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Crohn's Disease
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Posted 7/26/2010 9:29 PM (GMT 0)
Does crohns cause weight gain? I've gained 75 pounds in one year! No kidding.... I've been diagnosed with this disease in 2005 thru a colonoscopy and follow up ones, multiple times, and hospitalized only once, but suffer terrible weight gain, tiredness, muscle spasms and of course much time in the bathroom. When do you know you are in remission? I didn't even know there was a time of remission for crohns.  I've been taking Pentasa, Carafate. But have been notified now of possible thyroid problems and diabetes. All weight gain related I'm guessing. how can I stop this weight gain?
Posted 7/26/2010 10:28 PM (GMT 0)
It gets really frustrating and depressing.

I try to think in terms of health rather than a numerical weight, or my appearance. It doesn't always work and I get frustrated and self-conscious sometimes, but at least it's possible to work on health: weight can seem out of our control at times, especially once we factor an out-of-balance body and heavy medications into the mix.

Do you see a dietitian? That might help.
Posted 7/27/2010 12:47 AM (GMT 0)
I don't have an answer for you, only to tell you you are not alone and it is terribly frustrating. I have had a form of an eating disorder since I was 16, I am not 36. I have never been so miserable. I don't feel there is anything that I can do to lose weight, no matter what I try. I don't understand why I can't eat without running to the bathroom, yet I can't lose weight for anything. Hang in there!
Posted 7/27/2010 12:55 AM (GMT 0)
I litterly doubled my body weight with crohn's I think there is a small subset of us that go into metabolic hording mode, and I also have thyriod problems that go along with worsing crohns.
Posted 7/27/2010 1:28 AM (GMT 0)
Have your thyroid hormones checked: T3/T4. You are describing some symptoms of hypothyroidism. I have also had weight gain since my diagnosis almost 3 years ago, although mine isn't related to thyroid, alas.
Posted 7/29/2010 8:00 PM (GMT 0)
I gained quite a bit of weight BACK with remi, which was a good thing. I'm not as young as I once was, and I think my metabolism has changed some. I try to keep busy with walking (I walk the golf course 2-3 times a week and try to walk more on top of that) and my weight has largely plateaued at what I consider my "normal" body weight. (170 up to 210 lbs since Remi 2 years ago. I'm 6'2".) Although I'd say I have more of a propensity for weight gain around the middle now, I am older and I think I absorb nutrients a lot better than I did before (Celiac disease diagnosed a few years prior to the Crohn's.) I think my body still responds well to exercise. I eat almost all organic and don't drink or eat "empty" calories. If I did, I think my weight would be more of a battle. I think people can really screw up their metabolisms trying to manipulate their diets too much. (Flavored water and a granola bar for lunch??; hardly sounds healthy, sorry.)
Starving your body MAKES it retain fat. If you are really lost with your weight and diet, tell your doc and set up a nutritionist appointment. Most weight loss places are in it for PROFIT first, outcomes second. Go to someone that is geared toward the latter.
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