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any advice for joint pain?

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Crohn's Disease
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Posted 7/12/2010 7:01 AM (GMT 0)

I had a 5 day hospital stay last month was diagnosed with Crohn's ("aggressive") and have been doing great on my meds until yesterday. Then, my husband and I decide to leave the kids with Grammy and go away for an anniversary night and I wake up at 1 am in the hotel room in unbearable joint pain. Called the dr back home and he called in hydrocodone and my husband had a to take a $25 cab ride in the middle of the night in a strange city to get to the 24 hr pharmacy for me. Now that's "in sickness and in  health"! Anyway, I'm now back home and on the hydrocodone but waking up every hour or two in pain. What kind of pain relief works for knee and ankle pain? Cold, hot, any advice? Dr thinks this may be related to tapering off the prednizone.

Crohn's dx last month

On lots of prednizone, balsalazide, enema

Due to start Imuran next week

Posted 7/12/2010 3:04 PM (GMT 0)
I know that hot showers, a warm bath can usually work for me...I don't know for you...
(((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))))...I am glad that you were able to get something...I would probably also recommend seeing a Rheumatologist...Take care...
Posted 7/12/2010 3:42 PM (GMT 0)
Yes, it's awful.
Posted 7/12/2010 4:15 PM (GMT 0)
We haven't been able to get my arthritis flare under control and it's been a year and a half.  I would also recommend seeing a rheumy, unless this is definitely from the prednisone and it goes away.  As far as non-medicinal ways to treat it, the heating pad works best for me.  Also, as backwards as it sounds and as hard as it is, moving the joints make them hurt less.  Do any kind of gentle exercising/movement of the joints that you can bear.   
Posted 7/12/2010 4:23 PM (GMT 0)
I go through this everytime my predisone is adjusted actually..I also go through this everytime I start into a flare!  I just try and stretch it out and use heating pads. 
Posted 7/12/2010 5:54 PM (GMT 0)
I too go through this everytime I come off of Pred. Hurts so bad I don't even want to move! It usually gets better for me eventually but can take up to 2 months:( Dr.told me to take Tylemol Arthritus...which didn't really touch it that much. Taking Fish oil helps a bit....but mostly it's just time....Hugs....and keep on keeping on it should get better.
Posted 7/13/2010 1:43 AM (GMT 0)
Hot baths with epsom salt, heating pads (if sore or muscle cramping) and lots of meds and sleeping, oh and bananas too for pottassium. Also take your vitamins. After sleeping, I would try to walk around slowly. I got severe myopathy after prednisone withdrawals. It was horrible! Since then remicade has basically done the same thing. Its frustrating I know, I feel for you. Just know it will get better with time. Oh and if it is pred related, make sure you are decreasing gradually by 5 mgs. I did 10mg per drs orders and it was determined too quick after the withdrawals, thx dr. Good luck to you.
Posted 7/13/2010 4:40 AM (GMT 0)
Thanks everyone. It sounds like the common thread is the cause of the joint pain is probably the pred tapering which I've temporapily stopped (with dr's advice) and that I need to move around rather than just rest the legs and use heat for relief. Geez, I always thought of Crohn's as a disease of diarrhea (which I've finally learned how to spell in the last month). I had NO idea it had anything to do with joint pain.
Posted 7/14/2010 8:02 AM (GMT 0)
Yah pred withdrawl is a cause of joint pain. The only helpful med other than painkillers is remicade, it helped my joint pain alot. It didn't go all away but became way more managable. The strange thing about remicade is the people here starting it that complain about joint pain from it that they've never had before.
Posted 7/14/2010 3:41 PM (GMT 0)
Had first remicade infusion last week and had awful pain in my knees the next day. Strange that Remicade is given to people with Osteo Arthritis to help with pain. Had a bone scan today and have been told I have osteoporosis which can also cause joint pain. May have had the osteoporosis anyway but it is probably due to Pred - great now I have to take medication to help bones repair !!!
Posted 7/14/2010 11:52 PM (GMT 0)
I found the best CD med I have been on that aids my joint pain too is HUmira, When my joints do hurt I use Lidoderm pain patches on the affected area. This has helped more than any oral meds etc
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