Hope and... I feel like I should apologize

I've kinda jumped on these forums without telling you anything of what Ive been through. I apologize for that

I guess I just wanted to say there is reason for hope, that there is no reason to think that things will never get better.

There is one person in this world who has recovered from crohn's, and I must stress that recovery is completely different to remission. The disease has not gone dormant, it has just gone and wont be coming back. How do I know this? I feel it, the same way you dont get over a cold/flu and think that the cold/flu has just gone into remission, you can just feel it, that it is gone.

I was diagnosed with JRA at 10, Psoriasis at 12, Crohn's at 21 and Ankylosing Spondilitis at 26.

All were on the severe side of the scale in how they attacked me.

The last 4 years I was mostly bedridden. This year I found a way and turned the corner and every symptom I ever had has been leaving me and my body is feeling indescribably good.

As it relates to crohn's, the last time I had bleeding was 5 years ago, I spent the last 5 years in remission but never feeling well until this year, the last time I had pain was 4 months ago, the last time I had what a Doctor would call a normal bowel movement was this morning.

The other 3 diseases are taking a little longer to heal, but then thats to be expected with how much damage they had done.

For the whole of this recovery (well for the last 3 years to be precise) I have not taken any medications (before this year I was living in hell with my symptoms but the meds and treatments had very little effect and I didnt want to blank myself with painkillers - basically I bet it all, I either find a way to recover or else nothing, no half measures, nothing to make living with the disease easier, I was only interested in getting rid of the disease completely).

I am still on no meds, no diets, no nothing. I can eat whatever I want and nothing has an adverse effect, I sleep well and I go to work. Ive done many things in the last few months that were always the worst things for me to do with crohn's as well as the rest, Ive eaten all the foods that would set it off, I have put my body under huge amounts of stress and yet I continue to feel good, this is all stuff Ive done many times before in my life and always had it hurt me in the past.

I am quite excited because it is what I always wanted: something I only had to do once, no repeat, no maintenance and once done to never have to think about looking after these diseases again, to be able to use and abuse my body without having to worry or suffer.

Since March this year every day has shown forward progress to getting better without any action required by me, there hasnt been a single backstep in all this time.

As I write this now, my only remaining symptoms, that are improving daily, is the Psoriasis on my scalp and shoulders, the RA in my shoulder that was broken some years ago and just one pinched nerve in my lower back from the AS. Compared to how I was for the last 10 years, it is so little to be laughable, but then thats a matter of perspective that makes me see it that way. It feels like what remains is about 1% of what I used to feel.

I have now become a guinea pig again for my Doctors for this very reason as they attempt to understand how what I did has worked, when nothing else has been able to have this magnitude of an effect.

Maybe you find reason to hope, or not, thats up to you.

But there is one person in the world who has managed to get himself free of these diseases.

Sorry Mr. Oinksalot, but you are just in remisssion, you are not cured. I once thought I knew it all too, and stopped taking my meds. I enjoyed a nearly 20 year remission and ate anything I wanted and had no symptoms of the disease. Well let me tell you, I didn't know everything like I thought I did. My 20 year remission ended with me having a emergency resection due to a 12 inch stricture at my ileum/cecum area. While I was busy getting on with my life not thinking about having Crohns, the Crohns was still in there doing its damage without me even knowing it. This disease will continue to do damage on a microscopic level if you are not on meds. I will never be without meds again, and you will find many others have learned the lesson the hard way I did too. Yeah it may be quiet for awhile, but it NEVER goes away forever. So I am glad to hear you are in "remission", but I can 100% guarantee, you are NOT cured. JMHO

Nanners, no offense, but things change, the disease may have existed for thousands of years, but the knowledge to get rid of it hasn't.

I havent been alive for 35 years, I dont see any relevance to time served with a disease lending itself to knowing more about it. I dont know it all, which is why Ive taken what Ive done to Doctors to figure out, in my mind anyway i want Doctors doing this because the med industry is the best equipped to reach everyone who needs it.

I agree for 35 years and still counting your Doctors dont know how to cure the disease (I'm working on that part), my Doctors have only found out in the last month how I cured this disease.

Maybe one day it will happen... maybe it already has :) maybe at this time there is a cure and what you're waiting on is the knowledge to be integrated into the medical industry, how long that takes... I have no idea.

Thing is this is what has happened to me, I cant talk here and pretend otherwise.

For the diagnosis to be wrong, and you would have to extend that to RA, Psoriasis and AS, then 7 Rheumatologists, 2 Gastroenterologists, 1 Dermatologist and 3 GP's have all been wrong after having done every test to confirm what treatments to go forward with.

