6/2010 3:07 AM (GMT 0)
Welcome to the forums
sorry for the reason
you can also check out the Ulcerative Colitis forum here for some answers
glad you found us
tk care n stay with us
lyn
Posted 6/6/2010 3:20 AM (GMT 0)
welcome Lesa.. sorry you have to be here but this is a wonderful supportive group...

hugs. I am so sorry you have been through so much...
Posted 6/6/2010 10:28 AM (GMT 0)
Hi Lesa, and welcome! you have gone through a lot but, you have come to the right forum for great friendly support and advise. Bev x smilewinkgrin
Posted 6/6/2010 2:06 PM (GMT 0)
Hi Lesa and welcome to the Healingwell Crohns forum. You will find alot of supportive and loving folks here. Sounds like you have been thru the ringer. I am a little confused though thru everything you have been thru, that you don't have a GI doctor on board. You really need to be followed by a Gastroenterolgist (GI) and on some kind of maintenance med too. Good luck!
Posted 6/6/2010 3:43 PM (GMT 0)
I just started taking the pred a month ago and wanted to start there first. I have a deap fear of doctors and going to the doctor and have been passed around our small town. The GI docs here dont see you as a person and I can not realy afford much and asked my doc to keep me in house with him for now. The GI docs casued much of my problems with not diagnosing the problems. I am not a good advocate for my self and would rather sit at home and be miserable then deal with these doctors and the hospitalizations thay have put me through. The 84 days in the hospital and almost dying has caused a huge amount of anxiety and depression and I wll not have a scope done, sicne that caused the perferation. I usaully try to find ideas and ask the doc to try them. I just got the diagnosis about 2 weeks ago. Prior to that doc was calling it IBS, scar tissue and adhesions. Now I have inflamed intestines too. The experiences in the hospital caused me some serious emotional and mental health issues. Untill I get SSA I cant afford to spend much money and not sure what else they can do for me. We have mediocre insuance but too many medical bills alfready gto try and pay off. The Pred is making me aggitated and enraged or crying easily. But has help some.
Posted 6/6/2010 4:02 PM (GMT 0)
Lesa I understand your anxiety has many of us with this darn disease have developed it with our Crohns too. But....this is a chronic and incurable bowel disease which much be treated at all times. The Pred is a good start, but its also a good time to start a maintainence med with it. Usually the maintenance meds take time to kick in, thats why its good to start them with the Pred to help out until they kick in. You could have even more serious consequences without maintenance meds. Hugs!
Posted 6/6/2010 5:43 PM (GMT 0)
What is a maintenance med for IBD? I dont know what to start looking into? I currently take a lot of meds for different diagnosises. I need to list them in my signature, I guess. I feel so aweful I cant seem to get things done or motivated to seek help. I guess I need to ask my husband to step in and help me figure all this out since he is an RN. I gotta get off the pred. its making me too moody.
Posted 6/6/2010 8:59 PM (GMT 0)
Hi! Welcome to the forums!
Posted 6/10/2010 11:12 PM (GMT 0)
You all list all kinds or meds but I dont know what is for the IBD? I need to ask my doc about what treatments. I see him MOnday and my husband is going with me. Please help. I dont know what to do or ask.
Posted 6/11/2010 4:48 PM (GMT 0)
Hmmm...to start off...it might help reading this posting...it might help....

www.healingwell.com/community/default.aspx?f=17&m=1144027

So let's take Wolfie's post, for example...The Asacol is a traditional maintenance 5-ASA medication...the Humira is a more recent medication, but has been considered by some a a maintenance Medication, but may also be used to induce remission, and is an anti-TNF medication...the FolicAcid, Multivitamin, 1000mg Calcium, Vitamin D, Monthly B-12 injections may be used to treat deficiencies in the diet either caused by disease or some of the medications... Pepcid Complete, Questran, may help treat some of the symptoms...(I hope I got this right, please correct me if I don't)...

I hope this helps a bit...I know there is a lot of info...but also do some searches here...look at all the posts, you can search this site too...and just keep asking questions...
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