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Posted 7/13/2010 4:19 AM (GMT 0)
shortly after seeing my doc which i have been seeing ever since i got chorns. my doctor gave me her work email and personal email. i also i have her work office phone number, her cell phone numberand her house number. she texts me about once a week or two just to see how i am doing and we actually talk for about 15-30 when she does. i was wondering if other people here has this type of relationship with there doc?
Posted 7/13/2010 4:26 AM (GMT 0)
Hmm, I'm thinking maybe you should think about asking her out for dinner or something! ;) That's way, way more communication than I get from my docs and nurses.
Posted 7/13/2010 4:27 AM (GMT 0)
theres no way i could do that!!!! she knows me inside and out!!!! plus she is married with 3 kids
Posted 7/13/2010 4:31 AM (GMT 0)
I wish it was that easy for me to talk to my GI. I usually have to call and leave a message, and hope the nurse actually listens and has the dr call me back instead of the nurse calling and asking questions.

I do have my pulmonologist's cell number in case I need to get a hold of him, but not my GI...I wish it were the other way around.
Posted 7/13/2010 4:35 AM (GMT 0)
I have an email for non-emergency messages. Other than that, I just call his office and wait for a reply.
Posted 7/13/2010 4:50 AM (GMT 0)
I email with my dr every couple weeks if I am in a flare. If i am fine, we won't speak as often. I will shoot her an email just to say hi and let her know how I am doing but unless I am having problems, it's not too frequent. I really like my doctor, she is a good-hearted person and I am thankful that I can get in touch with her and that she is responsive and understanding. I don't have her home number and we don't text, we just email or she will call me back if I call her, she will call off hours if I am having problems. We are lucky that our doctors are interested in how we are doing. tongue
Posted 7/13/2010 5:08 AM (GMT 0)
My GI gave me his email address, pager number and office number. If I need to get in touch right away I just call the pager service and ask for him they don't ask any questions just switch me right over. Then if it's anything non urgent I'll just send him an email and he get's back pretty quickly.

That's amazing that you and your doctor text each other. I was I had that type of relationship with mine maybe not to the extent of texting but were I can just feel free to talk. I always feel weird talking to mine.

Posted 7/13/2010 1:38 PM (GMT 0)
crohnsguy: M jealous! that is a GI who is worth their weight in gold! Mine doesn't even call me back have to cyberstalk him . . . .
Posted 7/13/2010 1:43 PM (GMT 0)
I have nurse Ratchet's number but EEEEEUUUUUU. I think she lives in a cave with the other dragons.
Posted 7/13/2010 1:45 PM (GMT 0)
Holy crap! That's unbelievable. If I want to get in touch with my GI I have to get through to his assistant first. She's not so good about getting in touch right away, so it could easily be a few days and then she acts all put out like I'm an annoyance. I can't imagine a doc giving out a cell phone or an email. Not that I would ever use it, but sheesh - it would be great to have if you really needed it.

You hit the jackpot for sure with your doc!
Posted 7/13/2010 2:25 PM (GMT 0)
I have to call and leave a message and normally wait a few days to hear back.  Only once have they put me on hold and actually went and asked him my question while I waited.  Even my rheumy, who is awesome, has never given me any other way to get in touch other than to call the office and leave a message for her assistant. 

Posted 7/13/2010 3:25 PM (GMT 0)
Do you  know what it is like to talk to G-D? Impossible-that is the name I call my GI doctor. Unfortuantely, she is the best in town. You are so lucky to have your GI doctor. I would kill for someone like that.
Posted 7/13/2010 9:58 PM (GMT 0)
Wow! Are you sure you haven't died and gone to heaven?? Even my family doctor is not THAT accessible!!!
Posted 7/13/2010 10:29 PM (GMT 0)
crohnsguy...Wow that is Amazing! The only time my GI has called me is when my c-diff tests came back abnormal and I had already been released from the hospital.  When he called I thought WOW this is pretty cool.  I tried to save his number but..haha it was not traceable. Ususally, same as  the others... I call  and wait the  whole day to hear back. bothersome!