Sorry Nanners but I have had remission, I know what that feels like regarding all 4 diseases I was diagnosed with, there were times when I felt normal, this right now feels like something I have never before felt in my life.

But Im not here to argue "listen to me, I have all the answers", Im just here to talk because no one I know understood what it was like living with those diseases, though no one else yet can relate to what Im going through now. That I can deal with on my own.

But thats where Im coming from, I cant pretend otherwise.

As a logical argument, to look at the fact that the cause may be unknown, it is illogical to assume that there isn't one and nothing can be done to resolve it forever.

I know everyone is going to doubt me, until the day they visit their Doc and the Doc can say "dadadada" and have you walking away thinking... I have no idea what you'll be thinking to be honest.

Even though I did this to myself all I felt on that first day was "something's different, but I cant put my finger on it". It was just a feeling I had, for the next 2 months I bounced between disbelief and doubt, not able to process what was happening. It wasn't until the third month, after a long laundry list of symptoms had resolved that I started to admit to myself that little old me had nailed it, then I bounced between feeling completely overwhelmed by that and uncertainty over how my life would be different, no one has ever known me without the disease, not even me.

I feel more alive now, really really alive, than I ever have in my life.

If I can choose only 1 reason, for going to the effort to harass my Doctors (they were resistant, until they laid eyes on me) and put myself through all the crap they want to put me through to see this help others? Well then I choose: So I can have someone to talk to who can relate to the whole darn experience :P

Ah maybe one day.

Hi, have been over and read your piece on the RA board and I actually don't know what to say!! It is not that I disbelieve you but am equally finding it unbelievable(that make sense?!)

Obviously there are so many theories out there about causes and treatments and that is something, dare I say, pretty bizzare but I guess many things can appear that way until 'proven'. Sometimes all it takes is one person to go off on a tangent and strike it lucky!

Would be interested in seeing where/how this goes

In retrospect I shouldnt have checked my email before going to bed, oh well.

Doubt is fine, if it was important to me that everyone in the world believes me, well that would just be stupid.

A Doctor believes me and is writing my case up as the first step which then follows onto study/research, whatever it is the med industry does with its time before its given to doctors as an option for treatment.

When I was suffering and meds would stop working and therapies would stop working I used to read forums sometimes, maybe I would find something new to try, something I wasnt aware of, sometimes I wouldnt. I never used to write to the forums, I would just read.

If someone just reads this and it helps them to know more is possible, I know Ive had some very dark times, then that is enough for me.

If you want to ask questions, im cool with that, if you want to tear it to pieces and dismiss it as too simple (why the fascination with complexity ill never know) then thats cool too.

I only ever needed one person on board, and I have that person already in the form of my Doctor, I leave it to her to do whats needed past this point.

As things go further, ill post updates, for no other reason than people here will undoubtedly find it more interesting than my family and friends, who are mostly supportive, but just dont get it.

Back in the 1800s, and again briefly off and on in the 20th century, there were periods when people thought magnetism/electricity could treat or cure a wide range of ailments. It was all quackery then and it is all quackery now.

Hey Sir Oinksalot, is your real name Ken Presner? Also, what's the name of the doctor who's writing up your case report? Where is this doctor located?

Hi Mr. ...errr...Sir Oinksalot...great name!

I've always had an open mind about alternative therapies, so I hope you are really for real. I also believe our LORD has the power to heal, too, but that's for another forum...

I have a question, though. Is this the Beck Protocol or similar to it? I haven't yet read this entire thread or your post in the RA forum... but I once did a little reading about the Beck Protocol...

to all and also no one in particular:

i am always skeptical of things and take good news with a grain of salt, especially depending on the source or when it is "too good to be true", but when you hear story after story (from professionals in the field mind you) about the government and/or the FDA spending a great deal of time and money to suppress technology, knowledge, and advancement, to the point of running people out of the country (hudda clark comes to mind) then i tend to think that it may not be all quackery like we are being told. livingston and gerson were WAY ahead of their times in treating cancer. it was only after their deaths that modern science caught up to them and began proving what they were doing was legit and worked - worked better than chemo and radiation treatments. but it will still be suppressed cos there is so much money to be made in the system we have set up. you cannot put drug companies out of business just like big banks are too big too fail. the government will not allow it.

