Awake at 3 am -- thanks Prednisone!

I am in the middle of this also. I decided to stop stressing on it and go with the flow. Nothing really has changed except my stress level. We should start a Crohny chat line open only from 1 am to 5 am , what do you think David  

I had a night like that too, think its the Methotrexate thats the cause more than the Pred for me, plus aching ankle and knee joints. Felt terrible in work this morning but joys someone actually asked if |I was ok cos I didn't look it ! so glad I was looking rough as well as feeling it, nothing worse than feeling like death and no one noticing !!! Joint pain gone off now but stomach acting up so I'm gonna take it easy this afternoon. Take care all

What time do you take the prednisone? When I started on 40mg a day I would take it in the morning as my doctor suggested when I did that I was up 24/7 could never sleep. After 3 weeks of not sleeping, night sweats, etc I decided I would take it at night. So now I take it before bed. Now I'm down to 10mg but I started to take it at night while on 40mg. I was able to sleep but would get really tired in the afternoon. So now I take a nap in the afternoon somedays and go to bed at night and sleep through the night. Have you tried to take it at a different time? Hope you get some sleep tonight!

Like RedSoxGirl I also take the prednisone at night it seems to help most times with the sleeping at least until this past week when i have increased the dosage and i am up at 353 or 354!

Hopefully you'll be better on the 30mg. I was on 40mg and was going insane I love my sleep! So when I finally switched to taking it before bed and now when I woke up it helped so much. Now I'm only on 10mg and still take it at night and sleep great. I do wake up very early but now that I've been on the 10mg for 2 weeks I'm noticing I'm sleeping in later and later. I would give it a shot and see if it helps you!



Huckleberry: Do you see a Dr in the city? I'm about 40min from Boston - 20min from the Cape. I see a Dr. at Tufts. Just switched to him in March.

The GI at Tufts has been great! Before going there I saw Dr. Bliss at Boston Medical Center. Wasn't impressed with him at all and only saw him once. Saw his NP all the other times I went. His NP told me to basically wait it out for several months. So I said all set with waiting it out I need answers now! So in March I got in with Dr. Mason at Tufts and he has been wonderful. Figured everything out right away and was shocked the other Dr. didn't put me on Prednisone. As soon as I was put on the 40mg I prednisone I started feeling better after a few weeks. The Dr at BMC just put me on Asacol and the Dr at Tufts said just being on a maintence drug from the start wouldn't have helped me. He was so right. I've been doing so much better since seeing Dr. Mason at Tufts. I did see a GI in Plymouth before going to BMC but it was imposible to get appointments when I needed to be seen ASAP. So going to Boston is great. I've seen someone else who works under Dr. Mason I think he must be an attending and his name was Dr. Bond just saw him on Monday. He was very nice and outgoing. Made the visit nice. Dr. Mason only works Mondays as all the other days he's doing research. So its nice that I've seen Dr. Bond so now I might just ask for him so I can M-F instead of just going on a Monday. Definitly try taking the Prednsione at night this weekend. Hope it works for you by switching! Good luck!

Huckleberry, I know the Pred is miserable, but its the best med to get your Crohns back under control. Now be a good girl this time, and STAY on your meds:)

RedSoxGirl85 -- Last week I was home and not able to work, but this week I'm back at it and doing OK tll about 8 each night ..... I can tell I'm sort of holding it together for crashing this weekend, though -- not good but that's the way it is I guess.

Nanners - Don't worry ... lesson learned! I'm on the meds and will stay there!

Thanks all.

Benadryl - -good idea. Now that's it (finally) the weekend I'll give it a try!

(Still on 30 mg for another week)