Oh...and I read your other post about the "Looking for Love" I've always thought that if (I'm married now) I  was ever in the "dating world" again..I'd tell people straight out that I had Crohns...Actually, look for another Crohnie. That's just me.  I'm pretty straight forward.  Thought I'd share cuz' who else know's a Crohnie like a Crohnie right;) ? It's hard enough to feel intimate with Crohns and for me I think... it would be nice to know someone else was dealing with it also...

heather

Posted 7/13/2010 11:17 PM (GMT 0)
that is awesome! I sometimes wish my dr would at least call every once in a while. But usually if I need to tell them something I'll talk to his nurse and then she'll call me back within an hour. There's been only once when he called personally but that was when my wbc was really really low and he was really concerned. I haven't been in to see them in several months, but I kinda would at least like a phone call to check up. I love the staff though, they are wonderful. :)
Posted 7/13/2010 11:55 PM (GMT 0)
I just fired another GI. I swear I've never met a more unfeeling group of people in my life. I get along with all my other doc's, with occasional exceptions.. but .. buuuut...

I just got a new GI, he is younger and let me talk so long without interrupting me I actually thought I might have been babbling.

My friend who came with me, who also has a chronic illness (yay buddy system) is in love with him.

I'm just so grateful I could cry. 24 years of not having a GI ( I went through at least 5 of them) who treated me as a human being was too long.

Good thing too, cuz my body is in a bad way...
Posted 7/14/2010 12:32 AM (GMT 0)
I had that relationship with the GP who diagnosed me with RA.

I have a great rhuematologist if I call the office and leave a message she will call back herself the same day. Every single time-even when I just wanted her to tell me I did not need an EMG that another doctor ordered. (she convinced me to have the test).
Posted 7/14/2010 1:58 AM (GMT 0)
My doctor is in the office I go to 2x/week. So I know whenever I leave a message, he'll call me back at the latest on one of those two days. No email, text, etc. If I need to speak with him urgently, I have to go thru the answering service and get whomever is on call. If it's a question he needs to answer the on call doc will get me in touch with my doctor. I'm happy with this arrangement, but it sure isn't as spiffy as yours. He has called me on his cell, but I've respected his privacy and never saved his cell phone number. Your doctor sounds like a gem.
Posted 7/14/2010 2:32 AM (GMT 0)
I don't think my doctor likes talking to me. I always talk to the nurse who relays information back to me. Then if they want me to come in they set me an appt. with the nurse practitioner and I have the same $30 co-pay to see her!
Posted 7/14/2010 4:51 AM (GMT 0)
my doc gave me his private office #
Posted 7/15/2010 3:45 PM (GMT 0)
i have my dr's. beeper number and his cell phone number. and of course, the office number.  he always answers or returns my call if i use the beeper and cell numbers.he always tells me.. we are in this together for the next fifty years.

Diagnosed  Crohn's, 1998..Gangrene Small Bowel,1998..Ostomy Take Down,1999..TPN for 5 1/2 months..Adhesion Removal,1999..Abdominal Hernia Repair,2000..Kidney Artery Bypass,2001..Diabetes,,Sleep Apnea,,Silent Heart Attack,,Blocked Kidney Artery after the Bypass..Bulging Disks, Pinched Nerve..MEDS--,Purinethol,Folic Acid, Fish Oil,Humira,,Bentyl,Anamantle Cream, .and many more. 25 meds..

Posted 7/15/2010 4:53 PM (GMT 0)
You are very fortunate! My GI is very interested in helping me feel well and has told me that he's willing to do what ever it takes. I'm grateful for that but your relationship is golden.
Posted 7/15/2010 5:05 PM (GMT 0)
I have a direct number for the nurse practitioner at my GI's officer. She is beyond awesome about calling me back and helping me with things.

I have to say I'm jealous though, what you have is above and beyond for any doctor, much less a GI doc!
Posted 7/17/2010 2:32 AM (GMT 0)
I have this with my VA GI and psych, but I agree it is rare. (The GI only after he screwed up.)
Posted 7/17/2010 3:18 AM (GMT 0)
Oh, you're so lucky! I'm on my fourth GI within two years now (two because of moves...I actually liked them). I have that relationship with my GP, I have his personal cell phone number, and he calls me about once a week in the evening to make sure I'm doing well. Unfortunately he's in the military and will be leaving for Afghanistan soon. I'll miss him dearly.
I wish my GI was like him.
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