sniper report

That is just unacceptable! Can they re-fax the paperwork. It seems to me that would be the simple thing. But what do I know, I'm not part of the "system".

I'm sorry you are getting such a run around. The stress certainly isn't good for either of you. Keeping you both in my thoughts.

I am sorry this is happening to you and your wife.

I strongly suggest you get a copy of your wife's file and take it with you wherever you go. Add any new info to it. A 3-ring binder with dividers helps keep you organized. I did this a long time ago when I was being treated for Lyme Disease. I had everything right there with me to show to the specialists and it really helped a lot. (I am NOT that organized now!)

Have you seen the USB flash drives that can be worn as a necklace that can contain medical information? I'm not sure that it would have been a solution to your problem, but it might be worth considering when you are going back and forth between different medical facilities. Something to consider would be whether or not you actually want your medical information on something that can be lost. There was an episode of "The Doctors" that featured a heart-shaped necklace that contained a USB flash drive. Just an idea ..

Glori

Im sorry too Sniper. As if you and your wife need all this extra pressure on you both.
I agree with everyone who said 'how hard would it have been to re-fax them'. Good luck with the patient advocate
((HUGS))
Take care to both of you
Jo

The re fax was made and they now have all the info. The doc. only sees patients on Tuesdays though. We have gone to the patient advavate yesterday and now the ball seems to be rolling a bit but still waiting on an apt. for the pet scan. The doctor has been contacted and has sent the reports to the pathologist . He will decide if there is enought tissue in the last biopsy or they need to do another one. Hoping to get info on the pet scan today. Still, I am not impressed but to start over in New Orleans would take longer so we will stick this out. Advacate says the doctor has already come up with a possible plan of action but wants to wait on biopsy results. Maybe we will get a break and wife wont need another one. Thanks for the hopes and prayers and support you guys give. I am trying not to go off on these people as that would not help my wife to see me lose it so I'm leaning toward control now and not anger. Knowing you guys care and support us helps me a great deal. Thanks to all again.

Really hope this all gets sorted soon you and your wife have enough going on big hugs to you both Bevx

Thanks for keeping us posted Sniper. I think about you and your Bride often. I will keep you in my prayers for a great outcome, as my friend had at MD Anderson. Wish I had it in me to pull some funny words out for you to break the stress a bit. I guess that's your job, but right now I just wish I could return the favor. God Bless you and best wishes the MD Anderson maze.

OH Gosh Sniper.

You know what I'd do if I were you. Personally go to all these people, stand there and physically request all the paperwork, the reports, the films and their notes. It's a BIG file sometimes but when its in YOUR hands, you know those idiots in the incompetent office can't screw up since you have a copy of them to hand over to the doc yourself.

I had a doc do that because he KNEW I wouldn't get the right care at the hospital where I'd just had a surgery. He have them print all my paperowk from THAT hospital and I carried all these films and this three inch think file on my surgery and their findings to the NEXT hospital and a specialist he wanted me to see. I had surgery the next day (it was something like four weeks between surgery 1 and surgery 2). I thought i was going to TALK to this doc. Oh no, I got erm...probed, he showed me what the problem was on the films themselves and he let me go home to gather my pillow and some comfortable clothes since he insisted on the surgery the next day. It was the best one I've ever had. With all my paperwork handed over MYSELF, I sat there and listened to the doc murmur to himself as he read through all those reports. Sometimes that's the way it has to go. Don't give up. I'd DEFINITELY request a new case worker though.

Good luck Sniper and I hope you and your wife get the care you need!

Welllllllllllllllllll, finally got things straight yesterday. Test will be run monday and then we will go home for a week. Next apt one week later and by then we should have enough info for a plan of action.