so i cannot dismiss magnetism and the work by royal rife and hulda clark and robert beck out of hand. just cos mainstream does not understand it does not make it incorrect. new technology is always first hailed as heresy. then after many years it arises again to challenge the status quo. only many years later, can it be taken as true and it becomes the new status quo. history shows us man has a hard time embracing new technology and knowledge. and as for magnetism, i have experimented myself with biological wave generators that are based on the research of rife, clark, and beck and i have to say, this stuff does work. (i guess i have now lost my shred of merit on this board). like everything, some work, some are junk. but the science is very very intriguing, enough to where imho it is worth trying, especially if you are at your wits end.

so as with drugs and any other method, what works for some may not work for others. we all want the "magic bullet", the panacea. to illustrate my point, some may try diet and become well and do so fast. for others it may take many many months to see improvement and still others may not see any benefit. then you may also have some that never truly stuck to the program and thus never saw positive results so they feel compelled to lambaste it every chance they get. we all fall in to many different camps, with none of them being wrong. i know what worked for me. if you want to know, ask and i will be more than happy to share and encourage you to follow my path. just as you know what worked for you, i know you will encourage others to follow your path as the last thing any one us want to see is our mistakes and pain repeated by others.

as this disease has so far been proven to have a genetic link, and i have found one in my family, i am hard pressed to believe one can truly be cured. but there is no reason why one cannot be in remission for the rest of their life or for a very very long time or use a specific treatment that when flare ups do occur, they are mild and are gotten under control quickly.

miracles do happen. as soon as you let yourself forget that, you truly have given up hope and have begun down the road to being a bitter person. i dont know about you, but i dont find the company of bitter people to be very pleasant....

that is my 35 cents (i dislike people that only give two).

Roni, his info is on the RA board, for we do not allow adverts or duplicate postings of the same info.

ooooer the point seems to have been missed. The magnet is of no consequence.

If what I think happened is right, the electromagnet is irrelevant. I could have achieved the same results with a scalpel, but I had to search my body and only after searching all over did I find the source of the disease to be in the belly button. Without knowing where I couldnt have done it with a scalpel, Im just not that into self mutilation. If what I think happened is right, then I imagine the doctors will be taking care of this with a scalpel and dis-infectant and then treating your body to recover as quickly and painlessly as possible.

I cant do it that way, Im not a doctor.

I dont want just a few people to do it with a magnet. In a way Im selfish, I want doctors to do it because I have too many people come to me in real life tell me what they are suffering with and I want to be able to just say "go see your doc and ask about your belly button".

For the last 3 months Ive been having this conversation with people over and over, everyone I talk to seems to go through a similar process as whats happened here, it gets tiring.

I have nothing to do with selling anything, I am never going to make another EM resonator let alone try and sell one to people. I have no interest in that.

With my health restored I can make money on my own, the thought of taking money from people in that desperate place sickens me, Ive been in that desperate place and I have spent a lot of money on things just hoping the quakkery would work. I do have some bitterness towards the alt health industry because of that, too many claims/too little result/too much money.

To answer a question it is not the same as the Bob Beck Protocol. I did try that and it did help a little bit, I just took his idea of EMF pulsing in a different direction. Namely making a resonance field to make microbes move, instead of using hugely powerful pulses to kill microbes. The way I figure it, my body can handle the microbes as long as there is an end to how many keep coming in, after all I am not made of infinite resources so I cant tackle an infinite number of microbes and expect to still feel fine. So I cut off the source of their reinforcements.

I only used EMF resonance to find the source of what I now think of as the infection. Without knowing where it comes from that magnet was just a tool to search and find the source of the disease.

That was all, If I had known, well I couldve used a scalpel, a blowtorch, a powerdrill. I would seriously advise you to NEVER buy one of those zapper magnetic pulsers, not because theyre ineffective, but because they are not necessary.

What I think is necessary is getting rid of the source in the belly button, then maybe some kind of anti-biotic to clear whats already in your body, good food, some rest and some time to heal.

Ive never cared what form a cure took, as long as it was ethical, I couldnt care less if it needed a stupid magnet or a severely toxic drug that destroys my immune system, as long as it worked.

For the record my name is Mike, Im from Perth, Western Australia. I wont be putting my Doctors name on here, simply because I would need her permission to do so.

Okay, Sir Oinkalot's post wasn't there before I posted...

Just quickly: you're telling us about a cure that almost nobody will be able to put into practice. Unless they just happen to be able to build an electromagnet of course. It's all very interesting but I can't see much point.

So basically your saying, if you get your bellybutton removed you will be cured??  You need to put this in layman's terms I'm not following.  This is interesting though, and I have an appointment with my GI on Thursday, he does a lot of research and such and is very much into unconventional methods. 

It's funny because I always begged my surgeon to spare my bellybutton during my surgeries....