New Member

Hi it is my first time posting here so I wanted to introduce myself.

I am a 27 Y/O male and have been living with Crohn's for 10 years. Currently I am finishing a Master's degree and working full-time. School has been a tremendous challenge due to bouts of depression during flare-ups and missed school due to severe flare-ups. My disease has been moderately active to severe over the years, but with the switch to Remicade over the past year I have been in great shape. I am not entirely happy with this though, while I recognize just how fortunate I am, I am very concerned with the effect that this medicine will have on my body.


about six months ago I started to learn a lot about Helminthic therapy. I had first heard about his years ago but dismissed it since the person that told me about it told me no more than they had read that I could treat my Crohn's by "eating worms". Now that I am much more informed I am beyond interested in this therapy and am strongly considering it.

Thanks for your time. I am looking forward to; learning from all of your experiences and knowledge, and contributing where I can.

Sorry for taking a while to get back to you but I have had limited time to get on here.

Let me start out by saying that Infliximab has given me a quality of life that before I could only hope to one day have. After 9 years of suffering I have been in remission for the past year. Yet, while this drug has done amazing things for me I have also been taking much better care of myself over the past two years and have been a lot more proactive about my health.

Although Infliximab has done great things for me I have concerns about its long term use. Some things that concern me are that: this is a very new drug in relative terms and therefore little is known about its long term use, biological drugs have only become popular a short time ago and it is highly likely that there sudden emergence isn't because they are a better drug but rather because they are harder to reverse engineer, your body needs TNF alpha not as much as those with Crohn's produce but still it serves many important functions in you body and this stuff zaps it, if you do your research you will see that there are some very serious side effects this stuff can have; while I realize that he fact that I haven't had any side effects yet it is still very possible for me to experience them with prolonged use, and lastly I have concerns about being on any medicine long term and with my Crohn's I may need to be on medicine my whole life.

I understand these concerns- the thing is crohns can also make you very seriously ill. I have had two near-fatal situations due to crohns when I was not in remission (stroke and internal bleeding). When I started imuran years ago I was told that it could give me cancer, damage my fetus if I were to get pregnant, and I probably would not be allowed to use it after a 5 year period due to risks such as these and others. Yet I got 12 years of healthy and happy remission from it. I am again sick and now am seeking something to stop the symptoms before I get worse. I guess I feel that if the crohns is not misbehaving, then don't tip the boat. But I also, again, understand your concerns and wish you the best.

B