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Crohn's Disease
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Posted 8/7/2010 12:07 AM (GMT 0)
shakehead  For the last 6 months (with the exception of about 4 weeks) I have been dealing wth intense chronic diarrhea and lots of blood in it.  I was hospitalized and put on solumedrol then I had remission on prednisone for about a month.  Right before I got offf pred, I went on Humira in April.  Imeddiately after going off Pred I began having the blood and diarrhea again sometimes 17-19 times daily.  Humira did nothing to change this.  I had a sigmoidoscopy at the end of may and it showed an inflamed rectum (proctitis) and yet the rest of the colon as far as the sigmoidscope could see which is is not very far showed a healing colon.  So my GI said its healing and the blood and proctitis is just irritation from the diarrhea.  I then ran into a fiber (acacia senegal) that immediatley relieved symptoms (except the blood).  This lasted about 4 weeks, but then the floodgates were opened again and it was back to the toilet nonstop.  My doc then prescribed a course of antibiotics (alinia) without having any proof of infection.  This drug only made things worse (pain and crazy diarrhea) as well as some sort of redness in my throat and tonsils which to this day has not left (its been about 3-4 weeks now).  Anyway my GI keeps saying its IBs so he prescribed Librax and thats not working either.  Anyway my CRP levels were only slightly raised (not even by a whole number) and all my blood levels and sed rates are normal.  So my GI concludes its a "bad gut" IBS thing.  Anyway I guess what I am asking is this:  Have any of you fellow Crohnies been treated for your crohns and it seems the crohns is in remission but you continue to have blood and literally watery stools and some blood squirting into the toilet as if you were preparing for a colonsocopy?

All I can say is that I am running out of patience.  I think it helps just to write this down though in order to get it off my mind.  Thanks.  

Posted 8/7/2010 3:11 PM (GMT 0)
Sometimes when I have had really stressful times, I will feel as if I am flaring. Lots more d, cramping gut, nausea etc. But of course, all my tests will come back fine. I always hear the samething at times too, its IBS. But I think with the throat issues you are having and all the d and blood that you are more than likely flaring. Sometimes the blood tests are normal, when you really are flaring. Hope you get some answers soon. Hugs!
Posted 8/7/2010 7:51 PM (GMT 0)
This doesn't sound like remission, especially since it started after you got off the prednisone. Since you have been on Humira for some months, now, it's possible it won't work for you.

It might be time to consider a change of  meds - for instance, to Imuran.  

Might be time to get a second opinion, too.

Posted 8/8/2010 3:19 AM (GMT 0)
The problem with inflammation at the rectum is that it can be acute but not show on the blood work. I was literally swaying in the ER having lost a great deal of blood and feeling awful but my blood work was normal. I had been on several weeks of prednisone and it just wasn't getting to my inflammation. A scope showed what a mess the last 2 inches were in. I had to do 3 days on a IV steroid to stop the bleeding. Now I still get some bleeding, and I use a suppository to keep it under control. As you probably know, there are various topical mediations and different ones work best for different people. I really don't think IBS would cause that much bleeding, or the sore throat, so I would ask your GI for something that you can get more directly to your proctitis and maybe your family doctor about the throat. You may indeed also have IBS (I do too), and it may be giving you problems, but I would still try to solve the bleeding problem. You may also have an infection like CDiff which others know more about here. I'd certainly keep on asking to get a solution to your symptoms.
Posted 8/8/2010 3:32 AM (GMT 0)
I'm in remission but still have trouble with blood at times, frequently without any diarrhea or constipation. Just lots of blood sometimes for no apparent reason. I had a flexible sigmoidoscopy last fall which didn't turn up anything suspicious. It doesn't interfere with my daily life since it only happens when I'm on the toilet and ther eis no pain or anything. If it reaches a point where I have to wear a pad or anything like that my GI doc said he would send me to a colo-rectal surgeon.

I think for some people with Crohn's, blood just happens sometimes.
Posted 8/8/2010 7:47 AM (GMT 0)
well, my answer to that question is no, in fact more the opposite (even when I;'m not having much in the way of symptoms, I'm told my colon looks like "hamburger". lovely.

Sorry to go O/T a bit, but I have been wondering about this lately.... I was reading some posts from people with IBS and what they describe in the way of D and symptoms coming on I can 100% relate to (ie feeling the need to have D IMMEDIATELY once I start feeling anxiety or nervousness, feeling like your inside are spasming even tho there's nothing coming out etc)

Now, I know I have crohn's (my first gastro said he was 99.999% sure, and if not, then colitis, not IBS) and with all the weird symptoms like fistulas, fissures, mouth ulcers, joint pain, rashes etc etc.. but sorry I know this is getting too long..lol..

my question is, can anyone relate to this? Or is your D and stomach pain completely unrelated to your mood or anxiety level at all times? I mean I def have D when I'm not anxious too, but the nanosecond I become nervous I have to go, and my tummy hurts.

It's been happening without fail on the way to work for the past 12 yrs (thankfully for most of that time I've been off..thats why I stay- great benefits)

thoughts??

Posted 8/8/2010 1:51 PM (GMT 0)
Tara,

When I get stressed or anxious the first thing that happens is the d starts and I start feeling really nauseous, so yes anxiety can do that. I have a rx for the lowest dose of Xanax available. If I take it at the first hint, it can help to stop the anxiety and d and nausea. I usually suffer with more constipation than diarrhea, but sometimes something I eat may not agree with me and I will get similar symtpoms. I think that part of it, is my IBS. Not all of us, but many of us, also suffer with IBS along with our Crohns. Mine was triggered by my resections I think. JMHO

Hugs
Gail*Nanners*
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